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Cluster Headache Help and Support >> Getting to Know Ya >> scared but now looks like this is why http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1340834540 Message started by service engineer on Jun 27th, 2012 at 6:02pm |
Title: scared but now looks like this is why Post by service engineer on Jun 27th, 2012 at 6:02pm
Hi everyone , i have just joined this site . I have just been diagnosed with having these headaches and was terrified over them. I have never felt pain like it now im trying to find out what i can do for the best. Are these stress related? I have to work through these as I have my own business with no support as I have no more staff and for the last month I have slowly become so disinterested with my work. Can anyone show me the best way to deal with this as my doctors are so lapse and i felt a bit of a fraud. many thanks if anyone can help me
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Title: Re: scared but now looks like this is why Post by TJMBeav on Jun 28th, 2012 at 8:49am
I feel your pain. I am in a similar situation - self employed and in the middle of a stressful project, and the middle of a cycle. Where I am ahead of you is that I know what it is, I know what works (atleast for me, and atleast for now) to kill the headache and I finally have a plan for prevention.
My advice - and I think you will get others on this board who will echo it, is do your research - look at some of the marked posts on this board and print out the information. Tell your doctor that you want the first line treatment option. Imetrix injections for abortive (they are magic - pain free and able to focus within minutes), Prednizone taper and Verapamil as a preventative. That sums up what I have found to be the first thing most doctors will go for. Bad news is that Imetrix (even the generic) is expensive, but if you can get a script and are willing to buy through a Canadian pharmacy you can significantly reduce the cost - but it still stings. Good news is the Pred and Verapamil are not expensive. I just started on the Pred and Verapamil - about 1/2 way through my taper. Will see if it works. So far no major side effects, I feel better - but I have had CH's - though not as bad nor as long in duration, and they respond to an imetrix shot quickly. Do not make the mistake I made - which was when the cycle went away I canceled my appointments and hoped they were gone for good. Took me 4 cycles before I finally decided I needed to be much more proactive. Save yourself the pain and do it now. Also - many on this board swear by D3 and O2 as treatments. I have started taking the D3 - didn't seem to help the CH's - but definently gave me more energy and when no head ache I do feel noticeably better. O2 did not work for me - but I did not try it at the levels, purity or with the good equipment that is advocated on this board - so cannot be sure it would not work. Since I can afford to by the Imetrix and have the script I have decided to stick with that as my abortive - if the Verapamil does not work long term, I will revisit O2. You can survive this - I have had very stressful jobs over the last 5 years, plus a very stressfull family/personal issues (son diagnosised with Idiopathic Aplastic Anemia - very rare desease), but have still managed to stay successful and live my life. Good luck to you |
Title: Re: scared but now looks like this is why Post by Guiseppi on Jul 1st, 2012 at 10:00am
Excellent advice above, I'll restate the advice to be pro-active in battling the beast. This condition ALWAYS comes back, so you must always be prepared to do battle. It's an orphan condition, doesn't kill you, doesn't have any star qualities to it, so chances are your treating doctor will have never treated another CH'er. That makes it YOUR job to educate yourself as to all treatment options, and keep detailed records on what does and doesn't work for you.
If you can get to a headache specialist neurologist, your odds at a succesful treatment regimen go WWAAYY up! Joe |
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