geting hit 4-6 times a day and having seemingly constant shadows has now lead me to try an occiptal nerve block.
i am having it done this morning and if anyone is interested i will share my results.

good luck Karl!!!!!!.  Keep us posted and I hope you get some pain free time from this.  let us know the details as it is something I will consider doing if I need it down the road

We're always interested Karl.  I hope it buys you a break...

-Dennis-

You should always assume we're interested.

The way to know we're not is when nobody responds to your post. ;)

Good luck, Karl.

Keeping you in my families thoughts and prayers Karl, sounds like you could use a break. Please let us know how it goes, praying for the best.

Guiseppi

My Prayers are with you Karl.  Maybe this will work.  Please let us know.  Ernie

Best of luck to you! I can totally understand why you're trying that.

- Rosa

I've done this, needles in the back of the head, makes your head and neck numb for a couple hours and then when a CH strikes your head kinda goes numb.  It didn't break my cycle, it did damping the pain a bit, pins and needles was a bit strange during the hit though.
Good Luck, I hope you make progress.

T

Karl, you better let us know how it turns out. We may think you dont care what we think, I think.  :)
Kick some demon butt.
all the best
thebb

well everyone i found a doctor that told me that my ch was caused by my posture and that with the excercises and the nerve blocks i would be cured!!!!!!!   [smiley=deal2.gif]
thats right all you clusterheads sit up straight and you will be cured.
anyway i am done with my sarcasm now but it is true he did say that.
and after the onb he gave some excercises that read for migraines on top. (one of two pet peeves i have) I don't have frickin migraines you quack is what i was thinking.
after that the beast came back two hours later at the appointed time and still visits today only i think with a vengence. So i am thinking the onb was a waste of time and money  again. :-/
i am so tired and i am getting my ass kicked here guy's and i am starting to run low on fight in me.

Sorry to hear that the ONB hasn't produced the desired results, Karl.  And...posture?  Hadn't heard that one before. >:(

Keep in touch, Karl, and if you need to vent--vent.  

Anybody who's had an ONB have any insight into whether it works right away (when it works), or whether it takes a bit to kick in?

Best wishes,

George

Damn Karl  >:(  I had hopes for that procedure.

As you know all too well it can take a lot of trial and error to find the solution that is right for you.  Don't loose patients.  You have to be stubborn and relentless in your search.

It sounds like your Dr isn't treating you for CH.  Is it time for a change?  I think in your heart you know.  Follow your heart Karl...

-Dennis-

Chin up Karl, your not the first one that has failed on.
It's tough being tough with the beast but you can do it.
Stay on the fight,,,,we have fishin to do. :)
all the best
thebb

that so called dr wasn't my regular two doc's. I have a neuro with headache specialty and a very understanding and competent gp.
i guess i also have a VA doc but he just does what the specialest tells him to do. so i am cool with that.
the quacker i saw was an anesthesiologist that runs the pain clinic. no i am not going there again.
John i am still with you cause we definatly have some fishing to do with George, remember its a go for next sgring or so.
thanks for reminding me because it sounds like more fun than i have had in years and right now i need something to look foward too.

i am concerned about BrianJ in the uk sounds like he is having a hard time and i am also concerned about another person that was having a tough time but sorry my mind isn't functioning at full capacity and i have forgot his name.(oh i found it it was a mr floor)
anyway you all are my hero's cause you help me fight the good fight so i guess i will arm up for the 3oclock which is right around the corner :'(
again thank you for posting on this thread it gives me something to look foward too a couple times a day instead of the crap i am dealing with.
again you all rock!!!! 8-)

Hi Karl, Sounds like we have the same doctor.  I went to the pain clinic today and they did nothing a three hour drive and they want too treat the slipped disc in my neck, it only bothers me about one week a year and they want to treat that, what the f.  
 Enough of that I want to go fishing too PLEEEAASSEEE!
Take care,  Phil

Lisa had 2 and it worked but for a very short time, less than 48 hrs. but that was a nice break for her only to return to a full heavy cycle. Dhe infusion, inpatient, seemed to break it better.

Charlotte

wrote on Sep 18^th, 2008 at 4:35pm:

John i am still with you cause we definatly have some fishing to do with George, remember its a go for next sgring or so. thanks for reminding me because it sounds like more fun than i have had in years and right now i need something to look foward too.

Absolutely right.  That's one fishing trip I'm not going to miss.  Looks like we oughta plan on Phil, too...

All the best,

George

I am very sorry Karl that the GON didn’t give you some PF time,
I have (as you know) used the GON, and did get some substantial
PF time.
I wonder what did the Anaesthesiologist give you, did he use “just”
Lido, or did he use Betametason?
Now to the other statement the “Anaesthesiologist” made, which made me wonder,
is ch s caused by posture?  I will have to ask the Anaesthesiologist at the pain Klink
what dose he thinks about this…….  and wonder how will the neurologist look at me
when I tell her about this new discovery…….  she is a neurologist  / psychiatrist, and I bet
she will tell me to start and think about getting my head “fixed”
and give me that sorry look…… the one I get, when I come with a stupidity,
I have figured it all out, I have the long desired cure.

Michael

hi wildhaus;
yes he used lido and betamethasone. i really wanted to laugh when that bonehead anesthesiologist was trying to show me how to do the excercise's there in the treatment room.
oh well i will continue on i guess, i pretty sure my neuro will have a laugh to. after all was said and done i was told that the bill would run around 2000.00 US dollars.
all that for two injections and some pictures of my bad posture ;D

wow $2000 did they aleast kiss you first. Sorry Karl thats all you need just a little more stress, I wish I could give you the money.  Don't get stressed its not worth it.  I'm right there with you. Take care,  Phil