My cycle began May 2nd.  Primary left side for the pain.  Two almost 3 months later it stops and swaps over to the right side...I'm on a steroid taper but they are busting back through...had a nice week of relief totally.  Has this particular routine ever happened for any of you before the beast finally took his claws out and you went into your normal remission period???  Normal remissions for me are between 2-3 years.  Let me know what's up...thanks for being there!   :o

sorry to hear your hurtin dude, I have been a lefty for over twenty years. NEVER have been hit on the right side, EVER. I am sure someone hear can offer you a bit of knowledge on the matter. The pred. always kills my cycle. Your situation sounds a bit unique, but, as others have said before me, "the only predictable thing about CH is,,, they are UNpredictable".  Good luck.    Tuck  

Like Tuck, i've only been one sided for 15 years.  Unfortunately I don't have the pred. success like him.  I have tried that, but when I went off, they came back and worse.  The good thing about your espisodic condition is that you're remission is relatively long, but that switch sided thing sounds scary.  That bad thing is you, like all of us suffer from this annoying beast and when it strikes, it's horrible.  Good luck and I hope you're PF soon.

The "switching" sides is not common, but it's not really "unusal" either (did that make sense?). We've had a lot of posts lately of this happening.

I'm chronic and have always been a lefty, but last year during a "high cycle" mine switched over to the right side. Weird. They switched back to the left and have been on the left ever since. Guess Mr. Demon just wanted to show me what he could do - I didn't even try to figure it out.

Hope you have a long remission.

Hugs BD

I have always been primarily right sided. But I have had occasional episodes that have been left sided. I also have had very occasional lefts in a right sided cycle.
Once, about 25 years ago, just as you, I had a 3 month right cycle followed immediately by a three month left cycle.
I stopped trying to make sense of it many years ago.

Mike

Right sided 30 years, have never gone left. Like Barbara said, not common but several have posted about switching sides. I'd still mention it to your doc and have all the usual checks. I've always worried about ignoring something wrong with me cuz I tend to lump all my maladies into the "related to CH" category!

As far as your "predictable" cycles going haywire....prior to turning 40 they were setting the atomic clock by the regularity of when my cycles started and stopped. I hit 40 and they started bouncing all over the place. Nowadays I just keep 8 E-tanks in my garage year round so I'm never caught unprepared.

Guiseppi

My last cycle mine switched to the right side for one of the final hits of the cycle (go figure--it had never happened before).  And yes I did have a normal remission.  Sometimes I think the switching sides can be a last ditch effort of the beast to override the body's efforts to normalize itself out (and go back into remission).  It's kind of like it is thinking "hmmm....let's try the other side".  If you have been one-sided for a long time, I don't think it will have much luck on the other side since it is at the end of your cycle.  good luck to you!!!

Guiseppi wrote on Aug 13^th, 2008 at 10:47am:

... I'd still mention it to your doc and have all the usual checks...

As good a tip as you'll get anywhere free for nothing, but the switcheroony is common for some of us and as scarey as all get-out.

I've been right-sided, left-sided, top-and-bottom sided, side-swiped, sliced, diced and pureed. Recently beat off a major port-side torpedo-attack to find the bombers coming in on my starboard bow only the following morning!

I wore 'em down and won again but (and you wouldn't read it in Rippley's) it switcheroonied again and starts coming up through the top of my hard palate, boiling the contents of my nostril, then doing its best to remove my eyeball through my ear.

Yet I've never regarded myself as "chronic", regardless the time involved.  Every invasion is a seperate war to be fought on its own merit.

Recognise your enemy, respect your enemy, and as quickly as it changes tactics so must you.

It's in your mind to do it.

The only time the demon switched sides on me, it was prompted by  some "new",drug therapy. Keppra I think. I dont see that neuro any more.
thebb

Guiseppi wrote on Aug 13^th, 2008 at 10:47am:

Right sided 30 years, have never gone left. Like Barbara said, not common but several have posted about switching sides. I'd still mention it to your doc and have all the usual checks. I've always worried about ignoring something wrong with me cuz I tend to lump all my maladies into the "related to CH" category! As far as your "predictable" cycles going haywire....prior to turning 40 they were setting the atomic clock by the regularity of when my cycles started and stopped. I hit 40 and they started bouncing all over the place. Nowadays I just keep 8 E-tanks in my garage year round so I'm never caught unprepared. Guiseppi

I could have written THAT, with just a couple minor changes. 26 yrs for me, atomic clock went kablooie around 47, I keep 4 tanks at ALL times.

Jon

I am lefty side ch'er, but with that being said occasionly mine has switched sides. pretty much much i figuare that the abnormal is the normal.

I despise episodic sufferers some times because I’m jealous of what it was like to have HA PF time as a 6 year chronic, but I know that pain is pain whether you have it all the time or not.

It took some time for me to be able to sympathize with the episodic announcement of a fellow sufferers cycle starting at a bad time in their life when I am always having a hard time with the crap myself.

I’m thinking out loud again so PF to all, Rolo….

By the way, I keep 5 M and 3 E tanks in my stock and always a left sider. ;)