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Cluster Headache Help and Support >> Getting to Know Ya >> New member seeking answers http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1415811734 Message started by kristen87 on Nov 12th, 2014 at 12:02pm |
Title: New member seeking answers Post by kristen87 on Nov 12th, 2014 at 12:02pm
Hi everyone, I came across this site and noticed that it definitely has the potential to be helpful in terms of plenty of informed cluster headache sufferers. I was just recently diagnosed, finally. I had brain surgery approximately 3 months ago and have experienced excruciating nonstop headaches since, headaches that many of you know are unresponsive to the majority of treatments initially offered by doctors, until oxygen. what a genius concept. My question for anyone willing to take a shot at it is: I often read posts where people talk about their cluster headaches being aborted by oxygen, imitrex etc, I have tried everything from occipital nerve blocks, imitrex injections, you name it. The oxygen is the most efficient however I never experience the 'aborted' part. The headache substantially lessens but never aborts, is this something that can never be stopped? Obviously it appears that the cluster headaches I have are almost intractable and I desperately need tips on how to get to the aborted part of the story. Any and all advice is welcomed! I am sure that I need a maintenance medication but in the meantime can more oxygen get me closer to aborting the headache completely? Thanks again
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Title: Re: New member seeking answers Post by Bob Johnson on Nov 12th, 2014 at 1:17pm
I'm assuming the brain surgery was for Cluster.
If so, and the standard treatments for Cluster have not worked it raises the possibility that you are not dealing with Cluster. There are a number of disorders, some of which are quite serious, which mimic Cluster but whaich are NOT headache disorders. Suggest you see the following and print it and drop on your doc's desk. Look under: Medications, Treatments, Therapies -› Important Topics ->Cluster-LIKE headache |
Title: Re: New member seeking answers Post by BobG on Nov 12th, 2014 at 7:18pm
Hello Kristen. You didn't say if you had a definite diagnoses of cluster headaches. Since the headaches started after surgery if may be a different condition. Cluster headaches come and go, sometimes many times a day/night, 15 minutes to a couple hours at a time. They are no continuous. Also, most cluster headaches are responsive to medications such as Imitrex, verapamil and lithium.
On the left side of your screen is a tab "cluster quiz". Have you taken the quiz? Your results may help us help you through the pain. |
Title: Re: New member seeking answers Post by LTtheKid on Apr 30th, 2017 at 11:17am
Just wanted to bump this one to the top and say thanks Batch! I hadn't seen this method before, but have been using exclusively since the beast returned about 3 weeks ago and I was back reading this site (episodic sufferer for about 20 years, cycles every 2-3 years for 4-6 weeks, always at night). It's worked great, usually aborting within 5 mins or so, with a flow rate of 5 L/min. I could probably bump it lower as I could hold my breath for quite a bit longer, but I have plenty of oxygen at this point. Had fallen off the Vit D train, but I'm back on and the hits are quite a bit milder than in the years before Vit D. I don't always do the 30 second warm up, but do try to blow off as much CO2 as possible with the exhalation breaths.
Thanks again Batch for all you do! |
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