A while back I was in a clinic and a doctor asked me if I knew if their was any survey done on people with clusters.He mentioned there must be something special or something we all have in common. I remember telling him my mother sometimes would call me special, but I always thought it was because I was the one in the family in charge of burning the trash.

We have all learned of the many triggers that will put us on the ground, but I have not yet been convinced on why this happens. I have passed the point that God is punishing me for all the bad things I have done. Or why me. I believe this is just life and how we deal with the cards dealt to us is what shapes our character.

But what if. What if there is something out there we all had in common (not pain) something we could learn from a survey. Maybe something we could change. I'm not talking on what to take to abort an attack or meds to prevent. What if there is something out there we could learn that would kick this monster out of our heads for good.
Has anyone seen any in-depth survey done on us special people.

shark boy.....

Yes, a few times actually. If you will continue to read over on your left, click on cluster survey and fill it out. Lot of good stuff on the left.

I agree with Jimi lots of great stuff to the left,  but what if there is a variable we all have over looked besides the normal, head trama, family history,  ect......When I was first diagnosed with CH I was in the best shape of my life and have no clue why this demon bastard picked me.  The things that I was doing back then include running 2-3 miles every other day, weight lifting, dental work with in one month of my first hit, high stress job that seemed to keep the CH away until I relaxed,  Lots of time in the gas chamber(CS gas) with no mask training my troops, several different injections Typhoid, yellow fever and many others I dont remmeber.
   I am sure I missed alot of things but thats all I can remember now.  I would be very surpised if there were any common variables here except possible dental work.
 Hope this is what you were looking for.  Good luck,    Phil

P.S. I forgot too say I smoke like a chimney [smiley=smokin.gif]

Seems like we've tried any number of times to discover whether we have common characteristics.  To the best of my recollection, we've found nothing much in common--other than a weird sort of head.  

The old message board and the archives are filled with threads in which we've tried to tease out some physical characteristic, or something that happened to us that we share.  

Nothing so far.

All the best,

George  

Thanks George,  I kinda figured its been done before.  I'll have to take a look at the archives.  Phil [smiley=smokin.gif]

I too have read the surveys and have taken them but i would suggest that like sharkboy and phil mentioned continue the survey's.
think outside the box that alot dr's put us in.
Phil i toohave done the gas chamber without the mask, dental work when i was a teen (attacks soon after) and smoke like a feen. [smiley=smokin.gif]
high stress jobs where i thrived in high pace multiple irons in the fire jobs. several head trauma event. bald overweight, creative, 2 children
and 3 three failed marriages and i am sure there is alot more :D

I was reading lefteye mixed feelings,  I wonder if he is right handed. I am left handed and it's my right eye that wants to exit my head. Is anyone left handed and the hit is on your left side ? I don't think this is the magic bullet, but what if all of us are left handed.

shark boy

shark boy wrote on Oct 1^st, 2008 at 4:44pm:

I don't think this is the magic bullet, but what if all of us are left handed. shark boy

Nope - I'm right-handed, and also red-hot-poker-sticking-into-my-right-eye-most-of-the-way-through-to-the-back-of-my-head during an attack.  :o

Regards,
Jim

:question [smiley=confused.gif]

several years ago I was under the treatment of Dr Joel Sapier. Maybe you have heard of him.  Anyway, when I saw him we discussed what may have caused this onset of CH's.  He had an idea that possibly something in the environment could be the cause.  At that particular time, most of his patients were out of remission.  He had a local weatherman under his care and they were even going as far as to looking into sunspot activity among alot of other things.  I never did hear a result of this study.
This week my current DR. also mentioned the same idea.
Just wondering if anyone has heard anything along these lines.

Quote:

but what if all of us are left handed.

  Huh? :-?

   What  if we were all left hooked?  

               Potter

or hung to the left?

Quote:

He had a local weatherman under his care and they were even going as far as to looking into sunspot activity

Carl,  Let me tell you what I have gleaned over the years of being here.

Anyone who has a specialty is apt to think that THEIR area of expertise is what is causing this.  Example:  because some of the pain is in the teeth...people go to a dentist and he/she will pull other-wise healthy teeth.

Because the pain is in the eye, folks will go to an eye Dr. and of course...He/she needs glasses.

Because the pain is in and near the sinus areas...folks will go to an ear/nose and throat Dr. who will tell...you guessed it."you need sinus surgery.

A weatherman looking into thinking it's due to sun spots...is right up there with all the above.

Hung to the right and my clusters are on the left, I think we're on to some thing here. [smiley=guyflash.gif]

We all have one thing in common. a Fuc2#$^%^up hypothingy. Mine hangs to the left. ;D
all the best
thebb

My left boob hangs lower than the right and I'm right handed and my CH is left.

So that means?  I'm totally unbalanced.  Be afraid...be very afraid....

BWAHHHHhahahahahahahahaha.

(just kidding...I think)

yep in the end john is right it is a messed up hypothingy and we all hurt. need anymore really be said. maybe someday someone will find the magic string and pull it.

Potter wrote on Oct 1^st, 2008 at 6:38pm:

What  if we were all left hooked?                  Potter

;D ;D

ahhh, Ummm.... Mezza?  You DO know what Potter was referring to right?


  LMAO

Umm....I thought so?    i assumed potter was making a joke in spite of himself- as he usually does.  No intent to offend- laughing at what appeared to be self-depracating humor?  NO?   Am I missing the mark here?  

nope.  You got it right.    ;)

I am going to link the occurance of my first hit to that damned sasquatch. His meanderings in and out of the field of nuclear physics in my backyard are leaving the trees curved and my dog yellow. I am sick to death of this guy. Hairballs in my gutters and all that glitter on driveway is going to force my hand. I do believe that my CH started right about the time I found the bologna sandwich in the drawer. It was irradiated with americium from those smoke alarms stolen out of the school. I tripped while carrying the bologna and it poked me in the hypothalamus, hence my pain today. That was in '02.

Seriously, I too have spent a lot of time in the CS chamber with no mask. Very loud music, leftly hung, right handed and lefty CH; maybe there is something to this? Ask the sasquatch.

With the handedness thing, I think sometimes neurologists are interested in "soft" neurological signs, like one headache specialist I saw said that I was ambidextrous from observing me, not sure how he got that, but I am right-handed but do do certain things left-handed like shooting pool or a lot of times favor my left hand.  
Anyway, I think with neurological disorders, it is soft neurological signs that can be important.  As a tidbit.  Of interest.  Perhaps.  Dunno.

I am pretty sure I know why I have this condition ...
It was while my "Daddy" was putting me together ..

Yup, Dr Frrrrrahnkinschtien put in Abby's brain ...  Yup, Abby Normal's brain ...

Henceforth ... I izz what I izz ...

Chuck

LEFTUS IS THE BESTUS.      OR NOT!


I suppose we could blame George Bush, everything else is his fault according to some.

I hang right, suffer right sided CH and my right ear sits quite a bit lower then the left......drives the hair cut people NUTS trying to make the side burns even. Like Redd, I'm just hopelessly off balanced......in oh so many ways! ;D

Guiseppi

I just didn't have a good day today, I don't know what I did wrong. took all my meds took my shots and the f beast, I guess, was just stronger than me today. reading this put a smile on my haggered face.
thanks...shark boy

took all my meds took my shots and the f beast, I guess, was just stronger than me today

Had more of those days then I care to recall, we're all in your camp, hang in there. :'(

Guiseppi

Just Plain Carl wrote on Oct 2^nd, 2008 at 7:26pm:

I suppose we could blame George Bush, everything else is his fault according to some.

It's his fault?  That rascal...

Left head, right hand.  I think the "hang" thing depends on the temperature, and maybe the barometer.  Probably TMI.

Best,

George  

wrote on Oct 1^st, 2008 at 7:36pm:

Hung to the right and my clusters are on the left, I think we're on to some thing here. [smiley=guyflash.gif]

I guess that explaines Bob P's theory that wimmens don't get CH - they just get meegraines... :P

I like the weatherman's theory -- it's the barometer... Anything under 30 - I get hit big time.... And that's my scientific theory..

Hugs BD