so thats it? in two days yall kick me off your web page? wow. wow. thats crazy. because i asked if smoking pot has helped anyone, and because of a stupid myspace page....wow. ive been dealing with this for the past 20 years, i found yall and you helped me to see im not crazy and not alone. because i did think i was crazy because ive never talked to anybody who suffers like i do. i can get tyhrough the rest of my life alon. it wont kill me. it would be nice to have your "family" to talk to, but i pissed everyone off the first day by asking questions. so to those i pissed off or rubbed the wrong way....sorry. what can i say? im strong to have gotten this far alone and i know this and nobody can take that from me. ill check this later to see whats up and ill know where i stand with everyone. and im out.[

Whatever...............

Life like this web site is what you make of it I guess? :(

Hope you find what you are looking for somewhere!

I have done my best to prod ya in the right direction anyway.

Rolo.... :-X

  You didn't offend me with the pot question,  hell if it worked I'd be smokin it,  I have offered you my help and if you want it that is great but you dont seem to want help or advise so wtf.
        Phil :-?

   Who kicked you off?

         Potter

hat was the impression I was getting. Everyone dogging me.

I never saw the 'post' about pot.  But I've read through the other threads.

Heres how I see it...  There have been numerous vets who have had clusters for 20, 30 years.  At some point, I believe we all have felt like nothing was going to work.  Many of us were misdiagnosed given meds that didn't work, had jobs that suffered etc.

The information given to you on here regarding read the medication information, look at oxygen information , think in terms of preventatives and abortives and get yourself to a good neuro that knows something about clusters.  The ouch website lists neuros that treat people with clusters.  the advice given is based on experience.

You may have tried all the drugs listed, but possibly you havent been on the right combo, never tried oxygen and haven tried any of the other abortives in the triptan family.   And of course you have been told already the opiates you are taking are not the best solution.  There are other things out there .  Your posts are confusing.  

Start reading and educate yourself.  You are only a victim if you choose to be.  We are here to help and so far you have gotten some excellent advice.   I am confident that you will get the help you need if you are open to it.  take care!

Kelly

Chris, we are just trying to offer you some help, we can help you with your pain. Have you had a CT scan, MIR, and have you seen a headache specialist? Are you willing to talk to your doc regarding o2?

I use o2 at 15 lpm to abort a CH and take 480mg Verapamil daily as a prevent and let me tell you I have my life back thanks to my neuro and the advise from these fine folks here.

I hope you find some relief soon.

  Barry :)

Chris,

Please slow down and listen to the reason why these people are saying pot is not recomended.
It is a vaso-dialator. Meaning it causes your blood veins to swell up and this is what causes the pain of a Cluster headache attack. The dialated vein rubs against the trigeminal nerve.
Others on this site smoke it so don't feel alone.

Oxygen is the number 1 safest and effective for more than 70% of us, stopping up to 90+% of CH attacks. The 30% that say it doesn't work, I believe, haven't used it properly or used it after the attack was well into higher Kip numbers.

The folks advising you here have years of experience, and they too are dealing with the same pain as YOU, so they just may appear a little grouchy, so to speak. Help is what they are offering & nothing else. We do understand how scattered CH and meds can make someone but there must be some self control involved.

I ask you to take a look at what you are asking of us and ask yourself honestly, am I looking for answers or something else.??

Good Luck with whatever you seek,  Don

Chris,

I can 100% vouch that good old marijuana only makes it worst...

I was a heavy dope smoker up until a month ago, and although I'm still getting hits, they are not as frequent.
I would get a kip6-ish around 2-3 hours after having a blaze...
I though the bout I am currently in was being extended by the weed, turns not so, but there has definately been a drop in daily hits.

In all honesty, being a newbie like yourself, I would recommend listening to these guys, I was told on Tuesday of last week about Imitrex injections by people on here, on Wednesday I saw a gp....not a very good experience but thats another story....anyways I got 2 Imitrex injections.....and hey presto as soon as I took a hit, stuck it in my leg and 10 mins later all gone.

Print some stuff off on the Imitrex and O2 and go see a Neuro!!!!

Wishing you some PF time....

Scott