Join the Cluster Headache Avoison Society: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Just another way to connect with fellow clusterheads.

Thanks, I just joined.

I've joined, but what does Avoison mean?

 If I was stupid enough to join something like Facebook. I would buy a Mac or a Microsoft machine and become a real luser. Oh never mind, you already did. Sorry for your luck.
   Better luck next time suckers. Never join a social networking system that doesn't allow you an opt out. What a bunch of maroons.
[smiley=smokin.gif]

Linda_Howell wrote on Oct 12^th, 2008 at 10:04pm:

I can't believe someone who would use face-book could even spell cluster headaches.

Bluster headaches
Bastard headaches
Substandard headaches....

guess I can't speel....

Kirk wrote on Oct 12^th, 2008 at 9:58pm:

What a bunch of maroons. [smiley=smokin.gif]

Personally, I like colors.

There are two other groups of note to join if you facebook as well: CLUSTERHEADS, & Doctors For Cluster Headache Sufferers.

The first thing I noticed about this group is that Ali is a member, but I did join. I welcome any contact from other clusterheads.

well sheeut,   this hear site shur has a LOT of morronic, cain't-spell-fer-sheeut luzers on hear cuz i shur see a LOT ov em on faycbuk.
:o

Joined all the groups......feel free to add if you want

I joined. However there is nothing out there as of yet to bring the information, education, and wisdom this website has brought to sooo many folks out there. This is and will continue to be the place I get my support and research from. I joined and sent a bunch of folks here  :P

Thanks but no thanks.

Sorry...LOL  I was having a very bad day and was being facetious.  I deleted it.  ;)

Nice, but that is a small number compared to the folks who pass through these halls.

I haven't seen it because I don't have a lot of time to spend on Facebook, but I assume that it would represent an opportunity to tell folks about the one place in the world that holds the most valid information about CH's - right here.

I see it as counterproductive to try and start a whole new internet place about CH's with this place in full swing.

Just my not so humble opinion.......

Marc

Marc wrote on Apr 11^th, 2010 at 6:07pm:

Nice, but that is a small number compared to the folks who pass through these halls. I haven't seen it because I don't have a lot of time to spend on Facebook, but I assume that it would represent an opportunity to tell folks about the one place in the world that holds the most valid information about CH's - right here. I see it as counterproductive to try and start a whole new internet place about CH's with this place in full swing. Just my not so humble opinion....... Marc

For those who share time on Facebook with friends, family, hobbies of interest, etc Facebook is awesome. 

I do agree with you Marc, that CH.com rules as the #1 source for CH info and support.  That particular group "Cluster headaches" has links to this site and OUCH-US and OUCH-UK on the main page "wall".  Also, there are daily postings referring people to this website CH.com  ;)

Fair enough.

I probably spoke out of turn because I haven't seen that Facebook page. 

I thought that Myspace (when it was new), then Facebook (when it was new), then Twitter (when it was new) were pretty cool until I realized how much time I was investing. Those are hours I will never get back. NO reflection on you - I'm the weird one! 

Now I pick up the phone to call or write a note to those that are important to me. Different strokes for different folks.

CH.com is the only site that I can make time for these days and that gets tough sometimes. There is SO much to see, read and do, but so little time to pursue it!

Marc

Marc wrote on Apr 11^th, 2010 at 9:25pm:

There is SO much to see, read and do, but so little time to pursue it!

Feeling a bit mortal, are we? ;)

Yeah, I suppose that I am. There is wisdom in them-there words  :)

My new business is just less than a year old (what kind of idiot starts a new business under these economic conditions!??) but our performance is just plain blowing my mind.

I think (hope?) it will continue this exponential growth, but that requires some very serious time involvement on my part.

The economy in general is soft, so I have choices in deciding how to proceed:
- Bitch and moan about inequities on the way to pick up my unemployment check.

- Cut back my personal budget even more and try to make do. (Hey, who really needs toilet paper..)

- Work my ass off to earn my way out.

From my perspective, there is only one choice in that list........ "Spare time" is something other folks have right now.

Marc

just joined

Already joined   ;)

The point is joining a facebook related cluster headache page helps get us exposure, and most of them link back to here or other important websites anyways. I've joined all the big ones on facebook. I even started my own: Cluster headaches exposed      START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

facebook is the devil!! :D

wow whats all this talk about joining facebook ..lol ...at the end of the day if it helps me then il join anything anywhere ......its about your pain is it not ...sorry but i see it as a poinless thing ..like face book is the devil or something ...in my eyes theres 1 devil it comes once a year and overstays its welcome

Liked the ouch page
buhrly

Can you link to the OUCH facebook page? I couldn't find it.