My first cycle of cluster Headaches started Dec 5, with 5-10 per day.  After medications and O2, headaches went down to about 1-4 per day in March and down to about zero in april.  I weened of the drugs and have been pretty well headache free for two weeks.  That was also the last time I used O2.  My question is, does anyone out there  experience light headeness and dizzy spells without having headaches?  i notice it mostly when heartrate is up a bit on a long walk or jogging (I've actually have felt good enough this last week to try to get back to running.
thanks for your help.

Del

I've never experienced that. Are you still on anything like Verapamil that might be lowering your blood pressure? AS with anything that's unusual, it's certainly worth running by your doc, see if he wants to give you a once over just to be safe! ;)

Joe

edited to add......awesome your getting the pain free time! :)

been off Verapamil, depakote and lithium for about 3 weeks now.  I had bad tremors while on these but now gone, just mainly dizzy

Yeah I get really mild tremors from the Lithium, fortunately nohting too buggy yet! I'd at least give the doc a call then, see if he wants to do a check and make sure your body's recovered from all the anti CH crap you put in it! Sometimes I think the cure is as bad as the CH! (But only very rarely! ;D)

Hoping this remission lasts you a lifetime!

Joe