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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Worked extremely well for me - Chronic sufferer http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1216711283 Message started by demon_tone on Jul 22nd, 2008 at 3:21am |
Title: Worked extremely well for me - Chronic sufferer Post by demon_tone on Jul 22nd, 2008 at 3:21am
I suffered from clusters since I was around 20 (now 42), all the usual symptoms, waking in the middle of the night in agony, crippling attacks 2 - 5 times a day. I had been given all kinds of treatments, anti - inflammatory such as feldene, maxi paracetamol/Ibofren etc, and some unpronounceable one that made me walk sideways like a crab, As many in here,, I also tried home remedies,, I finally found a doctor that put me onto Sandomigraine and after taking this product for just 3 days the headaches went from usual blinding pain runny eyes and nose etc :'( to what felt like a mild burning sensation. I continued to take them for another 3 weeks and went attack free for approximately 2 years. now I know some may say that’s just a remission period,, however I never had a “remission “prior to that. Apparently you can take up to 9 tablets are day and on and ongoing basis, however I was taking one at bedtime (makes ya drowsy at first). After about 2 years the clusters returned to me and I’ve gotten straight back on the pills... and again was fixed within a week. Whenever I get the warning sign.. I start the pills now. I am in Australia so I don't know if this product is available in other countries or if it’s called the same thing, ask ya doc and Google it. I know this may sound like an ad for a pharmaceutical company, but I have suffered the pain for a long time and truly sympathise with those that continue to.. and hope that this will at least give some hope or a new avenue for you to try. I know some don’t like the word cured but after being able to function normally :o again after all those years that’s how I feel.
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Title: Re: Worked extremely well for me - Post by demon_tone on Jul 22nd, 2008 at 3:39am
Hi .. LOL i hate actully replying to my own comment however I have posted something similar pages ago and just now gotten to looking at the closed comments posted.
alot were related to how .. i might have migraines and not in fact CH (i just loved that) ...and some related to the research that states its useless. well i have posted this for those that may like something to try an a new avenue " Try" didn't see any comments on people that have tried it - just alot of knockers... Damn if it works for you how good would that be?,, and if it doesnt .. well ya no worse off... Knocking me for trying to help is pointless... and people wonder why i dont reply. |
Title: Re: Worked extremely well for me - Chronic sufferer Post by George_J on Jul 22nd, 2008 at 10:20am
I presume that we're talking about Sandomigran here. If so, the name that might be more widely recognized is pizotifen.
Best, George |
Title: Re: Worked extremely well for me - Chronic sufferer Post by demon_tone on Jul 22nd, 2008 at 10:24am |
Title: Re: Worked extremely well for me - Chronic sufferer Post by Gator on Jul 22nd, 2008 at 1:08pm
I have read mixed reports on Pizotifen. It appears to be effective for about 50% of those who use it. Like anything else, works for some - not for others. I'm glad it works for you.
Its effectiveness is all rather academic for those of us in the US as Pizotifen is not available here. |
Title: Re: Worked extremely well for me - Chronic sufferer Post by maalstroom on Jul 28th, 2008 at 2:41pm
Had Sandomigran in the nineties. Unfortunately it did nothing for me, though I had the max dose.
I was in the army at that time and was getting hit no matter what. The injectables were my only help back then. |
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