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Cluster Headache Help and Support >> Getting to Know Ya >> Newbie
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Message started by mirne on Aug 20th, 2008 at 4:26pm

Title: Newbie
Post by mirne on Aug 20th, 2008 at 4:26pm
Hi Guys ,


After 4 years of extreme pain I have finally found a doctor who takes my pain seriously and I cant believe it took me so long to find your site !After feeling so alone I cant believe there are so many people out there who understand this hell .

Title: Re: Newbie
Post by maalstroom on Aug 20th, 2008 at 4:33pm
Hi Mirne, wanna wish you welcome.

Could you please elaborate a bit on your situation? Which medication? Do you have Oxygen? As many more here will tell you, it's a first choice abortative for most.

Personally, I've been a clusterhead since my final year in high school, so that's about 15 years for me. CH still after all those years, scares the hell outta me, and most others here will also tell you you'll never get used to it. BUT, there are many ways to improve your life. The Red Bull thing, drink it at the first sign of a hit and it will either reduce or even kill a hit. Great alternative. You can always take the injectables afterwards if the drink won't work.

Please pass us your regimen, maybe we can help you further.

Painfree time your way, Pascal.

Title: Re: Newbie
Post by Jean on Aug 20th, 2008 at 4:36pm
Hi Mirne,

Just wanted to say welcome to the family!  Sorry you are suffering.  Lets us know how we can help!

Jeannie

Title: Re: Newbie
Post by Guiseppi on Aug 20th, 2008 at 4:58pm
What Pacal said!!!

Welcome to the board, glad you found us, REALLY glad you found a doc that takes you seriously. Many people go through years and years of searching before they get lucky. That being said. What is your regimen? What do you take as a preventative medication, what do you use for an abortive, when the headaches hit? The power of this board is in the combined sharing of experiences. And another really strong vote for oxygen here!

Guiseppi

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