New CH.com Forum - Print Page

New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Gatherings, Fundraisers and Fun >> Meetings and Gatherings >> Yorkshire! England? UK?? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1299679678 Message started by Andy T on Mar 9^th, 2011 at 9:07am

Title: Yorkshire! England? UK??
Post by Andy T on Mar 9^th, 2011 at 9:07am

I just read through the UK question. I felt lonely before, but worse now!
Is there no one out there from Gods Own County, or even nearby.
Surely it can't be the case that you're all foreign (i.e. Not from Yorkshire).
Only kidding, I was glad to see so many of you on board, from the UK, helping each other out.
I noted the positive comments about UCL and have had a recent good experience at Pinderfields. I wondered what the wider UK, picture was like, having read some previous negative reports about our NHS, here on the site (and elsewhere).
I'd be really interested in your reports, good or bad. As we may not all be able to get to UCL (I've heard its very popular, meaning waiting lists) so I figure it helpful, to us all, if we know where our nearest decent consultant is.
The other question was, is there ever any sort of convention, or similar, here in the UK? It looks like there are more than enough of us sufferers to fill the Albert Hall!

May your heads be clear

Andrew

Title: Re: Yorkshire! England? UK??
Post by Mike NZ on Mar 9^th, 2011 at 12:18pm

You're not the only one from Yorkshire, however I now live a good distance away (not sure I could get much further away, although that is zero reflection on Yorkshire itself).

Title: Re: Yorkshire! England? UK??
Post by 37-41withrestrictions on Mar 9^th, 2011 at 2:06pm

Hi Andy
I am a Chester lass and there are 2 other sufferers in this area.
I have had a frustrating time with our beloved NHS,
I know the NHS has the ethos of trying a number of treatments, proving they are inefficient then moving to the next line.
I appreciate that trialing treatments takes time to get either a positive or negative result but when it means you have to climb the walls, poke your eye out, bang your head and scream like some insane person it doesn't sit well!!! Patience never was my strong point!!!

I made a huge mistake of not researching the condition...accepted the information given by the hospital (one side of A4) I have put this right now and have crammed my brain with as much info as it can retain :)

Title: Re: Yorkshire! England? UK??
Post by mrs mac on Apr 5^th, 2011 at 12:44pm

hey guys ther is a meet and greet planned in Liverpool on the 15 May, have posted about this so please see that post for details on how to attend!!!

if you have never been to a meet and greet before, it is a great day and we have really good speakers there!!!

I don't think Liverpool is too far away from either of you

sandra xx

Title: Re: Yorkshire! England? UK??
Post by 37-41withrestrictions on Apr 5^th, 2011 at 3:11pm

Liverpool...£3 on the train!!!

I saw the details on OUCH will do my best to get there

Title: Re: Yorkshire! England? UK??
Post by mrs mac on Apr 5^th, 2011 at 3:21pm

cool can you register for it if you are going, so we can have an idea of numbers!!

Cheers hope to see you there

Sandra xxx

Title: Re: Yorkshire! England? UK??
Post by 37-41withrestrictions on Apr 6^th, 2011 at 8:08am

Look into it tonight Sandra

Title: Re: Yorkshire! England? UK??
Post by ouch1982 on Apr 30^th, 2011 at 2:59pm

Hi im from UK, Surrey. Havent been a sufferer long but would like to meet others who are so can share stories aand diff pain relief. could you give me more details on the CH meeting in liverpool please.

cheers

Title: Re: Yorkshire! England? UK??
Post by Mike NZ on Apr 30^th, 2011 at 3:53pm

debbi.T wrote on Apr 30^th, 2011 at 2:59pm:

could you give me more details on the CH meeting in liverpool please.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE