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Cluster Headache Help and Support >> Cluster Headache Specific >> I'm totally miserable.....
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Message started by BarbaraD on Jun 17th, 2008 at 2:58pm

Title: I'm totally miserable.....
Post by BarbaraD on Jun 17th, 2008 at 2:58pm
I'm hitting a high cycle and am totally miserable. Am getting hit back to back. Just when I get rid of one damn HA another one hits. (Ok, I'm venting!!!!). Right now I'm between hits and am exhausted. The SOB woke me up about 5 a.m and we've been dancing all day... UGHHHHH!!!!

Still say it's the barometer... Today it's overcast and trying to rain. I think the barometer is dropping. Whatever the damn thing is doing it's got the beast all rived up and he's having a blast with my head.

For those of you who are newbies and don't know me, I'm usually a really nice person, but when I'm getting hit like this I'm a total bitch... Today is Bitch day at the farm. Even the dogs are staying out of my way....  Where are the coyotes when I need to KILL something???  ;)

Ok, now I feel better. Think I'll go get back on the O2 and calm down. After all it's only a headache - Right? :P

Hugs BD

Title: Re: I'm totally miserable.....
Post by Grandma_Sweet_Boy on Jun 17th, 2008 at 3:18pm
Hang in there girl!  You know you can kick a$$ and take names.

Hugs
Carol

Title: Re: I'm totally miserable.....
Post by debOUCH on Jun 17th, 2008 at 3:27pm
oh BD, i KNOW u r not a bitch even tho i am fairly new!!!  Bitch all u want, and then bitch some more.....................i am sending lotsa PF vibes, strength, and  [smiley=hug.gif] [smiley=hug.gif] ur way...................
deb

Title: Re: I'm totally miserable.....
Post by thebbz on Jun 17th, 2008 at 3:44pm
Hang in there Barbara. Kick some demon butt for me. It gets to us all after so long.
Now get some bullets, hope the coyote huntin improves. :D
thebb

Title: Re: I'm totally miserable.....
Post by nani on Jun 17th, 2008 at 3:56pm
:(    [smiley=hug.gif]

Barb, I'm just curious... have you tried taurine supplements or kudzu? I had a bad high cycle last fall, and I also had a neuralgia issue that was triggering clusters. I think the taurine helped a bit, and would have helped more had I not had the other issue.

Hang in there.

hugs, nani

Title: Re: I'm totally miserable.....
Post by newslang on Jun 17th, 2008 at 4:13pm
Aw.  I hope this passes quickly for you.  Hang in there.  

Title: Re: I'm totally miserable.....
Post by Paige_H. on Jun 17th, 2008 at 4:21pm
I think there is something to that barometer!!!  

Title: Re: I'm totally miserable.....
Post by Lizzie2 on Jun 17th, 2008 at 4:50pm
Hugzzzzzzz {{{{{{{{{Barb}}}}}}}}}}

I hear ya on the barometer - I went to my neurologist at the headache center this morning and explained that the only headaches the stimulator isn't helping with are the ones triggered by the weather, and they become the monsters from hell....

I really wish I could take some of them away to give ya a little break!  I know and you know that you'll get through it, but it sucks just getting through and wondering when the next one's gonna come, especially when they come right on top of each other.

Hang in there!!  Hopefully it'll get better soon!

Hugz,
Carrie :)

Title: Re: I'm totally miserable.....
Post by kevmd on Jun 17th, 2008 at 5:02pm
You know you can handle this but we are here for you.  Now go scare away the beast instead of the dogs!!!!

Title: Re: I'm totally miserable.....
Post by BarbaraD on Jun 17th, 2008 at 5:40pm
Thanks Nani -- I have taken some taurine, Red Bull, O2, ergotomine, naproxin (for old arthur - he acts ups too with the weather this way :) ). I'm punchy from meds....

Got one of Caleb's "play" guns out an started shooting at the politicians on TV. Made me feel a little better and didn't scare the dogs too bad -- don't think they like any of them either.  ::)

anyhow, thanks for the vibes -- this too shall pass and I'll be back to my usual grouchy self, but right now I'm just on a pity party...

Hugs BD

Title: Re: I'm totally miserable.....
Post by mezza on Jun 17th, 2008 at 10:40pm
vent away-  its what the board is for!   wishing you pf moments and hours ahead!

kelly

Title: Re: I'm totally miserable.....
Post by tuck on Jun 17th, 2008 at 10:52pm
Keep up the fight barbara, you know that everyone here understands!!!    Tuck

Title: Re: I'm totally miserable.....
Post by icculus on Jun 18th, 2008 at 1:40am
you hit my nail on the head...barometer...every june!
every major storm...bam!
...but i dont want to to still your thunder... this is your thread to bitch...

keep fighting, but if...when you find that place where the pressure holds steady, PLEASE lmk.

Title: Re: I'm totally miserable.....
Post by Linda_Howell on Jun 18th, 2008 at 2:16am
Pity party to your hearts content Barb.   We've been dancing for so many years we've run holes in all our shoes.

   Hang tough just like  you are.  TOUGH.

Title: Re: I'm totally miserable.....
Post by Cathi_Pierce on Jun 18th, 2008 at 2:27am
OMG!  Barb! The visual I have of you, in front of the TV, shooting a t
toy pistol at them thar varmint Politicians.....it's enough to cure what ails you!
Honey, go right ahead and bitch............and remember, this, too, shall pass!
Now, hang close to the 02, be good to you, and go back to  shooting those politicians!!
I'd take a day, gladly for you, send the beast on over...........
PF wishes,
Cathi

Title: Re: I'm totally miserable.....
Post by sandie99 on Jun 18th, 2008 at 5:20am
Venting allowed! Days like that are difficult... [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] Hopefully it gest easier very, very soon.

PF wishes your way,
Sanna

Title: Re: I'm totally miserable.....
Post by ClusterChuck on Jun 18th, 2008 at 6:50am

BarbaraD wrote on Jun 17th, 2008 at 2:58pm:
For those of you who are newbies and don't know me, I'm usually a really nice person,


I guess this is where I need to listen to my dear departed mother's advice ... "If you can't say something NICE, don't say anything at all ... "

:-X   :-X   :-X   :-X   :-X  

;)   :-*

Title: Re: I'm totally miserable.....
Post by ClusterChuck on Jun 18th, 2008 at 7:01am
Barb,  

As you know, with the close relationship that the beast and I have, I have been where you are, more than once!  You are stronger than I am, and are handling it better than I do.  When I am in one of those days, I CAN'T get on line NOR interact with ANYONE!  Rather than being my normal charming, polite, and sweet self, I am a total effin A hole on those days.  I retreat into a shell, and wait till I am more sociable before interacting with anyone.

;) Bless your heart, but being the crotchety old broad that you are,  :P and having dealt with the beast for as long as you have, you KNOW that this, too, shall pass.

Hang in there, Hun, we are here to take up the slack while you do battle.  We all know that you WILL win, but we are here to back you up, while you need us, just as you always are for us.

And, BTW, the barometer is a major trigger for me too.

Chuck

Title: Re: I'm totally miserable.....
Post by AussieBrian on Jun 18th, 2008 at 9:13am
Barometers are evil.  Evil!  EVIL!  EVIL!!!

They are the dark and dastardly dealings of the beast herself and must be cast out at all costs!  Brethren, I beseech thee, rid yourselves of these crimes against CHumanity.

Banish them to the nether regions never to again see the light of our day, and may we dance in joy as the smoke rises skywards as every such devilish device meets its just end.

Our DJ, who art in ch.com, hallowed be thy name and may that 'B' word be added to NetNanny never to appear here again.  

For ever and ever,

Ahh, PFDN.

Title: Re: I'm totally miserable.....
Post by BarbaraD on Jun 18th, 2008 at 9:28am
Am doing some better today -- just worn out. Didn't sleep much last night - Mr. Demon decided to stick around during the night (melatonin didn't work). Finally got some sleep about 4 this morning - not much but a little.

The barometer settled down (for now, but this is Texas - it could change without notice).

Doubled my topamax dose ($$$$$) and will keep it up until this cycle breaks -- that usually works pretty well, but takes a little time. I was about ready to call my neuro yesterday for DHE - hope I don't have to go to that stuff (did last year and it's awful). I'm usually good for the first day on it and then I'm in bed until I finish the "pack" (10 shots at least).

Anyhow, thanks for all the vibes. I'm hanging in there

Chuck, when I'm like this I have to find something to concentrate on -- TV, computer -- just something to get my mind off my head (yeah right), but it does help some. I even write hate mail to my enemies and don't use spell check. ;)  (Don't mail them!)

Hugs BD

Title: Re: I'm totally miserable.....
Post by DennisM1045 on Jun 18th, 2008 at 12:27pm
I'm glad to see things have lightened a bit today.  You go ahead and vent girl.  We've all been there.

((((HUGS))))

-Dennis-

Title: Re: I'm totally miserable.....
Post by ajarmstrong on Jun 19th, 2008 at 12:17am
Me too! On top of the CH I've got some kind of bug the kids drug in.  Now I have a cough and runny nose on top of the pain.  NICE!!!

Title: Re: I'm totally miserable.....
Post by maalstroom on Jun 19th, 2008 at 12:55am
Put on your sh*tkickers and kick some sh*t, Barbara, you know you are stronger than that lowlife son of hell. We all have cast it out while remaining alive to see another day. I am wishing you painfree days for a long long time from right across the Atlantic.
Stay tough.

BTW, we understand the aggression you feel towards the @#^%*, believe you me!  >:(

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