Today I emailed the AMA on their website, strongly encouraging them to have all MDs especially ER docs trained in what a cluster is. I mean it's very sad that chiropractors and dentists are very familiar with CHs, but mainline docs aren't?

It's no excuse I think.

My next move is to contact the deans of every medical school in the US and give them my edited colleague letter. I bolded some stuff, put other stuff in red and added the comment about chiropractors and dentists, and some other stuff. (Let me know if you want to see it and I'll send it your way)

Do you all think this is a good idea? Anyone else on board? I mean together we can do something to ensure that no one ever walks into an ER in excruciating pain with a CH and gets blown off or diagnosed with something stupid such as cranial rectosis (stole that from a radio station). IMHO the ignorance of these medical staff means the cranial rectosis is what they suffer from when they just blow us off. ;D

Anyone else we should contact?

I ran into problems at the ER a couple of years ago. The on call DR had no idea what a cluster headache was, and refused to call my neuro even though she was on call. I suffered for hours w/o O2 before she finally arrived. She decided on her own to educate the on call staff concerning clusters since there are several of us in the area. I think starting with the neuro who is likely to treat us in the ER, and suggesting a brief from them to the interns and staff, is a good idea as well. Blessings! lance