I thought I was out of cycle.  Recently I started getting shadows and lighter hits.  When i am in cycle, they are like clockwork and I get 6 a day (give or take).

Anyway, after being in cycle for 16+ months, I figured I was chronic and started to try and take less drugs per hit.

Anyway, I was out to dinner tonight when I started to feel a shadow and then nerve pain in my jaw ON THE OTHER SIDE.  Then I started to get a shadow in my normal side and nerve pain as well.  I am very confused.  

Anyway, the shadow is still here and the nerve pain is in both sides.

Anyone seen anything like this, or is it time to be committed to a mental institution (for this reason, not because I generally need it anyway).

Well I guess noone has any advice or thoughts.  Thanks anyway.

Sorry, didn't see this yesterday.

Yes, I get hits on both sides - you aren't crazy.  I've read that a number of others do also.

Charlotte

Sometimes after a cycle ( usually a couple of weeks) I'll have quite a bit of pain on the "wrong" side.

Charlotte wrote on Aug 12^th, 2008 at 3:08pm:

Sorry, didn't see this yesterday. Yes, I get hits on both sides - you aren't crazy.  I've read that a number of others do also. Charlotte

I hope I wasnt rude.  thanks for the reply.  I was feeling out of my mind and was hoping for some sanity last night.  A also had a kidney stone so I was just looking for some advice to ease my min d since my body was not happy.

Thanks.  

When it comes to the jaw both sides hurt for me at times. It just depends. My clusters have a mind of their own, just when I think I have it all figured out, they let me know I don't !

Only time that happened to me was when a migraine hit as well or the doc put me on Keppra or Topomax...
Hope your doing better.
all the best
thebb
Sorry for the late response. I'm a tard :P

I have experienced side-switching and bilateral attacks too. Not nice  :o

Apparently up to 14% of sufferers may experience side switching during a cluster bout, whereas 18% may have side shifts from one bout to the next*.

The tendency to develop CH on the opposite side is 200 times more likely than for an individual to develop the disease at all**.  Interestingly, not only does this indicate an increased vulnerability amongst existing sufferers but also suggests that a structure with anatomic connections over the midline is involved.

All the best with it

-Lee

* Sjaastad O, et al; Bilaterality of cluster headache: an hypothesis 1985.
** Bahra A, et al; Cluster Headache: a prospective clinical study with diagnostic implications 2002.

I am with thebzz
migraine at same time .

LeeS wrote on Aug 14^th, 2008 at 5:41am:

The tendency to develop CH on the opposite side is 200 times more likely than for an individual to develop the disease at all**.  Interestingly, not only does this indicate an increased vulnerability amongst existing sufferers but also suggests that a structure with anatomic connections over the midline is involved.

So interesting... the above almost suggests that each side is its own disease, as if bilateral sufferers have CH x 2, that you're not switching sides, but rather, you developed it on both sides independently.

ReeseC wrote on Aug 14^th, 2008 at 2:20pm:

LeeS wrote on Aug 14th, 2008 at 5:41am: The tendency to develop CH on the opposite side is 200 times more likely than for an individual to develop the disease at all**.  Interestingly, not only does this indicate an increased vulnerability amongst existing sufferers but also suggests that a structure with anatomic connections over the midline is involved. So interesting... the above almost suggests that each side is its own disease, as if bilateral sufferers have CH x 2, that you're not switching sides, but rather, you developed it on both sides independently.

In that case, I wuld be chronic on the right and episodic on the left.