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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> got my o2 but???
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Message started by TarHeel-blues on Oct 24th, 2008 at 9:57am

Title: got my o2 but???
Post by TarHeel-blues on Oct 24th, 2008 at 9:57am
just got my o2 home ,,3 e tanks and i think its an m tank,,but all they would give me is a nose cannula,,,what do i do about getting the non rebreather?is there any way to get one locally? or do i have to look at my o2 tanks in pain while my mask comes in the mail :'(  by the way with no insurance coverage the 4 tanks cost me 75 bucks,,45 =m 30=3 e's

-jason-

Title: Re: got my o2 but???
Post by DennisM1045 on Oct 24th, 2008 at 11:11am
A nasal canula isn't going to do it.  But you already knew that  ;)

Try this link: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

They have a nice product at a good price.

I can't believe that your insurance doesn't cover it.  That just doesn't make sense.  What did your perscription read?

-Dennis-

Title: Re: got my o2 but???
Post by Skyhawk5 on Oct 24th, 2008 at 11:56am
Get on the phone start calling every O2 supplier you can find to see if they have one. Also how far are you from Greenville, NC. ? Not sure but I know that CLusterchuck lives there and he may know where to get one . This is important. I do know a friend that sticks the hose in his mouth. Just cut off the ends of the canula stick in your mouth and breath in the pure O2. Thats way better than using the nosepiece. Be sure to close you mouth around the hose and don't let in outside air. Does the O2 place have NRB masks tell them it's for CH and call your Dr. or go to the Hospital. I felt the desparation, like right now.

We'll help if we can,    ,Don

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 24th, 2008 at 1:04pm
I asked the person where I got my oxygen  from he said that nobody would give me one without a prescription


-jason-

Title: Re: got my o2 but???
Post by thebbz on Oct 24th, 2008 at 1:31pm
You have a perscription now dont you? Call the doc and have them call the 02 supplier. You can cut the cannula off of the hose and take the 02 directly from the hose to the mouth.
Friggin people and their control issues.
all the best
the bb

Title: Re: got my o2 but???
Post by ClusterChuck on Oct 24th, 2008 at 1:37pm

TarHeel-blues wrote on Oct 24th, 2008 at 1:04pm:
I asked the person where I got my oxygen  from he said that nobody would give me one without a prescription


THAT is a crock of shit!  You do not need a 'script to buy the mask!  Hell, if you have a buddy that is a firefighter or better still, an EMT, call them up, and most likely they will GIVE you one!  They are not expensive to buy.



Skyhawk5 wrote on Oct 24th, 2008 at 11:56am:
Also how far are you from Greenville, NC. ? Not sure but I know that CLusterchuck lives there and he may know where to get one .

That is just what I wanted to ask you!  Hell, I'll drive out and deliver one to you, if need be.

I just can't find your town, even using mapquest.  Where are you?

I sent you my phone number in a PM.  Use it, if you need to.

I WANT to get you started on O2!!!

Chuck



Title: Re: got my o2 but???
Post by thebbz on Oct 24th, 2008 at 1:40pm
Your pretty cool for wing nut Chuck.
Drive safe
thebb

Title: Re: got my o2 but???
Post by mezza on Oct 24th, 2008 at 2:03pm
chuck

check your pm's

Title: Re: got my o2 but???
Post by CH-HELL on Oct 24th, 2008 at 2:03pm

wrote on Oct 24th, 2008 at 1:40pm:
Your pretty cool for wing nut Chuck.
Drive safe
thebb



[smiley=thumbup.gif] ,you rock Chuck [smiley=headbanger.gif]

Title: Re: got my o2 but???
Post by Racer1_NC on Oct 24th, 2008 at 2:13pm
That town is near Charlotte......I'm fresh out of masks or he'd have one tomorrow.....

Title: Re: got my o2 but???
Post by ClusterChuck on Oct 24th, 2008 at 2:52pm
Thanks, Kelly for the thought ... I will get back to you once I know what I am doing.

Bill, I was thinking of calling you, but you answered my question.  Thanks, buddy.

I got a phone call from Tarheel's wife (a delightful lady, BTW), once he gets out of work, I will talk directly to him, and decide what to do.  It is only a 4 hour drive, from me to him, so I can drive that to get a mask to him.  

Most likely, I will be driving out there tomorrow.  Any other Carolina mentally fucked-ups clusterheads want to join me?  We will show him just how messed up we are!!! LOL!!

Chuck


(BTW, Jason, I promise to leave my axe murdering tools at home ... Have no fear ...)

Title: Re: got my o2 but???
Post by barry_sword on Oct 24th, 2008 at 6:22pm
This is one awesome family, always helping others!!!
[smiley=thumbsup.gif] [smiley=thumbsup.gif] [smiley=thumbsup.gif] [smiley=thumbsup.gif] [smiley=thumbsup.gif] [smiley=thumbsup.gif]

Title: Re: got my o2 but???
Post by Skyhawk5 on Oct 24th, 2008 at 9:49pm
TarHeel, hang in there use the hose, my buddy says it works for him. He won't even use a mask, but he's a little strange.

Chuck you are the man. Check this little bullcrap O2 story: Last years cycle and yrs before that I used Apria O2. They have good NRB's, I had to swithch Co.'s (insur.) to W/F who have crappy NRB's so I called Apria to get a good one with script in hand. "I cant' sell you one unless you use our equipment." WHAT!! Kiss my frigging a$$$$$!!!!!!

Actually Wright Fillipis didn't have NRB's when I switched to them they had to order some. Now I have the Opti-2, Clustermasx, & NRB's for backup.

Gotta hate this world sometimes.       ,Don

Title: Re: got my o2 but???
Post by Jonny on Oct 24th, 2008 at 9:57pm
I dont know what the big deal is, I just go to the local med supply joint and buy them. I have mailed out probably 50 of them in the last nine years, hell, they only cost $4.00

WTF is going on down there in the south? .....LOL  ;D

Title: Re: got my o2 but???
Post by Skyhawk5 on Oct 24th, 2008 at 10:14pm
I'm in the north, but they grow idiots here too. I guess they think you can smoke crack or something with 'em, with their puny hypothalamuses, no wonder.

Title: Re: got my o2 but???
Post by ClusterChuck on Oct 24th, 2008 at 10:34pm
I just got off the phone with Jason.  We have a game plan laid out.  He is also going to order the O2PTI-Mask.  He wanted to get the ok from someone before he ordered it.

Jonny, I am with you!  I can't believe how idiotic some of these suppliers can be!  I have also bought a gazillion of these masks, and passed them out, without anyone asking me for a prescription. I guess, it is the old "power hungry" idiots looking for a way to throw their weight around!

Chuck

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 24th, 2008 at 11:15pm
chuck,,,,i was actually just looking at the that mask we were talking about from the life gas link,,,,whats the big difference with the $25 mask and the $59 mask?i see the cheaper one says disposable and the more exspensive says reusable,,,,does that mean you have to throw the cheaper one away i wonder?after buying the o2 and all the missed work lately my cash flow is a little low right now but i dont want to buy something that doesnt work right or for long,,what do yall think?i didnt mean to direct this only at chuck its just we were just talkin about it on the phone thats all so feel free to chime in.can i also add that chuck is freakin AWESOME.never met the man and he is willing to drive 4 hours to bring me a mask to be able to use my o2....i mean it chuck words cant describe the feeling brother.i never thought a web site could have such an impact on my life :)

-jason-

Title: Re: got my o2 but???
Post by Racer1_NC on Oct 24th, 2008 at 11:24pm
As far as I know the $25 one will work just fine.

B

Title: Re: got my o2 but???
Post by ClusterChuck on Oct 24th, 2008 at 11:33pm
Go with the $25.00 mask.  It is called a disposable, but you can get a lot of use from it.

The difference is in the material used for the mask, itself.  The "disposable" mask is not of as strong and rugged as the other one is, but you will still get a LOT of usage out of it.

If you ever decide you want the more rugged mask, you can buy that separately.  But for now, go with the $25.00 setup.

- - - - - - - - - - - - - - - - - - - - - - - - - - - - -

And, if you were impressed with our phone conversation, just wait until you meet one of us drain bamaged individuals in PERSON!!!   THAT is something you will NEVER forget!

Remember to check out the thread down below, in the Meetings and Gatherings section to read about the St Louis gathering that I told you about!

Chuck

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 24th, 2008 at 11:37pm
well looks like its a call and order deal or email so guess ill get on it first thing in the am ,,the wifes friend the nurse is suppose to bring me one tommorow afternoon to get me by,,thanks again


-jason-

Title: Re: got my o2 but???
Post by Skyhawk5 on Oct 25th, 2008 at 12:15am
I just got one of the "disposable" ones and can verify it should last for a long time. Very comfortable actually. I like it better than the Clustermasx and really can't see why it's called disposable. In fact I'm ordering another one for the truck.

Jason, wishing you a PF night. It is amazing the hearts you find here, all made accessable to us by DJ the site owner and CH'r. Without him this would not have happened.                  Skyhawk5, Over & Out


Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 10:56am
wow i guess life gas doesnt do enough business to take orders on the weekends.i just got an after hours voice mail..oh well i guess ive waited 10 years whats another couple days.surprisingly been able to hold the beast off the past couple of days with the prednisone,,first time its worked in a while.maybe the beast knows i have these tanks of o2 sitting by my bedside and is scared to show his ugly face. ;D

-jason-

Title: Re: got my o2 but???
Post by Batch on Oct 25th, 2008 at 1:06pm
Jason, All,

For the folks that haven't ordered one yet, the cost difference between the two O2PTIMASK™ systems is the actual face mask itself (not shown).  The Blue lipped/cuffed mask runs over $30 but it should last years.

The $25 O2PTIMASK™ kit looks like the following two photos showing the kit components as they come from the box.  The photo to the right shows it assembled with the mouthpiece. 
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O2PTIMASK™ Kit Components


The following photo is actually two as well...  The bag and manifold are the same.  All I did was take two photos, one with the kit configured with the mouthpiece and the other with the kit configured with the face mask and merge them.  The face mask shown here is the lower cost unit that comes with the $25 kit.

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Take care,

V/R, Batch

Title: Re: got my o2 but???
Post by BMoneeTheMoneeMan on Oct 25th, 2008 at 1:42pm
Are you guys serious?  I have never been able to purchase any respiratory parts without a script.   I have gone to 2 stores in my area and I have tried to buy them online, but noone will sell it to me without a script.  Where can I get them?  Unfortunately, I don't have my script anymore.

And the damn O2 company will give me 10,000 litres of O2 at a clip, but they wont give me the damn bubbler thingy without a script.  Its ridiculous.


Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 2:02pm
the link for all the stuff in the pics is a little higher up in the thread.its life gas.i think its the 2nd post .u can get the cheapo's on ebay for like 5 bucks
to those that have ordered the set up from life gas ,,what was the process like..im so used to ebay and click click buy it now and such but it seems like you have to call and speak to someone to place an order?how long did it take to recieve your order and what kind of shipping charges did you pay?
-jason-

Title: Re: got my o2 but???
Post by Brew on Oct 25th, 2008 at 2:09pm

BMoneeTheMoneeMan wrote on Oct 25th, 2008 at 1:42pm:
Are you guys serious?  I have never been able to purchase any respiratory parts without a script.   I have gone to 2 stores in my area and I have tried to buy them online, but noone will sell it to me without a script.  Where can I get them?  Unfortunately, I don't have my script anymore.

And the damn O2 company will give me 10,000 litres of O2 at a clip, but they wont give me the damn bubbler thingy without a script.  Its ridiculous.

Welcome to the People's Republic of Oregon.

Title: Re: got my o2 but???
Post by Linda_Howell on Oct 25th, 2008 at 2:29pm
I wish I had known you needed the non-rebreather Jason.   I could have sent you a boat-load of them in time for your tanks and regulator to show up.


Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 2:59pm
hopefully the wifes friend will come through today,,i have my fingers crossed...i wonder why ebay only has the cheapo models and not any of the good ones.i think maybe tonight ill put my camo's on and my war paint and break into the o2 supply store and take all theyre mask and ill leave a note saying "hows that for a prescription" :  ;D

-jason-


disclaimer:previous statement is in no way true  ;)

Title: Re: got my o2 but???
Post by Melissa on Oct 25th, 2008 at 4:59pm
<----- click on the yellow highlighted "oxygen info" link to your left

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 5:02pm
every body keeps saying that but ive yet to see this o2 link to the left?can you be a little more specific

-jason-

Title: Re: got my o2 but???
Post by thebbz on Oct 25th, 2008 at 6:57pm
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There
thebb

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 7:21pm
thanks i think the same link was posted earlier in the thread.the problem is i called and got an answering machine and it asked to leave an account number and other info i didnt have ,,, i guess they dont open or take orders on weekends.it says if its an emergency to push 1 but i dont know if ordering a mask was an emergency?

-jason-

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 7:57pm
wooo hooo wifes friend came through,,its a cheapo disposable but as far as im concerned its the most beautiful thing ive ever seen :)straight from the respirtory unit from local hospital..so at least im not with out until i can get the optimask.


-jason-

Title: Re: got my o2 but???
Post by thebbz on Oct 25th, 2008 at 8:30pm
Cool!!!

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 8:47pm
should i now be disappointed that ive very surprisingly with predn taper been hit free for 42 hrs now....now that im armed the beast isnt showing his ugly face >:(

-jason-

Title: Re: got my o2 but???
Post by Linda_Howell on Oct 25th, 2008 at 10:50pm


Here is another more informative one hun.

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Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 10:56pm
thanks,,,glad im not a smoker ,,i guess??or did i miss the point?

-jason-

Title: Re: got my o2 but???
Post by Linda_Howell on Oct 25th, 2008 at 11:18pm
Not certain what you mean about being a smoker.  
So many of us here smoke.  If you went to even one of our conventions and took a poll I'll bet you'd find 8 out of 10 of us smoke.


We all know not to light up around our tanks and have a deep respect for the consequences.   :)

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 25th, 2008 at 11:23pm
no no no i didnt mean anything by it i just was reading that link about smoking and the link with lung disease,,,maybe i misunderstood,,,i thought thats why you posted it for me in case i smoked im sorry if i offended any one.my wife is a smoker so i have no problem at all with it.chuck and i were talkin about that just the other night as a matter of fact..again i apoligize

-jason-

Title: Re: got my o2 but???
Post by thebbz on Oct 26th, 2008 at 1:14am
NO apology needed. Just be glad the pred is working. You will taper off and more than likely will need the 02 then.
thebb

Title: Re: got my o2 but???
Post by BarbaraD on Oct 26th, 2008 at 10:05am
Jason,

Just WAIT till you MEET Chuckles in PERSON -- You just thought he was STRANGE on the phone.....  :)

Seriously, listen to the guy - he knows his stuff about O2 (he learned well from Batch - our resident guru).

Hugs BD

Title: Re: got my o2 but???
Post by ClusterChuck on Oct 26th, 2008 at 10:59am

BarbaraD wrote on Oct 26th, 2008 at 10:05am:
Just WAIT till you MEET Chuckles in PERSON -- You just thought he was STRANGE on the phone.....

Jason, don't listen to that crotchety old broad ... She probably hasn't had her  meds yet ... And you KNOW how irritable old wimminz can be ....


Chuck


Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 26th, 2008 at 11:31am
your gonna get me in trouble chuck ,,ive already pissed off linda i think,,those damn newbies ::)

-jason-

Title: Re: got my o2 but???
Post by ClusterChuck on Oct 26th, 2008 at 12:10pm

TarHeel-blues wrote on Oct 26th, 2008 at 11:31am:
ive already pissed off linda i think

BAH!!!

Linda is not a problem .. Besides, you have to take into consideration the severe problems that she has to overcome:
She is blond
She is a left coaster
She is short
And the BIGGEST problem: She is a mere female ...

Chuck

(I can say these things about her, cuz she has vowed to be nice to me for one full year ... I doubt she can keep it up for one year, though ...)

Title: Re: got my o2 but???
Post by TarHeel-blues on Oct 26th, 2008 at 12:32pm
;D ;D ;D

Title: Re: got my o2 but???
Post by BarbaraD on Oct 26th, 2008 at 1:04pm
Yeah, well I didn't make any such vow -- Up yours for saying anything bad about sweet Linda (there now Linda - I'm  a watching your back with the old reprobate - you say "good" I'll sneak up from his blind side! He's KNOWS I'm not nice!" :) ).

And Jason, you just keep on listening to us wimmins here - Old Chuckles will have to go back to the "home" soon and we'll be your lifeline to sanity before long.....

Hugs BD

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