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Cluster Headache Help and Support >> Cluster Headache Specific >> Im back but their not!!!
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Message started by chrisw on Nov 13th, 2009 at 8:12am

Title: Im back but their not!!!
Post by chrisw on Nov 13th, 2009 at 8:12am
Hi all,
  I dont know if anyone remembers me,  but I want to say hello to everyone again.  Had my last HA back in May,  I have felt so damn good since then.  I got completely off HA meds for the first time in years.  I did something this summer that i havent been able to do in years also.  I took my kids and spent the summer down at the NJ shore.  I could never do that before without worrying about clusters and meds and tanks etc.  Also, I never would have wanted to do it either.  Anyway,  came home in Sept. and have beenn living it up since then.  I swear,  I view every PFD as a gift, and I wake up every morning so thankful for the sleep  .  A while back I posted a poem about sleep, Ode to sleep,  and now I can say sleep is one of my best friends.  Anyway,  I wanted to say hi to everyone, and that I will  try to help others get through what can be a very difficult time of year.  (It always is for me)  I dont know if the beast will return, but I am greatful for the last six months.

Christine ;D ;D

Title: Re: Im back but their not!!!
Post by Iddy on Nov 13th, 2009 at 8:23am
That's wonderful news Christine!!

Wishing you all the best and continued PFDS :) :)

Iddy

Title: Re: Im back but their not!!!
Post by Chad on Nov 13th, 2009 at 8:39am
That's a fantastic attitude Christine!

You get an A++++++++++ from me.
Cherishing pain free days is what you have to do to get the best out of life and the best out of our condition.
I am out of cycle as well and do the same as you.
I try to check in this site daily and post where I can
to support others.

Cheers,
Chad

Title: Re: Im back but their not!!!
Post by Jeannie on Nov 13th, 2009 at 9:53am
Welcome back, Christine!   

I'm so happy to hear that you are pain free!   


Jeannie

Title: Re: Im back but their not!!!
Post by Lefty on Nov 13th, 2009 at 10:08am
That's great news Christine...! It's definitely nice to be enjoying good old uninterrupted sleep once again [smiley=sleep.gif] [smiley=sleep.gif]



Lefty..!


Title: Re: Im back but their not!!!
Post by bejeeber on Nov 13th, 2009 at 10:20am
You go girl!  ;D

Ahhhh sleep sweet sleep.  [smiley=sleep.gif] [smiley=sleep.gif]

Now if only people could start spelling "they're" correctly in the titles of their new topics, everything would be good. Kidding. I'm undoubtedly guilty of my share of spelling/grammar atrocities.  ;)

Title: Re: Im back but their not!!!
Post by LeLimey on Nov 13th, 2009 at 1:37pm
Welcome back Chris - it's always good to see people return especially when they come back with good news!
Glad you're here!
Helen

Title: Re: Im back but their not!!!
Post by chrisw on Nov 13th, 2009 at 8:08pm
thanks guys for the warm welcome.  I will try to do better with my spelling,  but its actually more of a typing issue.  sometimes i type faster than i can think. ha ha

warmly
christine :D

Title: Re: Im back but their not!!!
Post by Brew on Nov 13th, 2009 at 8:58pm
Don't let the grammar police get you down - I'm glad you're feeling better. Welcome back.

Title: Re: Im back but their not!!!
Post by Weatherman on Nov 14th, 2009 at 12:00am

chrisw wrote on Nov 13th, 2009 at 8:08pm:
sometimes i type faster than i can think. ha ha

warmly
christine :D

I hear you there! When I do the weather, my mouth often gets ahead of my brain. But I have fun with it. I usually just stop, look at the camera/viewers, then say "let's just try that again". The viewers always seem to get a kick out of it.

Oh, welcome back! And congrats on your pain free times! Hope it keeps up!

Title: Re: Im back but their not!!!
Post by void on Nov 14th, 2009 at 8:01pm
I'm happy for you.
I have so long time between my episodes I should not complain.

Anyhows - I read about your PFD thinking and was a bit envious. I am 3-4 months now from my last attack and I am still not sleeping regularly. The attacks mess me up so bad, so when I am in remission I still cant sleep properly. I am doing 3-4 hours a night and its really taking its toll. I know I will start forgetting and going back to normal,  but it takes too much time. I wish I could be more 1-day-at-atime mode

Title: Re: Im back but their not!!!
Post by Brew on Nov 15th, 2009 at 1:20pm

void wrote on Nov 14th, 2009 at 8:01pm:
I'm happy for you.
I have so long time between my episodes I should not complain.

Anyhows - I read about your PFD thinking and was a bit envious. I am 3-4 months now from my last attack and I am still not sleeping regularly. The attacks mess me up so bad, so when I am in remission I still cant sleep properly. I am doing 3-4 hours a night and its really taking its toll. I know I will start forgetting and going back to normal,  but it takes too much time. I wish I could be more 1-day-at-atime mode

Have you tried melatonin?

Title: Re: Im back but their not!!!
Post by MattyAA on Nov 15th, 2009 at 7:37pm

bejeeber wrote on Nov 13th, 2009 at 10:20am:
Now if only people could start spelling "they're" correctly in the titles of their new topics, everything would be good. Kidding. I'm undoubtedly guilty of my share of spelling/grammar atrocities.  ;)


I thing, that her spelled more then correctly.

And I am just joking and guilty to.

*teases Bejeeber*

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