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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Started on O2,odd thing though... http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1216992019 Message started by Jeff_M on Jul 25th, 2008 at 9:20am |
Title: Started on O2,odd thing though... Post by Jeff_M on Jul 25th, 2008 at 9:20am
Ok, I got my O2 up and running and at 15lpm,it KILLS my CH's. However, I noticed that thru the day and night I was getting hit every 2 hours. It was like I was just "stalling" it. Like my CH was going to come no matter what.
I did notice that my depression kind of lifted yesterday. I mean I was able to kill em and had no side effects from meds and damn...That was good! But alas,I had to do 1/3 shot of trex at 2:30am. Trust me...for me thats good! A 1/3 shot for an entire 24 hour period is good...At least for me as I was very dependent on trex. So I guess I would like to ask,has anyone had that happen? When you started your O2,did it seem like they(CH) were just going to come no matter what? Also...If you were feeling depressed,did it boost your spirits? Because it sure as hell lifted mine! Just ask my wife..nudge nudge wink wink say no more say no more! |
Title: Re: Started on O2,odd thing though... Post by Bob_Johnson on Jul 25th, 2008 at 12:49pm
We have some strong supporters of O2 here but your experience has been reported in the medical literature but tends to go unnoticed.
But that some treatments do not work for particular individuals has long been recognized for ??? reasons. Always leaves us in th position to have to try something else. Also true that meds which have worked sometimes just stop being effective and we have to start searching again. Again, unknown reasons. -------- Neurol Sci. 2004 Oct;25 Suppl 3:S119-22. Cluster headache: symptomatic treatment. Torelli P, Manzoni GC. Headache Centre, Section of Neurology, Department of Neuroscience, University of Parma, Via Gramsci 14, I-43100 Parma, Italy. paolatorelli@libero.it The clinical management of cluster headache (CH) attacks requires a symptomatic treatment that is rapidly effective in resolving or significantly reducing symptoms. First-choice drugs for the symptomatic treatment of CH are subcutaneous sumatriptan at a dose of 6 mg and 100% oxygen inhalation at a rate of 7 l/min for no more than 15 min. Sumatriptan acts by suppressing pain and the accompanying autonomic phenomena, with no substantial differences in its mechanism of action between episodic and chronic CH. The drug can be used for prolonged periods without loss of efficacy or safety and its side-effects are generally mild or moderate. OXYGEN INHALATION HAS A NUMBER OF ADVANTAGES OVER DRUG THERAPY: IT IS FREE FROM SIDE-EFFECTS, HAS NO CONTRAINDICATIONS--UNLIKE SUMATRIPTAN, IT CAN BE USED IN PATIENTS WITH CARDIAC, CEREBRAL OR PERIPHERAL VASCULAR DISEASE AND WITH KIDNEY, LIVER OR LUNG DISEASE--ACTS RAPIDLY AND CAN BE ADMINISTERED SEVERAL TIMES A DAY. ITS DISADVANTAGES ARE THAT IT IS SCARCELY PRACTICAL AND MAY INDUCE A "REBOUND EFFECT". Sumatriptan nasal spray, zolmitriptan and dihydroergotamine nasal spray are scarcely effective. After the introduction of sumatriptan, ergotamine tartrate has been relegated to a secondary role in the symptomatic treatment of CH. Among other non-drug and topical drug treatment options, hyperbaric oxygen therapy and the intranasal application of 10% cocaine hydrochloride and 10% lidocaine in the sphenopalatine fossa have also proved effective. PMID: 15549518 |
Title: Re: Started on O2,odd thing though... Post by Jeff_M on Jul 25th, 2008 at 1:24pm
No...the O2 absolutly stops em dead! Maybe I should have been more clear on that. O2 does stop them...However,last night was odd. After using the O2,it seemed like it kept wanting to come back almost every 2 hours. This morning,so far so good. I just was wondering if anyone has had that happen? Also...If you were depressed,did it kind of pick up your spirits?
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Title: Re: Started on O2,odd thing though... Post by Bob_Johnson on Jul 25th, 2008 at 3:45pm
Rebound headaches. "Rebound Headaches--A Review", Au. John S. Warner, M.D., in HEADACHE QUARTERLY, 10:3(1999). (There is some confusion on the board about the meaning of "rebound". There appears to be an emerging consensus in the medical literature to define "rebound" as a headache which is caused by the overuse of any medication used to abort a headache or relieve pain. "Recurrence" [of a headache] is being used to refer to the redevelopment of an attack when its "normal" duration is longer than the useful life of the medication which has been taken. That is, the medication effectiveness is reducing before the headache has come to an end; the pain redevelops.)
========================= This is one of those issues where limitations on language and definitions creates mischief! In the end, does it make much difference how we describe your experience? IF any med/treatment does not give enough relief for you, then it's an opportunity to find someone else which does deliver for you. Other peoples experience is of interest but does not alter your personal experience, No? |
Title: Re: Started on O2,odd thing though... Post by Jeff_M on Jul 25th, 2008 at 5:09pm
Thank You Bob,however they're not rebound HA's right now. Trust me on that. I have a very small amount of trex that my insurance comp will pay for in a months time. So I use that VERY little but I never asked for anything else hence my "dependence" on it. It was ALL I knew that worked. I also have bottles of pain killers that my old doc prescibed for me that I wont even touch in fear of rebounds. And they just dont work we ALL know that. Rebounds?...No I wish it were that simple. I just had an odd thing happen since I started on O2,and was curious if anyone else has experienced the same. Again,Thank You for the input.
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Title: Re: Started on O2,odd thing though... Post by Bob P on Jul 25th, 2008 at 6:53pm
Jeff,
It's really pretty common. I always swallow a tab of cafergot before I start huffing the O2. The O2 stops the attack and the cafergot keeps it from comming back. |
Title: Re: Started on O2,odd thing though... Post by Balanchine on Jul 26th, 2008 at 10:11pm
Jeff, I'm fairly recent to both 02 and Imitrex, using the pill form of the latter. I haven't had your experience in the short time I've been using the magic green canister and am sorry to hear of your 'reattacks'.
Have you thought about a preventive? I had great success with Topamax recently but I know there are others that have helped many here. David |
Title: Re: Started on O2,odd thing though... Post by ClusterChuck on Jul 27th, 2008 at 12:18am
Jeff, I do not have an answer to your question about oxygen causing your more frequent hits. I have heard comments on both sides of this question.
All I know, is that I get hit a lot and oxygen is my savior. In regards to YOUR experience, though, from what I hear, so what if it does cause them? From what you are saying, it kills the hit, right away, AND (possibly most importantly) it seems to improve your depression. As we all know, trex, although a GREAT aborter, has MANY side effects. Oxygen has none of those. So, even though it MAY be causing more hits, it seems to be the best route for you! Oxygen is cheaper, safer, AND seems to help your depression. Case closed. Go with the oxygen! I hope it continues to lift your depression. Depression SUCKS! Good luck! Chuck |
Title: Re: Started on O2,odd thing though... Post by Balanchine on Jul 27th, 2008 at 1:10am
Batch is too cool.
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Title: Re: Started on O2,odd thing though... Post by Guiseppi on Jul 27th, 2008 at 10:56pm
I'm the same as Bob P I've always launched a cafergot when I started the 02. Otherwise mine would come back in les then 20 minutes. Someone recently posted they had the same problem, they shot an energy drink or a shot of strong coffee when they started the oxygen. I intend to try that the next cycle and see if i can pitch the cafergot.
Guiseppi And that Batch dude is a freaking 02 guru. ;) |
Title: Re: Started on O2,odd thing though... Post by Jeff_M on Jul 28th, 2008 at 10:38am
Thank You everyone for the replies and emails! Things have gotten way better since my posting of this. The O2 is going great! The "re-attacks" have stopped. Ive found the benifits of slamming a Red Bull along with the O2 as well....Things are getting better!
Thank You |
Title: Re: Started on O2,odd thing though... Post by kevmd on Jul 28th, 2008 at 10:56pm
This topic just came up very recently. It was a reattack vs rebound discussion. What you are saying is not uncommon. O2 works great but.... I, just like, you can fall into a category of it common back more frequently. Frustrating..........yes. But it is still a life saver. When it keeps coming back at night, sometimes I would just have to jab myself to get some significant sleep.
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