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Cluster Headache Help and Support >> Getting to Know Ya >> New to CH.COM http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1301519061 Message started by tony c on Mar 30th, 2011 at 5:04pm |
Title: New to CH.COM Post by tony c on Mar 30th, 2011 at 5:04pm
Hi All,
I,m 46 years old and have been a clusterhead since my early 20s. I did not know they were clusters intill about 2000. After trying many drugs have found that oxygen works the best!!! I get mine every March at the same time two or 3 times every night. I have found that if i do not drink alcohol, eat chocolate, parmesan (any hard cheese) i will not get them during the day. I,m in week 3... about 2 more weeks to go. |
Title: Re: New to CH.COM Post by QnHeartMM on Mar 30th, 2011 at 5:43pm
Welcome Tony! So glad to hear you are good with oxygen!
Many here also use different preventative medications (verapamil, lithium, topomax etc). Has your neuro tried any of these (or combination) with you? Might not knock them ALL out, but often can help reduce frequency/intensity. My husband uses lithium, 1200mg when in cycle. It helps. Lots of other ideas too on the treatments/meds page. I just wanted to say hi back and welcome to the family. Christy |
Title: Re: New to CH.COM Post by tony c on Mar 30th, 2011 at 6:46pm
Thank you Christy!!
I'm sticking with the oxygen. I have tanks next to my bed and if i start in the first 5 min of the CH it will go away in about 10 min and the pain is not as bad as normal (curled up in ball on the floor wishing i would die) I used to use Cafergot that would stop them at night, but started giving me rebound CH during the day. Tony |
Title: Re: New to CH.COM Post by Jimi on Mar 30th, 2011 at 8:01pm
Welcome Tony....glad that you found us and I am glad that 02 works so well with you. It was the Holy Grail for me too. :)
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Title: Re: New to CH.COM Post by wimsey1 on Mar 31st, 2011 at 7:50am
Greetings Tony and good to hear from you. Also glad O2 is working for you. Just curious...have you tried Melatonin at night? It seems to help many of us sleep without a hit. It doesn't eliminate them but does seem to help. I take 15mg at night. Some get by on much less. And since your hits are mostly at night, perhaps the energy drink booster would be a bad idea, but you might tuck that one away in your growing arsenal for a time when the Beast kicks in during the day. Good luck and God bless! lance
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Title: Re: New to CH.COM Post by it-hurts on Mar 31st, 2011 at 8:46am
just wanted to say welcome to the site. (im new as well).
i hope you find all the info/companionship here that you need. |
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