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Cluster Headache Help and Support >> Cluster Headache Specific >> Crap? It works!
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Message started by Javi on Jan 27th, 2009 at 4:48am

Title: Crap? It works!
Post by Javi on Jan 27th, 2009 at 4:48am
Funnily enough one thing that does not fail to end each particular hit is to "open my bowel" (actually "doing a crapper" sounds a lot better).

The pattern is like this, I wake up, I must not dally in bed (I get hit if I stay awake reading ) I have my cereals and fruit for breakfast, then I eventually get hit. Breakfast normally makes me want to visit the toilet, so there I go, do my thing, and after 2 or 3 minutes (sometimes even before I have finished washing my hands) the pain diminishes in intensity very quickly and I enjoy a few hours of a clear head.

I sometimes get hit again, so I visit the toilet and "make an effort"... actually the "effort" itself is sometimes painful, but if I manage to get a result then with high likelyhood my pain will be gone in no time at all.

I read somewher that there was some kind of link between migraines and bowel movement, is there no chance that a similar link exists for CH?

I have experienced this so many times (the last time about 20 minutes ago) that, for me at least, there is no doubt some kind of link must exist.

IŽd like to know if you have experienced something similar.

Not a subject to discuss over dinner though  :)

BR

Javi

Title: Re: Crap? It works!
Post by DennisM1045 on Jan 27th, 2009 at 8:38am
This has been discussed before.  It turns out that the largest store of seratonin in the body is in the bowel.

A hit always triggers my lower digestive system.  Sometimes I get relief.  Sometimes not.  I never deminishes the big ones.

-Dennis-

Title: Re: Crap? It works!
Post by Jeannie on Jan 27th, 2009 at 9:12am
I don't know if there is any connection but,  when I was a child, I would almost always vomit during a hit.  The HA would subside a few minutes after.  High kip hits still have the same effect on me today.  I've wondered if it is the seretonin or just my body's response to pain.

PF wishes,

Jeannie

Title: Re: Crap? It works!
Post by UnderTheRadar on Jan 27th, 2009 at 1:57pm
One of the meds my doc tried me on is Reglan (metoclopram) one effect of which is to increase "motility", hopefully to act on the serotonin in the colon.  It did seem to help.

Title: Re: Crap? It works!
Post by vietvet2tours on Jan 27th, 2009 at 2:06pm

UnderTheRadar wrote on Jan 27th, 2009 at 1:57pm:
One of the meds my doc tried me on is Reglan (metoclopram) one effect of which is to increase "motility", hopefully to act on the serotonin in the colon.  It did seem to help.

 It's called the suicide drug for a reason. This drug is the shits.

           Kinder gentler Potter

Title: Re: Crap? It works!
Post by Melissa on Jan 27th, 2009 at 2:19pm
Interesting.  I have a standing RX for Reglan to take for migraines and was told it would probably help my vertigo too.  I haven't filled it or tried it yet tho. :-/

Title: Re: Crap? It works!
Post by vietvet2tours on Jan 27th, 2009 at 2:25pm
It also increases Milk production for breastfeeding women and makes you crazy enough to kill your kid.
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      Kinder gentler Potter

Title: Re: Crap? It works!
Post by UnderTheRadar on Jan 27th, 2009 at 2:33pm
ACK!  well damn, I'm glad I ran out.  He only gave me a week's worth.  Thanks, Potter.   :o

Title: Re: Crap? It works!
Post by Melissa on Jan 27th, 2009 at 2:34pm
Holy crap Potter, I'm glad I didn't try it.  Those are undesirable side effects!  (and I have a history of getting side effects from meds)

Title: Re: Crap? It works!
Post by vietvet2tours on Jan 27th, 2009 at 4:44pm
 Why do I know this shit???

         Potter

Title: Re: Crap? It works!
Post by Jeannie on Jan 27th, 2009 at 4:48pm

Potter wrote on Jan 27th, 2009 at 4:44pm:
 Why do I know this shit???

         Potter

LOL!  I was actually wondering that!

Jeannie

Title: Re: Crap? It works!
Post by UnderTheRadar on Jan 27th, 2009 at 4:57pm
Well, I've been wondering if Potter was PMS'ing, but I never thought he was LACTATING....  ;D

I love you, Potter!!  ;)

Title: Re: Crap? It works!
Post by Jeannie on Jan 27th, 2009 at 5:00pm

UnderTheRadar wrote on Jan 27th, 2009 at 4:57pm:
Well, I've been wondering if Potter was PMS'ing, but I never thought he was LACTATING....  ;D

I love you, Potter!!  ;)

Well.... He does have all them cows to raise!

I too love you, Potter... You know that though! :-*

Title: Re: Crap? It works!
Post by Ellick on Jan 27th, 2009 at 5:32pm
Doesn't Kudzu give some people the '2 bob bits'.

Wouldn't it be ironic if the cure is some sort of laxative !

ET.

Title: Re: Crap? It works!
Post by ClusterChuck on Jan 27th, 2009 at 6:28pm
This whole thread is CRAP!!!

Oh, wait ... that IS what it is about!

It is not an abortive for me ... but it is not uncommon for me to squeeze out a log during a hit ... (I hide in the bathroom, when I am getting hit ... bouncing on the throne ...)  (Seems to me there might be a story about that and a broken seat ... )

Chuck

Title: Re: Crap? It works!
Post by QnHeartMM on Jan 27th, 2009 at 6:46pm

Quote:
but it is not uncommon for me to squeeze out a log during a hit ... (I hide in the bathroom, when I am getting hit ... bouncing on the throne ...)  (Seems to me there might be a story about that and a broken seat ... )


So of course the question is......Is that a story we want to hear????

....still recovering from the thong photo.

:D

Title: Re: Crap? It works!
Post by ClusterChuck on Jan 27th, 2009 at 6:53pm

QnHeartMM wrote on Jan 27th, 2009 at 6:46pm:
So of course the question is......Is that a story we want to hear????


Ask Joe ... It HAS been posted before ...

Title: Re: Crap? It works!
Post by aj on Jan 27th, 2009 at 9:27pm
Early on, before I knew these were clusters, I did always find that succumbing to the nausea and vomiting would bring on the beginning of the end of the pain.  As such, I got quite adept at heartily vomiting on queue, quietly, in pretty much any place I could find.  (this went on to become quite useful in college actually).  Then after about five years of that, it stopped working.  But oddly, just this last cluster, the nausea has returned with the headaches a little, but sadly, the vomiting only brings on temporary relief.  It's like the heaving stretches my cranial blood vessels more or maybe it redirects the blood for a little bit, but within a minute or two, the pain comes back.

It is funny to me that after 15 years of reading all i can about migraines and clusters and what not, I never recall coming across this Bowel Movement Connection.  <stocks pantry with digestive biscuits>

Title: Re: Crap? It works!
Post by Javi on Jan 28th, 2009 at 9:56am
I have tried to google this, and, to my dismay, i have found only a few, very crappy matches

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I now these guys may not even have cluster (or not be aware they have cluster) In any case there seems to be a bunch of people out there that are experiencing something similar to what i am experiencing.

I am tempted to keep a log of my attacks and whether they were aborted by a visit to the toilet.




Title: Re: Crap? It works!
Post by Guiseppi on Jan 28th, 2009 at 10:02am
I hesitated to weigh in on this $hitty topic..(with apologies)...I always have a tremendous urge to have a hearty BM when getting a hit. It's never brought me any relief. Maybe the bodies attempt at getting whatever is hurting me outta my body??

And trust me on this, Chuck's story is worth a reprint! Good for a laugh when you need one! (Love you Chuckles)

Joe

Title: Re: Crap? It works!
Post by Bravehead on Jan 28th, 2009 at 10:19am
I love this place.....ha haa haa.....there now follows a scientific discussion on the abortive techniques used by CH sufferers. First up is the 'Having a huge dump' method....or 'stalling by stooling'.

Seriously (!) though, I find that when out of cycle and I'm lucky enough to have a really, really bad hangover, a good session on the big white throne really diminishes any lingering headache and nausea.

I think I've found the subject for my next thesis. I wonder if I'll get funding?

Title: Re: Crap? It works!
Post by DennisM1045 on Jan 28th, 2009 at 1:43pm

QnHeartMM wrote on Jan 27th, 2009 at 6:46pm:

Quote:
but it is not uncommon for me to squeeze out a log during a hit ... (I hide in the bathroom, when I am getting hit ... bouncing on the throne ...)  (Seems to me there might be a story about that and a broken seat ... )


So of course the question is......Is that a story we want to hear????

....still recovering from the thong photo.

:D

You absolutely need to read that story.  I had to attempt to read through it three times.  Had to stop the first two because I was laughing too hard.

-Dennis-

Title: Re: Crap? It works!
Post by Javi on Jan 28th, 2009 at 2:34pm

DennisM1045 wrote on Jan 28th, 2009 at 1:43pm:
You absolutely need to read that story.  I had to attempt to read through it three times.  Had to stop the first two because I was laughing too hard.

-Dennis-



Dennis, could you please show me where to find story, IŽd love to read it.

Thank you

Title: Re: Crap? It works!
Post by UnderTheRadar on Jan 28th, 2009 at 3:36pm
Where is this story?!?  :D

Title: Re: Crap? It works!
Post by ClusterChuck on Jan 28th, 2009 at 3:56pm
OK ... I will probably regret posting the link to it, as much as I regretted posting the story ...  Cuz youse guys have NO sympathy for those of us in pain and suffering!  BUT, if I don't post it, someone else will ...

Now, they didn't listen the first time it was posted, but this time,
NO LAUGHING!!

<sigh>

Ok here is the link:
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Humbled Chuck

Title: Re: Crap? It works!
Post by Just Plain Carl on Jan 28th, 2009 at 4:15pm
[smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif] [smiley=crackup.gif]

Sorry.  Just couldn't hold back

Title: Re: Crap? It works!
Post by Pixie-elf on Jan 29th, 2009 at 2:38am
On topic: Never a problem for me, but then again, my bowels are screwed up like the rest of me.

Chuck: OH MY GOD. I feel so bad for you after reading that. OWWW. D:


Potter wrote on Jan 27th, 2009 at 2:25pm:
It also increases Milk production for breastfeeding women and makes you crazy enough to kill your kid.
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      Kinder gentler Potter


What they don't warn you about, is you don't have to be a breastfeeding woman to lactate from it.

Never been pregnant, and reglan, along with compazine caused me to lactate. D:

Title: Re: Crap? It works!
Post by Javi on Feb 2nd, 2009 at 2:29am

ClusterChuck wrote on Jan 28th, 2009 at 3:56pm:


Now, they didn't listen the first time it was posted, but this time,
NO LAUGHING!!

<sigh>

Ok here is the link:
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Humbled Chuck


Great story Chuck, you are a very good storyteller, Thank you for sharing it.

I hope you eventually recovered from your injuries and managed to fix the toilet lid.

PFDANs

Title: Re: Crap? It works!
Post by Javi on Feb 2nd, 2009 at 2:39am
I am a bit surprised that not many people have experienced the same thing as myself. But Ok, i accept this does not work for most people.

I must add that this very weekend I have had two night attacks and one morning attack stopped by three corresponding toilet visits. But sadly this is not enough to manage all my attacks (I mean you cannot always "do it", can you?)

In any case I am going to find a neuro this week (I have relocated recently), this cycle is being longer than usual and I am going to need something more powerful than my kudzu and pack of all-bran cereals to control my hits.

PF wishes to all.

Title: Re: Crap? It works!
Post by Bravehead on Feb 2nd, 2009 at 7:23am
[/font][font=Papyrus][/font]
Thanks Javi for starting this thread and Thanks ClusterChuck....

I've never laughed so hard in my life.

Sorry man.....but that was hilarious....thanks for sharing.

Title: Re: Crap? It works!
Post by Mungk on Feb 2nd, 2009 at 7:34am
      Having a bowel movement helps pain for me a little. I worry more about losing control of my bowels while having an attack.

Title: Re: Crap? It works!
Post by Brew on Feb 2nd, 2009 at 8:17am
Perhaps it boils down to the choice between enduring a longer hit or being treated for chronic hemorrhoids.

Title: Re: Crap? It works!
Post by QnHeartMM on Feb 2nd, 2009 at 9:27am

Quote:
regretted posting the story ...  Cuz youse guys have NO sympathy for those of us in pain and suffering!  BUT, if I don't post it, someone else will ...

Now, they didn't listen the first time it was posted, but this time,
NO LAUGHING!!

<sigh>

Ok here is the link:
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Humbled Chuck

Ah yes, I DO remember that story once! I think Joe handed me the laptop to read because he was so choked up. :) Love you Chuck!

Title: Re: Crap? It works!
Post by oregonian clusterer on Feb 7th, 2009 at 11:09am
Well, I have to add to this, because curiosly enough my husbands head crushers have the same effect on him....he sits on the toilet holding his head and drops a dukey simultaniously.  Aside from all the crapping, I have to wonder why do the headaches even end?  What IS the body doing that stops the episode and can any one duplicate this natural response to end the misery?

Title: Re: Crap? It works!
Post by BlueMeanie on Feb 7th, 2009 at 6:33pm
New CH preventitive med.  ::)

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Title: Re: Crap? It works!
Post by GrandPotentate on Feb 12th, 2009 at 7:27am
I often get a lot of gas at the end of a hit.  What's up with that?

Jon

Title: Re: Crap? It works!
Post by Javi on Feb 19th, 2018 at 3:57pm
I was doing a bit of googling and I found the post below, which I think it is similar to my own experience:

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