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Cluster Headache Help and Support >> Cluster Headache Specific >> The doctor dance
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Message started by fiveofclubs on Jul 18th, 2008 at 12:39pm

Title: The doctor dance
Post by fiveofclubs on Jul 18th, 2008 at 12:39pm
Well I returned from the neurologist with no O2 prescription.  He said,  "I'm sure it's not clusters.  Let's get an MRI done, here's some migraine medicine samples.  Have a nice day."

Now, I admit the one symptom that have not developed yet is the multiple full blown ch's day after day for a period of time.  But I am getting them more and more frequently, several within a 2 week period with shadows in between.  Also, my father didn't get full blown cycles until his ealry 40's (I'm 37) and got them progressively more and more through his 30's (like me).  O2 worked for my father where everything else they tried up to it failed.

Why not give me a prescription for O2 and see if it works?  I can't track down the doctor my father went to, which would be nice.  I'm all for getting checked out and making sure it's not something else, but if O2 will make the pain of one episode stop, I want it.


Title: Re: The doctor dance
Post by fiveofclubs on Jul 18th, 2008 at 12:51pm
sorry if I posted this in the wrong spot...just checked Medications, treatments...and there are similar thread.

thanks everyone,

Title: Re: The doctor dance
Post by thebbz on Jul 18th, 2008 at 12:52pm
Welders 02.
No prescription needed.
Get a regulator and a mask and your set.
There are many threads here on how.
:)
Edit:spelling ::)

Title: Re: The doctor dance
Post by Bob_Johnson on Jul 18th, 2008 at 1:04pm
From the doc's perspective: we can take a med which aborts the headache and yet it may not be CH--could be a more threatening disorders which has CH symptoms. SO, I suspect he wants to establish the correct diagnosis before aggressively treating so that neither of you are mislead.

And that they have not fully developed into classic CH is not uncommon and so somewhat clouds the Dx picture.

Title: Re: The doctor dance
Post by fiveofclubs on Jul 18th, 2008 at 1:45pm
I agree, continuing to look to get a definitive diagnoses is a good thing.  I asked him if O2 was a good for treatment for anything other than clusters.  He said, no, but it could have a placebo effect.  

So, my fingers are crossed, but I'm guessing there are at least a few more attacks in my future.

thanks for the responses

Title: Re: The doctor dance
Post by sandie99 on Jul 19th, 2008 at 4:13am
Wishing you PF days & wise, wise CH-understanding docs,

Sanna

Title: Re: The doctor dance
Post by ClusterChuck on Jul 19th, 2008 at 5:09am
Get a new doctor!  This one is an idiot!

It is good that he is getting the tests done, but that is where his helpfulness stops!

He will NOT give you oxygen, which is virtually side effect free, yet he DOSE give you migraine meds, that I am SURE have PLENTY of possible side effects?  EFFIN IDIOT!!!

Even if you do NOT have clusters, the oxygen will NOT have any bad side effects!  As a matter of fact, it might help in the proper diagnosis, as most other types of headaches do NOT respond to oxygen therapy!  So if you DO get quick results from the oxygen, there is another indicator that it IS clusters!

GAWD!!!  Some of these doctors really PISS ME OFF!!

(OK, Chuckiepoo, take a DEEP breath ... now let it out ... breath in ... breath out ... breath in ... breath out .... Now, aren't you feeling better now?  More calm and quiet?)

OK, I'm fine now ...

Chuck

Title: Re: The doctor dance
Post by BarbaraD on Jul 19th, 2008 at 10:36am
I don't believe I"m doing this BUT I AGREE WITH CHUCK!!!!  

Hugs BD

Title: Re: The doctor dance
Post by jon019 on Jul 19th, 2008 at 12:12pm

BarbaraD wrote on Jul 19th, 2008 at 10:36am:
I AGREE WITH CHUCK!!!!  

Hugs BD



Ummm...me EFFIN TOO!!!!!

Title: Re: The doctor dance
Post by GrandPotentate on Jul 21st, 2008 at 11:33pm
Yeah, what Chuck said.  I was misdiagnosed and doped up on a bunch of migraines stuff for way too long.

He is right in taking all the steps to make sure what you do have and don't have.  Let the doc know that you need some relief URGENTLY!

also...
"I asked him if O2 was a good for treatment for anything other than clusters.  He said, no..."
Bullshit.  O2 is useful for some other headaches and hangovers.  So, remember that this is not necessarily a certain indication that these are CH.

Do the O2 thing right.  This site and ouch has details.  Too much can be a bad thing, but the 10-15 minute occasional thing is a long way from too much.

Good luck on finding a better doc!

Jon

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