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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> The Eye of the Storm
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Message started by Jasmyn on Sep 12th, 2008 at 9:28pm

Title: The Eye of the Storm
Post by Jasmyn on Sep 12th, 2008 at 9:28pm


Nearing the end of 2006, The Beast howled into a brutal attack.  

If Kip was still walking with us, I’m sure he would have considered amending the Kip Scale or understood, at least, my colorful version in my foreign language.  It was an electric storm that required Greek mythical warriors to survive its force.  Unfortunately it is not like you place an ad in the local newspaper and they, the godly warriors, fall over their feet to stand in your stead facing The Demon.  These mythical type creatures, although we do whish that they would come back and exist in our realm, are as scarce as chicken teeth.  

Armed with the spirit of nature, the seed of her womb and the support of the Pink Floyd virtual cavalry, I fought like a demon while The Beast rumbled through my Mozambican jungle.
The Beast knocked me down ten-love and I thought I could not get back up but my virtual cavalry kept on bugging me to get the bloody hell up and not to be such a girl’s blouse.
So … I turned to crime.

Now here I want you to understand that this can happen to the best of us in desperate times because all-in-all I am not just another brick in the wall.  
So, without going into too much detail that can be incriminating evidence in a court of some laws, a certain hospital, in a certain country, misplaced an enormous white cylinder that I became very attached to by a thin pipe and a wonderful mask, donated by a CH Buddy that likes his curry.

But… the more ammo I brought into the mix, the more relentless The Beast grew and I felt like I couldn’t fight anymore, I felt tired, drained, bruised and at the end of my tether… until I remembered that all-in-all, I’m not just another brick in a wall and that crime can still pay.

To be continued….

Title: Re: The Eye of the Storm
Post by Jasmyn on Sep 12th, 2008 at 9:28pm
The black market business prospers in third world countries, a blessing for me in disguise and I didn’t even have to wear a hood in the hood.
I sang songs with John Lennon and the Beatles about yellow submarines and traveled to distant shores on colorful wings but The Beast didn’t want to give up its hold.

It was a lonely time, in a haze of anguish and a grinding of teeth but my virtual cavalry never left my side.  

Here I want to intercede with some good advice from experience:
Whatever route of medication you follow or try be sure to get enough information and make sure you have your support group involved.
If you ever decide to go this path, don’t do this alone, you’ll actually need a physical person there to help you through.

One very dark night, while the moon was full and the cloying humid air left you feeling like a Dali clock, I gave up the fight.
With a bottle of vodka and my last strips of black market booty, my life ended…


To be continued….

Title: Re: The Eye of the Storm
Post by Jasmyn on Sep 12th, 2008 at 9:47pm
Never do I want to go through those gates of hell again but through that fire, I came back purged, scarred and in a terrible mental state.
By the way those who know me will testify that my mental state was always terribly… mental.

Something in the wiring of my nervous system changed and it took me months to recover from my death.

Thus far I have not had one CH attack… the eye of the storm?  But I have hope that The Beast died with me that night.

Everyone, as we all know, experience therapies and medications different.  I am not advocating a certain treatment.  All to their own in this fight.

This is my story, this is my new life.

Cheers
Jazz ;)

Title: Re: The Eye of the Storm
Post by PollyPocket on Sep 12th, 2008 at 9:52pm
Welcome back, and welcome home Jasmyn!  

Jen

Title: Re: The Eye of the Storm
Post by Brew on Sep 12th, 2008 at 9:56pm
Welcome back, Jasmyn.

Maybe someday I'll understand what this means.

Title: Re: The Eye of the Storm
Post by Linda_Howell on Sep 12th, 2008 at 11:53pm
Yeah me too Brew.

 Uh... I really hope your're O.K.?  Jaz.

Maybe someday you will be able  to explain.   :-/

Title: Re: The Eye of the Storm
Post by George_J on Sep 13th, 2008 at 1:00am
Some of our journeys are strange, Jasmyn, but yours sounds to be one of the strangest I know.   ;)

But all roads lead home.  Welcome home.

Best,

George

Title: Re: The Eye of the Storm
Post by MJ on Sep 13th, 2008 at 2:05am

Jasmyn wrote on Sep 12th, 2008 at 9:47pm:
By the way those who know me will testify that my mental state was always terribly… mental. (  ;) )

Thus far I have not had one CH attack… the eye of the storm?  But I have hope that The Beast died with me that night.

Cheers
Jazz ;)


Jazz, Welcome back
I hope the beast stays gone for a long time.

Title: Re: The Eye of the Storm
Post by The Mad Viking on Sep 13th, 2008 at 3:48am

Linda_Howell wrote on Sep 12th, 2008 at 11:53pm:
Yeah me too Brew.

 Uh... I really hope your're O.K.?  Jaz.

Maybe someday you will be able  to explain.   :-/



Me2

Did not understand a word about what you are trying to tell us dear.
When you are feeling better please try explain.
Really good to see you home and alive again.
Bente and me have been thinking a lot about you and was wondering what in hell did happen after Milwaukee


Svenn

Title: Re: The Eye of the Storm
Post by Jackie on Sep 13th, 2008 at 8:06am
Jazz.....
Sorry for your journey into the depths of hell....Bless your heart for having the strength of body and soul to reclaim your being.

Welcome back brave Jazz.

Much Love,
Jackie

Title: Re: The Eye of the Storm
Post by nani on Sep 13th, 2008 at 10:52am

I am so happy to see you back, Jazzy! I've missed you and been worried, as have the rest of the PinkFloyd calvary.

I think I understand. You had a long and difficult battle busting the cycle, and may have experienced what your death would be like. Since then, you've been cluster free. Which, BTW, is AWESOME news!!!!

Am I right? I'm mental, too.   ;)

Welcome back, lovie.   :-*

hugs, nani... with more hugs from Bob, Jobo and mooshie

Title: Re: The Eye of the Storm
Post by AussieBrian on Sep 13th, 2008 at 11:52am
Jazz and beer.  Such is the stuff from which dreams are made.

No need to knock, old mate.

Title: Re: The Eye of the Storm
Post by purpleydog on Sep 14th, 2008 at 12:12am
Jazz, I'm glad you're back. Welcome home. I hear ya. I hope the beast is gone for good.

Title: Re: The Eye of the Storm
Post by Ray on Sep 14th, 2008 at 1:04am
What a long strange trip it's been....

Welcome home Jazz!

Ray

Title: Re: The Eye of the Storm
Post by Melissa on Sep 14th, 2008 at 6:28pm
Not going to assume I understand, cause I don't, but glad you are back and posting.

love,
mel

BTW, I have yet to experience another cycle myself.  Going on 3 yrs PF now.  Dunno what's up, but 3 yrs ago I developed the anxiety/panic disorder.  WTF?  Also picked up smoking again to only quit...again...as of Friday night, Sept. 12.


Title: Re: The Eye of the Storm
Post by sailpappy on Sep 15th, 2008 at 5:06am
:o :oJazz,
      I surely feel connected to your drama which you kept secreted away from the eye's of those who are quick to judge you! Not much unlike the journey I took some years ago with the guidence of a Neurologist that was all too happy to resupply any drug arsenal and reap his reward.
       Stepping out of that darkness takes courage and determination on your part, and of course the cooperation of the Beast to a degree.
        Its sad that you had to endure this journey alone, while so many of us here would have traveled along with you in your misery.
        Welcome back, as you can see, the old addage applies to this situation too!  "TIME WAITS FOR NO ONE" I am surely glad to see your posts again!          Single John

Title: Re: The Eye of the Storm
Post by Sandy_C on Sep 15th, 2008 at 1:29pm
Jazz, my roomie!

Thank you God for letting me hear from Jazz.  Thank you for keeping her safe and bringing her back to her CH family.

I'm so sorry to hear about your desperation in battling the beast.  But, Jazz, I'm thrilled that you are winning, no matter the cost, in whatever method you needed to choose.  

I understand the depths that you had to dive in to, and I cheer that you are swimming back to the top.

I've missed you and worried about you terribly.  

Sandy

Title: Re: The Eye of the Storm
Post by KJ on Sep 15th, 2008 at 7:22pm

Quote:
picked up smoking again to only quit...again...as of Friday night, Sept. 12.


Hope ya made it through the weekend, Mel! :) One more beast conquered :).

Title: Re: The Eye of the Storm
Post by sandie99 on Sep 16th, 2008 at 5:10am
Jasmyn,

It's great to have you back. :)
I do hope that you're here to stay and that the beast left your life for good. :)

Sanna

Title: Re: The Eye of the Storm
Post by Karl on Sep 16th, 2008 at 8:45am
you don't me Jazz but after reading your threads i feel like i know you.
i really did feel compassion for you as i have been there in that storm and in many ways still in it.
pf days ahead for you

Title: Re: The Eye of the Storm
Post by alienspacebabe on Sep 16th, 2008 at 10:36am
Welcome home, Jazz!

Title: Re: The Eye of the Storm
Post by LeeS on Sep 16th, 2008 at 1:08pm
Hiya Jazz 8-)

I understand.  I reckon you're well through the eye and in calm waters.  I do hope so.

-Lee

Title: Re: The Eye of the Storm
Post by Poli on Sep 19th, 2008 at 5:28pm
Hola Jazz, whatever you are in the other corner, the feelings here are the same. I feel for you, I understand and I also thanks Pinkfloyd-Clusterbusters virtual cavalrys for their help.
Take care
Saludos
Poli

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