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Cluster Headache Help and Support >> Getting to Know Ya >> Im Back...And so are "they"
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Message started by Jeff_M on Jul 7th, 2008 at 5:12pm

Title: Im Back...And so are "they"
Post by Jeff_M on Jul 7th, 2008 at 5:12pm
Hi Everyone,
My name is Jeff,and Im from Milwaukee. I was a reg here many moons ago. Around 2000-2001. Well Im back because my CH's are back. And they back with a vengence. No I didnt go 8 years without. I went 8 years of having them under control with Imitrex injections. But now my insurance has changed,and Im only allowed 3 boxes (6 doses) a month and i can burn thru that in less then 4 days with this cycle.

Im seeing alot of talk about RC seeds And HBWR Seeds and I was wondering were do you order them and how do you administer them?
Any help would be a life saver. I dont have to tell anyone how desperate I am. I think you'll have been here at one point in time so...Thank You all.

Title: Re: Im Back...And so are "they"
Post by Brew on Jul 7th, 2008 at 5:20pm
Check clusterbusters.com

Title: Re: Im Back...And so are "they"
Post by maalstroom on Jul 7th, 2008 at 6:37pm
UNHOLY MACARONI, JUST 6 A MONTHS? WHAT THE HELL?
Sorry for yelling, but I was appaled at your insurance..... get another asap.
Luckily I am insured rather well (though I believe it is a cultural thing as well, hear a lot of schnot about US insurance) as I can have both injectables a day.
Maybe you should check out on the Clusterbuster method. Get a relief soon pal!

Hold tough, we're with ya.

Title: Re: Im Back...And so are "they"
Post by DennisM1045 on Jul 7th, 2008 at 7:27pm
Hi Jeff,

Welcome back home stranger  ;)  

As you can imagine, much has changed since you last logged on.  Probably the biggest is Oxygen.  That combined with Verapamil reduced my Imitrex consumption to just a handful of shots last cycle.

Here are some links to the latest guides on treatment.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

So, read up and ask away...

-Dennis-

Title: Re: Im Back...And so are "they"
Post by Kevin_M on Jul 7th, 2008 at 7:45pm

Jeff_M wrote on Jul 7th, 2008 at 5:12pm:
Well Im back because my CH's are back. And they back with a vengence.

I went 8 years of having them under control with Imitrex injections. But now my insurance has changed...


Commonly for me in the early years when episodic it was relief enough to find something that stopped a hit, Imitrex and to just get through a cycle.  Later it wasn't enough, having to feel them ramping and the accompanying distress, but things can change, to chronic for me, caught in the maelstrom of not enough abortives; the possibility of prevention looked like a better idea, but a few year search.  Necessity the mother of invention.  A variable dose of cheaply prescribed verapamil and oxygen was again was a complacent plateau of relief for managable terms, much better.  
 The bend toward seeds could be a beneficial step.  




Quote:
...Oxygen.  That combined with Verapamil reduced my Imitrex consumption to just a handful of shots...


Was writing while you posted, Dennis.  Basically same message.  ;)


and someday things could change again.


Title: Re: Im Back...And so are "they"
Post by kevmd on Jul 7th, 2008 at 10:46pm
they came back because you left us.  Nah just kidding.  :D There are many more options for you that are available.  Don't despair.  just read up.  There is a nice suggestion for you posted by others above

Title: Re: Im Back...And so are "they"
Post by Jeff_M on Jul 8th, 2008 at 11:35am
Thank You everyone....Im reading and reading,then Im going to order mine. Again,Thank You for the quick and kind response.

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