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Supporter's Corner >> Supporter's Corner >> Not following the pattern? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1372907799 Message started by southernbelle on Jul 3rd, 2013 at 11:16pm |
Title: Not following the pattern? Post by southernbelle on Jul 3rd, 2013 at 11:16pm
Hi everyone. My boyfriend was diagnosed with cluster headaches last July and his cycle lasted through October. His most recent cycle started at the end of February, and it's still going on. The attacks happen once a day at various times....morning, afternoon or evening. Based on what I've read so far, cycles usually don't last more than 3 or 4 months, and the attacks are usually at night. Has anyone else experienced a cycle that lasted this long?
He is in so much pain:(. He has a heart condition and can't take a lot of the typical therapies I've seen on this site. Not to mention, he can't get oxygen because Medicare won't pay for it. I don't think he's found the right doctor who will really work with him on managing this awful pain. Right now, he takes topomax and melatonin. His GP prescribed imatrex in capsule form but it didn't work:(. Any advice for relief is greatly appreciated! |
Title: Re: Not following the pattern? Post by PR921 on Jul 16th, 2013 at 4:27pm
Definitely have him try the vitamin regimen. My husband started on it July1st and had immediate relief as far as the severity of the headaches. He has continued to have the headaches, but the oxygen gets rid of them quickly and the intensity of pain is minimal. I'm happy to report that he didn't have one at all last night, so maybe this is going to be the end of this cluster period. :)
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Title: Re: Not following the pattern? Post by southernbelle on Jul 17th, 2013 at 6:16pm
He's been on that regimen for almost 2 weeks, but no relief yet:(
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Title: Re: Not following the pattern? Post by Hoppy on Jul 17th, 2013 at 7:12pm
Hi SB,
Has he had his 25 (OH) D serum concentration blood test? It needs to be around the 80 ng/ml mark,if not get back to us for further information. Hoppy. |
Title: Re: Not following the pattern? Post by southernbelle on Jul 18th, 2013 at 10:12am
Just curious, but what does the blood test have to do with it?
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Title: Re: Not following the pattern? Post by Hoppy on Jul 18th, 2013 at 4:27pm
Hi SB,
For the D3 Regime to be effective you need a 25 (OH) D serum concentration 80 ng/ml 203.5 nmol/l. You need a blood test to see where your vitamin D level is at. Most folk findafter the test there vitamin D level is way to low. Hoppy. |
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