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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Method of dealing with pain
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Message started by mattwilsonfl on Aug 11th, 2014 at 2:50pm

Title: Method of dealing with pain
Post by mattwilsonfl on Aug 11th, 2014 at 2:50pm
Basically what I am suggesting is that you accept the pain you receive. Signs of NOT accepting the pain are things like moving around, then once you stop moving around maybe things like putting hands on your head, or thinking angry negative thoughts. Basically the trick is to act like the pain isn't even there. It will be hard, it will feel impossible to do this, and it will not happen instantly--one has to devote oneself to one's goal of not doing anything for sometimes up to 30 minutes, but one you reach it you will be in bliss, (not just a state of complete painlessness) and to top it off you will permanently be a mentally stronger, more in control person--this will result in greater happiness and success in your life.

By doing nothing, I mean literally that. If your jaw relaxes to the point where you are drooling on your chest, you cannot wipe it away. you literally cannot act.

Title: Re: Method of dealing with pain
Post by Potter on Aug 11th, 2014 at 3:12pm
Horse shit.

          Potter

Title: Re: Method of dealing with pain
Post by Mike NZ on Aug 11th, 2014 at 4:04pm
Given your suggestion of 30 minutes of accepting the pain I'd strongly suggest using either oxygen or injectable imitrex, both of which will kill the pain in a matter of minutes.

Are you working with a headache specialist with CH skills and experience so you don't have to endure so much pain that you have your own coping strategy for it?

Title: Re: Method of dealing with pain
Post by maz on Aug 11th, 2014 at 4:23pm
Do you have CH.   I'm betting not.  If you do then you are welcome to accept it if you want to. You can have mine if you like.

Otherwise, I'm with potter - with bells on.

Title: Re: Method of dealing with pain
Post by Guiseppi on Aug 11th, 2014 at 5:51pm
I speak only from my pain and my handling of pain, but holding still while getting a CH hit is completely, totally, absolutely physically impossible for me. Maintaining any sense of relaxation during a hit is inconceivable. There are versions of bio feedback which have been discussed at length on the board, with varying degrees of success. None worked for me, I would certainly not discourage anyone from using them to assist with their processing the pain of CH, but for me it's oxygen, imitrex, and the D-3 regimen. To each their own.

Joe

Title: Re: Method of dealing with pain
Post by jon019 on Aug 11th, 2014 at 6:09pm

maz wrote on Aug 11th, 2014 at 4:23pm:
Do you have CH.   I'm betting not.  If you do then you are welcome to accept it if you want to. You can have mine if you like.

Otherwise, I'm with potter - with bells on.


...he's a chiropracter...whch of course don't work either.......

horse shit with bells on....bwaaaaa-hahahahahaha....reminds me of a joke:

How can you tell the difference between Brown bear poop and Grizzly bear poop?

Grizzly poop smells like pepper spray and has bells in it.

Jon

Title: Re: Method of dealing with pain
Post by Hoppy on Aug 11th, 2014 at 10:53pm
When I was dancing with the beast, and at the same
crushing my head with my hands, had about as much
chance of stopping him in his tracks, as stopping religious
callers knocking my door.

Hoppy.

Title: Re: Method of dealing with pain
Post by Mark Olson on Aug 12th, 2014 at 2:40am
It is clear he has never experienced a K10...

Title: Re: Method of dealing with pain
Post by blacklab on Aug 12th, 2014 at 6:50am

wrote on Aug 11th, 2014 at 3:12pm:
Horse shit.

          Potter


HAHAHAHAHAHA,
  I know we're supposed to respect all posters !
and I know I shouldn't have a laugh at someone else's expense,
   but its Potters fault moderators !
     ;D
col

Title: Re: Method of dealing with pain
Post by dauber on Aug 12th, 2014 at 7:59am
Obvious troll is obvious cliche

Title: Re: Method of dealing with pain
Post by Guiseppi on Aug 12th, 2014 at 9:33am

wrote on Aug 12th, 2014 at 6:50am:

wrote on Aug 11th, 2014 at 3:12pm:
Horse shit.

          Potter


HAHAHAHAHAHA,
  I know we're supposed to respect all posters !
and I know I shouldn't have a laugh at someone else's expense,
   but its Potters fault moderators !
     ;D
col


Consider yourself appropriately disciplined Col! ;)

Joe

PS: ought to just let this thread die its natural death.

Title: Re: Method of dealing with pain
Post by blacklab on Aug 14th, 2014 at 2:53am
ha ha ha,  thankyou for being so lenient Joe...

It is interesting though on peoples theories on mind over matter and pain, Hell, I think i've broken just about every bone in my body and pretty well abused the hell out of it with sport, I can understand there's a mind state to be in to accept pain better ! I think that's really to just relax and don't tense up and basically don't panic,   but these people I believe have absolutely no concept of a full blown kip 10 cluster attack !  and the sheer pain levels it gets too !
  I don't argue with people now, the topic sometimes comes up, and there's always one idiot that's had more pain than anyone else ! we all know the type !  I just sit there and hear the terror from a paper cut they endured or similar and just say to myself, you don't know how lucky you are  lol
I think I came as prepared as any body could have been in experiencing pain,   but learned fairly quickly, a pain level I'd never reached before with these damn clusters.
perhaps we could invent a pill that these people could take to induce a full blown cluster pain experience before they offer relieving advice for those of us that experience it !
Im picking they would find another vocation  !   lol
 
col

Title: Re: Method of dealing with pain
Post by AussieBrian on Aug 14th, 2014 at 7:14am
G'day MattWillson, welcome, and thanks sincerely for your advice. Every little bit helps.

Many CHeads have their own little techniques for dealing with this monster so your first post is profoundly interesting.

I wish you well, friend, and look forward to your second post.





Title: Re: Method of dealing with pain
Post by Maria C on Aug 15th, 2014 at 4:53pm
Dear Mattwilsonfl
I used to meditate so I know the technique. And YES the first thing I did when the BEAST hit me for the first time,
was that TRY to meditate... I COULDN'T. Mine starts with "the shadow" and then I get to work: Oxygen, strong coffee and ice.My ONLY goal is to stop the pain.
This attack has subside as I'm getting it twice a week, only ;D
Of course I followed Mike's (Veteran Cluster) advice :increased my Vitamin D to 2000,started to take Omega 3.
I'm researching another tip when I can prove it work for me, I will post it.  Good luck !


Title: Re: Method of dealing with pain
Post by shooky on Aug 19th, 2014 at 6:53pm
Some CHers do say meditation, guided imagery, biofeedback and the like help them. And it is true that hysterical makes the attack worse. Great for KIP1-5 I guess...

Title: Re: Method of dealing with pain
Post by coach_bill on Aug 28th, 2014 at 6:04pm
Matt/trollbot

I like to remain still and have my wife rub snake oil all over me at the onset of a hit. but we ran out... Know anywhere I can get some??

Coach Bill

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