Thanks to those who took a few minutes to try and help Garrett and I. This has been a very troublesome year...esp for him....If there are any moms...and I know there are...who have children around 6 years old with this...please contact me ....I don't know anyone else with children....and there are no publications that I know of....and I am getting tired of fighting with doctors that don't care...and have no clue..I am an RN... I have even found a number for the University of Copenhagen for the Neuroscience division, and will call them tomorrow to see if they have any information or studies that can help us...I read a book by one of their faculty members called Cluster Headaches and other related conditions....it is by Jes Oleson...he is a neurology professor there....and the International Society of Headach e research is done there also....the book is very complex and goes into detail regarding hormones....cell research,  genetics,  medications, oxygen therapy and research findings on each topic....very informative....but published in 1999.  I am looking for something recent...esp.  about children sufferers...anyway.  This is an awesome site and it has helped me understand what my son is going through...Marjorie..Garrett's mom :)