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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> Vitamin D stopped working-Please Help http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1464359817 Message started by algraz on May 27^th, 2016 at 10:36am

Title: Vitamin D stopped working-Please Help
Post by algraz on May 27^th, 2016 at 10:36am

Hi everyone,
I am a chronic CH'er who was able to stop the attacks with the vitamin d regimen in December 2014. Just a few weeks ago the beast came roaring back. The only thing that has changed for me is that I had hip replacement surgery in the beginning of April. Not sure if this has anything to do with clusters returning. Any help would be greatly appreciated

Title: Re: Vitamin D stopped working-Please Help
Post by Rumeke on May 27^th, 2016 at 12:16pm

I would say from experience that the healing of your hip is pulling your D levels down. Can you get a D25 test done? Also I bet Batch will chime in when he sees your post. Listen to him!

Wishing for PF days

Title: Re: Vitamin D stopped working-Please Help
Post by Peter510 on May 27^th, 2016 at 12:44pm

Algraz,

Judy is spot on. Get your 25(OH) D checked, but, because of your recent surgery, it will be way down.

Load dosing at 50,000 iu/day for a couple of weeks should get you back on track.

Peter.

Title: Re: Vitamin D stopped working-Please Help
Post by algraz on May 27^th, 2016 at 5:27pm

Thank you both for the replies. I was hoping that my recent surgery had something to do with the relapse. I have already gone up to 20,000 iu/day with a 50,000 iu loading dose per week, which is the dosing method that originally worked for me. I have never taken 50,000 per day, but I will try it until I can get my levels checked

Title: Re: Vitamin D stopped working-Please Help
Post by Peter510 on May 27^th, 2016 at 5:32pm

Let us know how it goes.

Peter.

Title: Re: Vitamin D stopped working-Please Help
Post by Batch on May 28^th, 2016 at 5:47pm

Hey Al,

Thanks for the update and sorry to hear the CH beast made a comeback and jumped ugly...

Surgery and trauma trigger inflammation as part of the immune response and this consumes available vitamin D3 and it's metabolites at much higher rates frequently leaving too little left to prevent CH.

The loading schedule you're taking will likely have you back on the CH pain free wagon in a week or so. You can speed up this process by taking 50,000 IU/day plus all the cofactors for 5 days to a week then throttle back to your usual maintenance dose for a month and see your PCP for another 25(OH)D lab test.

Take care and please update us again when you're back CH pain free.

V/R, Batch