New CH.com Forum - Print Page

New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> History of CH causing Neur. to ignore "new" sympt. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1216189955 Message started by Private Aye on Jul 16^th, 2008 at 2:32am

Title: History of CH causing Neur. to ignore "new" sympt.
Post by Private Aye on Jul 16^th, 2008 at 2:32am

I am a CH sufferer. My last series ran 89 daysI It's been 9 yrs since then. recently I noticed several sinus-like symptoms on the opposite side from past attacks but still all located on the same side. Droopy eye (ptsosis), eye edima, red eye and burning cranium. I went through a few dr.'s to rule out stroke, an MRI etc and end up back on familiar ground with a "new" Neurologist who reads my history and tells me....."You have chronic CH"!!!
I know this is no CH! There is no hot-white poker stabbing me in the eye! There is pain yes and a great big swollen droopy red thing where my baby blue eye once was, but not a chronic CH? Is it???? :-/

Title: Re: History of CH causing Neur. to ignore "new" sympt.
Post by George_J on Jul 16^th, 2008 at 2:43am

From what you're describing, I don't think so--but I'm no doctor.

Sounds like you definitely need a second opinion.

Best wishes,

George

Title: Re: History of CH causing Neur. to ignore "new" sympt.
Post by Bob_Johnson on Jul 16^th, 2008 at 10:08am

If I understand you, there are two separate questions here:

1. The experience/symptoms of an attack can, and often do, change over time. That you are having a different experience now does no preclude CH.

2. Chronic CH is defined by the time you have been having attacks without a break (essentially cycles no longer define your experience). Change in symptoms is not a part of the definition of "chronic".

Title: Re: History of CH causing Neur. to ignore "new" sympt.
Post by thebbz on Jul 16^th, 2008 at 11:12am

Get a new doc. Quick.
thebb :)

Title: Re: History of CH causing Neur. to ignore "new" sympt.
Post by Private Aye on Jul 16^th, 2008 at 1:11pm

I've got a new Neur. on Fri. Looking for some new way to approach new Dr. Here's the facts:
Symptoms start date- 5/5/08 non-stop as of today.
No acute (jabbing@*,!&% screaming eyeball so far) could this be an extra long "shadow" period? Any eposodic turned chronic out there? I am in agreement with you guys about def. of chronic being same as eposodic but w/o remitting for over a yr. but was'nt sure if maybe this was a 3 mo. "shadow"? ?
Thx for any feedback b/4 fri.

Title: Re: History of CH causing Neur. to ignore "new" sympt.
Post by thebbz on Jul 16^th, 2008 at 1:25pm

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE
You simply need to educate yourself. You are your own best advocate.
all the best
thebb

Title: Re: History of CH causing Neur. to ignore "new" sympt.
Post by Private Aye on Jul 16^th, 2008 at 5:45pm

Thanks for the new sites. I had heard about the mushroom therapy! Very informative site. The wrong doc is very frustrating and lonely. As I said in my opening post, I have had CH since I was 19 (I am 46) and what I can't seem to get across (so far) to 2 different docs is that what I am currently experiencing IS NO CLUSTER. However may be hypothalmus related.
My general ? to the group here is....."Has a CH sufferer experienced yrs. of relef only to get hemicrania continua or paroxsymal hemicranias? These are rare just like CH or rarer. THNX AGAIN
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE