New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> brand new & glad to have found you! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1215541295 Message started by jetset363 on Jul 8th, 2008 at 2:21pm |
Title: brand new & glad to have found you! Post by jetset363 on Jul 8th, 2008 at 2:21pm
where to begin~I was diagnosed with migraines 4 years ago, but that was only after a year of mis-diagnosing and constant pain. Before they would give me any meds I unfortuantely over-medicated myself with OTC pills and did some damage to my liver and kidneys, thanks doc! After being a guine (can't spell) pig they finally put me on Innopran or Inderal and Naproxen. Also sent me to a neuro who was a quack, but the only one in town, who wanted me to learn relaxation, you tell anyone with a headache that bad to learn how to breath and sit quietly! Those meds worked for a couple of years and I took myself off of the meds and was pain free for about a year, and then bam, this February it hit me like a semi. Went back to the dr. they put me back on the 2 meds, which didn't work, so finally after 5 months of intense pain everyday, I went to my mother's dr. who said right off the bat, your not suffering from migraines, you have chronic cluster headaches, and when I read up on them, it is me all the way. She put me on a vitamin regimen, which I think works, and anti-anxiety, from the years of pain, and an anti-depressant, also from the years of pain, and fiornal or fiorcet. She gave me one month of that, and like a miracle, after maybe 7 days of taking it, my pain was gone, amazing and a miracle! She told me I could take up to 6 a day but was only taking 3 a day. Went back to her for a foolow up today and she will not give me anymore, says their addicting and that I now must try a head ache clinic, but in the meantime to continue to take my vitamins and to be prepared because the next 2 weeks will be heck for me! Any thoughts or suggestions would be so appreciated, I'm at my wits end, and ready to lose both my jobs, which I need because I have no health insurance! Please help me.......
|
Title: Re: brand new & glad to have found you! Post by gizmo on Jul 8th, 2008 at 2:49pm
Until you found a knowledgeable doc try energy drinks at the first sign of an attack.
Ice and cold or hot showers work for some too. |
Title: Re: brand new & glad to have found you! Post by thebbz on Jul 8th, 2008 at 4:38pm
Do check out the links Bob give you. Try 02 if you can. The energy drink trick and work for you, use it in the daytime save the other for night time. Melatonin can work for the night time hits as well. Its over the counter and can help.
all the best and dont get discouraged thebb |
Title: Re: brand new & glad to have found you! Post by Guiseppi on Jul 8th, 2008 at 7:43pm
At least they recognized CH, that's a start. But Bob is right, you need a somewhat...well okay a LOT more knowledgeable doc then what you have now. They gave me fiorinal 30 years ago, it did help a little but believe me, the long term effects are worse then the otc meds that have already messed you up. There are FAR better treatments out there if we can just get you to a knowledgeable doc.
As far as the supplements, what were they? Since getting put on a daily regimen of vitamin B-2 and Magnesium, I've had a substantial decrease in number and intensity of attacks. Can't swear that's what caused the relief but I'm still sticking with it. Good luck keep pluggingaway at finding a decent doc, it's so worth the effort. Guiseppi |
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |