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Cluster Headache Help and Support >> Cluster Headache Specific >> remission over?? or solo hit?.
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Message started by coach_bill on May 21st, 2008 at 6:48pm

Title: remission over?? or solo hit?.
Post by coach_bill on May 21st, 2008 at 6:48pm
hello all, i have been pain free for 3and 1/2 months untill last night. at 12.40 pm i got the wake up call, started at kip 7 quickly moving up to 8 by the time i got to my 02 tank. 5 minutes of 02 and it was falling fast, the 02 saved me a imetrex shot, and i stayed on the 02 for the full 20minutes hoping for no rebound headaches. i passed out again at 1.10 am and was able to sleep untill the alarm at 4.30 am. i thought i was doing everything right, had my dose of RC seeds 4 weeks ago and everything was great. now im getting shadows today and a weird dizzyness ( not unpleasent but weird). i know were not doctors, but can someone please tell me why im got this solo hit, or is it not solo? has anyone eles got just a solo hit or can i except more, i always have had remmisions of at least 1 year not 3 months. guess i will know soon enough. thanks coach bill

Title: Re: remission over?? or solo hit?.
Post by Trooper on May 21st, 2008 at 7:51pm
Coah Bill, I wish I could answer your question.  :-/ I can only tell you that I have leared that I am the Queen of Denial! I have had numerous cycles that started out with what I wanted to tell myself was a solo hit!

All I can say is you need to get your guns loaded and get ready for a fight! There is no rhyme or reason to the beast. Just get ready to kick his ass when he comes knocking on your door! I hope I am wrong... but there is nothing worse than getting caught with your pants down!

Title: Re: remission over?? or solo hit?.
Post by coach_bill on May 21st, 2008 at 7:56pm
thanks trooper, thats good advice coach bill

Title: Re: remission over?? or solo hit?.
Post by Brew on May 21st, 2008 at 8:17pm
Plan for the worst, hope for the best.

Title: Re: remission over?? or solo hit?.
Post by barry_sword on May 21st, 2008 at 8:29pm
Hope this was a fluke hit, but keep your guard up just in case. I look over my shoulder so to speak during this remission as the beast is lurking and is right there waiting, I can feel it. :(

All the support I can give you is yours. Hang in there. ;)

 Barry

Title: Re: remission over?? or solo hit?.
Post by DennisM1045 on May 21st, 2008 at 8:34pm
Hi Coach,

Either it is or it isn't.  Don't dwell on it.  Just be prepared.  Judging by the fact that you knocked it down using O2 and were back in bed in a half hour it sounds like you are  ;)

Are you prevents lined up too?  If not a quick call to your Dr would be a good idea too.

Take care ... I hope tonight proves it a fluke

-Dennis-

Title: Re: remission over?? or solo hit?.
Post by coach_bill on May 21st, 2008 at 9:15pm
thanks to all for  the support, i will update soon. coach bill

Title: Re: remission over?? or solo hit?.
Post by Redd on May 21st, 2008 at 11:31pm
As a believer in the RC method, my advice is to stay off conventional meds for a bit and hit the bastard gain with another dose.

I've been chronic for 20+ years and it took some time to get matters under control, but I have been having wicked success with RC seeds.   I still have to maintain the treatment to remain PF, but thats a helle lot better than having a resergance of the beast and my life falling down round my feet.

During my usual "high" cycles I have to dose more often, then during the low times I can go up to a month between doses.

Keep us posted to your progress.

Title: Re: remission over?? or solo hit?.
Post by coach_bill on May 22nd, 2008 at 9:26pm
yesterday, (wensday) i did a dose of 40 seeds, and i did not get the wake up call. (thank god) and dr. huffman. but i have noticed alot more shadows today and for some reason i have been real amped up all day. its just frustrating, its almost like waiting for the electic company to shut of the power?? i almost feel like im ready to pick a fight or something ARRRGHHH. sorry >:( but im very happy i did not get the hits ;;D, My CH messes with me in a bunch of freaky ways , and im very happy this board is here for me. thanks coach bill.

Title: Re: remission over?? or solo hit?.
Post by Annette on May 23rd, 2008 at 3:22am

I pray for you that it will only be some odd hits and after this dosing you will completely painfree.

Hang in there.

Title: Re: remission over?? or solo hit?.
Post by Redd on May 23rd, 2008 at 7:16am
It is not uncommon for there to be pot dosing shadows and even some hits, but don't let that discourage you.

As the beast tries to stubbornly get his tallons into your head atthe start of a cycle, my experience has been that it's time to be just as stubborn.  Keep a 5-7 day dosing schedule if need be, then try spreading the doses out longer.  You may not need more than a couple back to back doses before you cage the
bastage again.  


Title: Re: remission over?? or solo hit?.
Post by Pinkfloyd on May 23rd, 2008 at 9:51pm
Keep us updated each day Bill.....and listen to Redd!!!
She's one of only a handful of Certified Purveyors of Seed Information. CPSI grade1

Bobw

Title: Re: remission over?? or solo hit?.
Post by Ray on May 23rd, 2008 at 10:26pm
Bill:

It sounds like you've been given good advice.  I'll pray that this was a rogue hit.  Try not to drive yourself nuts and you'll be fine.

Wishing you well,

Ray

Title: Re: remission over?? or solo hit?.
Post by Redd on May 24th, 2008 at 10:58am
Something else to remember, is that even though we aren't getting hit, there are the other CH symptoms that are NOT effected by RC therapy.  (or any therapy for that matter)  Namely the anxiety and restlessness, and the insomnia.  

Every little twitch or twinge, the slightest bit of pressure can cause the mind to race and worry.  That is something we as CH'ers can't keep from starting, but we CAN use positive self talk and deep breathing to overcome when it happens.  

Frame of mind is very important to keep moving through these periods of CH activity.  The depression can become a downward spiral.  We all recognize this from before we were diagnosed, and when no meds were working, and life didn't seem quite worth all the shit.

And thanks Bob.  If it wasn't for your guidance, I don't know if I'd have come this far.  

Title: Re: remission over?? or solo hit?.
Post by coach_bill on May 26th, 2008 at 7:28pm
Hello everyone, i made it thourgh the tournament this weekend with no hits since friday morning. Has anyone tried they baby woodrse Seeds, i would like to look into different types of seeds. Maybe the RC seeds arent the anwser although like i said nothing since friday morning and im on no meds, so maybe they do work?? i will be blasting at the beast again on wensday with another 40 seed dose then hopefully if nothing in the way of kip 6 or up breaks thourgh i will ramp down to a lower monthly dose and keep to IT. also i belive the shrooms is worth a try, this CH shit SUCKS. And by the way we lost all 4 games in the tourney, got beat bad too, 20-1, 17-2, and then 7-2 on sat. but we pulled it togather for sunday but still lost 7-5. We were just not ready for the NSA rules at 10u, but we will be soon, i lost alot of time to my clusters cycle in the winter and our winter training suffered some, as the score indictakes Go CRUSHERS!!!Coach bill

Title: Re: remission over?? or solo hit?.
Post by Superdave on May 26th, 2008 at 8:58pm
Hey Coach,

The baby woodrose seeds are were I started. They seemed to work real good, very potent compared to RC seeds. Better be prepared to spend some time and patients cleaning the damned things. Would probably be a job better suited for a jeweler.  >:(

HBWS also seemed to give my stomach a real work over and caused me scores of anxiety. Now I have RC seeds they are a lot easier to deal with in all aspects and doing 100 is no problem but I don’t think they work as well as HBWS.


Superdave

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