New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Supporter's Corner >> Supporter's Corner >> newbies http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1339809463 Message started by johnnysrock on Jun 15th, 2012 at 9:17pm |
Title: newbies Post by johnnysrock on Jun 15th, 2012 at 9:17pm
Newbies here!!!
My husband has been suffering since 1994, undiagnosed by the medical community until now. With my help and research about cluster headaches I made the diagnosis, and yesterday it was confirmed by a neurologist. Since we are newbies to the world of cluster headaches (not by any means newbies to the endless bouts of pain and misery) we are here for support and help in hearing what works for others who suffer from the same nightmare. I have watched my man suffer for hours at a time, doctors treating him for sinus infections, pulled teeth because they thought it would be the solution, give him prescription after prescription for pain meds that do nothing to relieve his pain, and at times look at him as though he was crazy, Johnny will be relieved to know that he is not alone, not that we wish this horrible headache on anyone. For years he has been trying to make those around him understand, and realize that this is not all in his head. We are reaching out to those others who are in the same boat. |
Title: Re: newbies Post by johnnysrock on Jun 16th, 2012 at 11:20am
Thanks Joe,
I appreciate your info, we saw the neuro yesterday in the ER and have an office visit on the 26th. Heis doing a Prednisone treatment now, has the imitrex nasal spray and is using vera. We do not have O2 yet but will get it on the office visit. I love this website, as it is very informative and has given me the strength to move forward. I am keeping a log of info on Johnnys headaches to share with the neuro, trackng his medications and trying as hard as I can to be his rock when all else fails him. He is a bit skeptical that this is his problem, wants to lean more toward some type of problem with the clamps is his neck from when he broke it. However I am a firm believer that he has CH. Right now we are detoxing him from all the useless pain medication he has been taking for the past month, trying to flush them out of his system with lots of water and vitamins. I am prepared to go the distance with him and find relief and remission. I am so happy I found this website. :D |
Title: Re: newbies Post by Guiseppi on Jun 16th, 2012 at 11:39am
Right now we are detoxing him from all the useless pain medication he has been taking for the past month, trying to flush them out of his system with lots of water and vitamins. I am prepared to go the distance with him and find relief and remission. I am so happy I found this website.
Smartest thing he could do for himself. They do little to alleviate the pain and the risk of rebound headaches is very high. You've got a great attitude attacking this thing head on, he's a lucky man to have you in his corner! ;) Joe |
Title: Re: newbies Post by johnnysrock on Jun 16th, 2012 at 2:26pm
I read up on the anti-inflammatory regimen, and am willing to try as it sounds promising. I went out and got a good daily multi vitamin, fish oil and Vit D, came home and made Johnny take his daily dose. I think he is skeptical of the relief these things may provide for him, as he has been going through this so long, but he is being a good sport and humoring me with every suggestion I make. We are on the water x3 thing too, I keep reminding him to drink and yes he is becoming very intimate with the commode. The pressure he has in his forehead has yet to become a full blown headache today. Mainly he is exhausted from the last four days of excruciating pain and no sleep, I will let him rest for as long as he can. Again thank you for your support as this whole thing has been trying for me.
|
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |