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Cluster Headache Help and Support >> Cluster Headache Specific >> New Neurologist plan of attack
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Message started by Mattcentralnewyork on Jul 1st, 2008 at 7:12pm

Title: New Neurologist plan of attack
Post by Mattcentralnewyork on Jul 1st, 2008 at 7:12pm
All,

Since you seem to be the only people besides my family who understands what I'm going through, I wanted to tell you what a new Neuro said regarding treatment.  Please reply with any comments:

Melatonin 9-12 mg's at night
Depakote er 500 mg..2 at night
Frova  two at night.

Also, he advised me that I can't do workouts with heavy lifting.
Any comments on this plan would be appreciated.

Matt

Title: Re: New Eurologist plan of attack
Post by mezza on Jul 1st, 2008 at 8:24pm
I can't remember the dosages of Frova  i took in my last cycle - but it was a sample pack and only took 1pill  per day mid am and pf time would last till next mid am.   Got me a day of no HA each pill.  My neuro said I could take up to 2 frova within a 24 hr period but i never needed more than 1 per day.  He gave me an 8 day sample pack when i started verapamil - that combo gave me no real ha above a 2 or 3 if at all , even when frova ran out and just taking Verap  until my cycle ended.


Never took depakote but have seen many other posters taking it and reporting success.  Others have reported melatonin working great for them to avoid the night time hits-  i tried it a couple of nights in high cycle and didn't give it too much of chance before i stopped trying.  

Sounds like you have a pretty informed neuro!

kelly

Title: Re: New Eurologist plan of attack
Post by Mattcentralnewyork on Jul 1st, 2008 at 8:36pm

Thanks for your reply.  Much appreciated!

Matt

Title: Re: New Neurologist plan of attack
Post by BarbaraD on Jul 2nd, 2008 at 6:08am
If it were me I'd INSIST on O2. Meds are fine, but the O2 is a great standby and most of us here swear by it.

Hugs BD

Title: Re: New Neurologist plan of attack
Post by thebbz on Jul 2nd, 2008 at 12:45pm
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Get the 02
Never MIX Triptans. If your taking Frova and have any other  triptans. Wait 24 hours before taking any triptans other than Frova.
all the best
thebb

Title: Re: New Neurologist plan of attack
Post by johnny_with_an_h on Jul 5th, 2008 at 1:42am
be sure to give anything you try a few days to take effect. i also recommend keeping a record of what you've tried and what works.


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