Peter Ketelslegers


Quote:

Peter suffers cluster headaches, which have left him unable to work and look after his family. Ultimately, he feels, unable to live. “It’s like a knife being stuck in my head,” he tells reporter Brett Mason. “It spreads through my whole head. I hit it to get rid of the pain.” The intense headaches can last up to three hours, several times a day. He’s tried many different treatments, including drastic brain surgery last month, but nothing has worked. “If there’s no other solution than just an injection, and gone… do I have to say it? Euthanasia,” he explains. “I don’t want to be a burden to anyone… I should take care of the children rather than them taking care of me, but I can’t.”

Edit: A word of warning, this documentary contains confronting scenes that some viewers may find distressing:

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Peter lives in Belgium.
I watched the Documentary.
I am unsure if O2 users can see it, but it looks like at 7 minutes into the Documentary, he is receiving in hospital only 7 lpm of O2. The bubbler connected I think would not allow enough flow to work, the non-rebreather is too small.
Also at his latitude, he is unlikely to see any D3 from sun and with a language barrier, he may not know of the D3 regimen success here on the site.

I am not in touch with social media or anything.
Can anybody look this guy up?
I don't think he speaks English.
Maybe they speak Dutch in Belgium, I don't know.
If Batch or anyone can actually see this documentary, I am sure Peter can be offered some help and save not only his life, but his family's grief as well. He has already lost his business and home to CH.

Can anyone assist him?

Fish.

  The link is about a year old. 

           Potter

Google translate picks up Peter's language as Dutch.

A news article from a few days ago shows he is still alive and still seeking answers.
Apologies for the translation of the news article, its what google spat out.


Quote:

Diepenbeek - After 27 operations in three years, Peter Ketelslegers see it no more rosy. "I do not feel right," the Deep Bekenaar sighed yesterday just before he went under the knife. This time not for the cluster headaches, but for a hernia. "The doctors are last week said the only thing I would really help in the long term, is moving to a better climate." That he told Het Laatste Nieuws. Not that he can enjoy pain-free in a sunnier climate of life, "but it makes life bearable." Therefore, the family would leave for the south of France, and as quickly as possible. Only bottleneck; moving costs money. Boiler Army estimates that they still will need more than 5,000 euros to take all their belongings. Friends Ketelslegers to lend a hand with this. Next week, they see how it can accurately, perhaps with a fundraiser. "When I heard of this plan, I immediately wanted to do their part," says a friend.

I don't know Peter and have no interest to declare, other than being a lifelong CHer who already benefits from the D3 regimen.

I hope someone can help him, I have no facebook and no language skills. Surely someone here can contact him.
Anyone here speak Dutch?
I sure hope so.
He may not need to move to France if he can get some D3 in a bottle!!!

Apologies for bombarding the site, but as a fellow CHer, I see a person in severe need and I know some people here can help.

F.

Oh, Hello Potter.
I remember you.
Yes, the news link may be old but I'm sure the man's pain is very real and very current.

Your avatar inspired my username, thanks for that Potter.
Can you help this man at all?

  I did some searching and as of Aug. 6th he's still alive and kicking.

           Potter

Indeed Potter.
The news article I quoted was from the 4th of august.

Meanwhile, back on topic...

I await the globe to spin a bit further so a few wiser heads than mine here, can arise and possibly have a look into getting the D3 regimen, in Dutch, sent to Peter for response.

I will be interested to hear what Batch says on it.

F.

He's a member of a clusterheadache fb group I'm also a member of and is active.

             Potter

Fish head,
thank you for trying to help a fellow CHer.
While I live on the west coast of Ireland, I am actually from North of France. I go there every now and then to visit my old Dad, sisters, aunts, uncles and cousins. The area where I am originally from is a few minutes north of Lille, which is 10 minutes from Belgium. I intend going there to visit my family in the next few weeks.
If this man can be found, I am willing to go and visit him and tell him all that I have learnt from Batch about the D3 regimen. The D3 regimen is succesfully working for me, I have been 99.9% pain free for the last 3 1/2 years.
All the best

Excellent!

Now the only impedance should be the age old language barrier. That will be easily bridged when a speaker of Dutch, or as thierry kindly pointed out, a speaker of French may be able to assist.

edit; Sorry Thierry, we posted at the same time and I missed yours. I too have learned much from Batch on the D3 regimen, not quite a Jedi yet, but 4 years in and looking good. If Peter here does not know about this, it would be a travesty if he followed through, indeed.

F.

Fish head There is the link

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It works for me in Ireland

Thanks Thierry,

I managed to get post count up and edited to include it as the OP. Thanks again.

I just knew people here would come out to help.
If you can see that documentary, I need say no more.
We all know what it feels like, but it looks very harrowing for Peter's Wife and Children.
Hopefully something good comes out of this.

F.

haven't yet had time to watch the program.

Do we know where this man is in Belgium?
where he lives?

Who made the TV program? Production company? Producers/
? Journalists?

Who is the doctor that treats him? hospital?

If someone can help locate this man, I am willing to go and tell him what I know about O2 and D3.

Potter,

Fish head just told me through a private message that you saw that this man is in a facebook group.
I do not do facebook.
Do you think you might be able to get in touch with the man through facebook and find out where he lives. Maybe even tell him that someone is willing to go tell him about things that could help his CH.

All the best

Aired on Australian Television Network "SBS" current affairs program DATELINE in late 2015.
Producers/writers: By Brett Mason, Calliste Weitenberg.

Perhaps for those able to view the documentary, more information will become clear.

I'm sure the Facebookers and those with social media aptitude will be able to locate Peter. I am not equipped to do so, that is why I post here on it.

F.

Hi Potter,
just saw your post above about fb.

Maybe it's possible for you to get in touch with this man in Belgium.

If you do get in touch with him, I would give you my phone number so that you could pass it on to him.

All the best

there are many people with his name on the Belgium phonebook.

:-?

36 minutes in to the program is an interesting clue about where the man might live, i have tried to match the house number to addresses i can see on the belgium phonebook for someone with that name. unfortunately no match has come up yet.

Ok, a few leads from the documentary itself.

When driving to a hospital, it is said to be "just outside Brussels". Not that this is particularly helpful.
I note that Peter's Wife, Conny Ketelslegers speaks very good English. Of course she could be a point of liaison for any contact. FB page: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE


I see when the Journalist is approaching Peter's farm, there is a sign outside that says "Diepenbeek" I assume it is a locality, it is next to a wind farm by the look of it.

Brett Mason at SBS spent 6 months filming the family.
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I don't use twitter, or know how it works, so the link may not work. Apologies if it is broken.

I saw a shot of the front of Peter's accommodation.
It is perhaps an invasion of privacy for me to post this, but it did go to air on TV, under agreement with Peter I assume:

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A few leads, aside from what Thierry and Potter have already looked into.

F.

hi fish head,
it's not an invasion of privacy, it's on tv for everyone to see.
I may have a phone number for them. i will wait a bit before i ring it as it is early morning yet.

Thanks Thierry.

Gee this really is moving very fast...
I hope Peter does not mind the attention.
I am mindful of the CHer's plight and states of mind and respect his right to privacy, but as you point out Thierry the broadcast will have been subject to release forms for permission(s) to broadcast.
I just hope that some assistance may come of this, if Peter has not yet heard of the D3 regimen.

I've done aerial recon on a shot of Peter's farm (I wish Batch was around...), but as the Documentary says, it has been taken by the bank and the photo of it on the wall of Peter's accommodation may be an indication that he is no longer there.

Excellent sleuth work Thierry.

I was certain geo-blocking would prevent others from viewing the documentary, but Thierry has confirmed that it plays, at least in his neck of the woods.

As a reasonable precaution, I added a warning to my first post with the link, as the material is confronting for most people, perhaps moreso for CHers and their supporters. I know at my lowest, I might have avoided watching this documentary. It is fairly confronting stuff. Those finding themselves in need should contact their local lifeline or counseling services if this documentary brings up any issue.

Thanks for all your help.
Maybe we can help Peter, I sure hope so, that film is heart wrenching stuff to watch.

Fish.

with what we can see on the documentary from 36:00 to 38:00, the belgium phone book, and google street view. i have found his house. i will ring the number on the belgium phone book. let's hope he's still there.
using my daughter's facebook, i see that one of peter's favourite tv programs is the one we're talking about and made you come on this site

I have rang the phone number i thought was his. no luck. that is not his number. can anyone contact him on facebook please

I shall leave it then, as they say "In the lap of the Gods" with Facebook links above for others to make contact with.
Unfortunately in this case, social media is not my thing.
I hope Peter has never heard of the D3 regimen and has great success with it if someone can only get the message through to him. It is in good hands here with the regulars on the site I am sure.

I will check back in a few days and see if there are any developments.

Thanks Potter, AussieBrian, Thierry and anyone else working on this.

Thanks, for all the... Fish.

Hi all,

I am still searching for Peter and trying to locate him.
I have tried to find him or people who know him in his locality using the Belgium phone book and the info that we can get on him  from the video. I have phoned numerous people with his surname, but so far no success.
It would be a shame to let that be the stumbling block to finding and helping him.
We know from Potter that he is a member of a CH group on facebook. I do not do facebook so I cannot contact him through that media.
Could someone that has a facebook account contact him and direct him to this site.
He too deserves the help and support that we received when we came here and continue to receive.

All the best to all

I used the secret code and secret handshake that a bunch of folks round here talk about and contacted him in two minutes.  He's alive and coping.

                   Potter

Hey Potter,
that is great.
May I ask if you have his contact details so that i could get in touch with him please.
Would you direct him towards this site.
I would be happy to phone him if i had his number, i would even visit him if he wanted to. I will be in his neck of the woods soon.
Will you tell me more about the secret handshake?!
All the best

thierry wrote on Aug 12^th, 2016 at 1:19pm:

Hey Potter, that is great. May I ask if you have his contact details so that i could get in touch with him please. Would you direct him towards this site. I would be happy to phone him if i had his number, i would even visit him if he wanted to. I will be in his neck of the woods soon. Will you tell me more about the secret handshake?! All the best

      Now that is some kinda funny.

                  Potter

How did I guess?!

Well Potter I hope Peter will somehow find out about ways that he can help his CH, it looks on that program like he and his wife and 2 young sons badly need all the help available to Peter so that they can try to live a "normal" life. I really feel for the 2 boys who are witnessing all the pain that their dad is going through.
I hope that Peter gets to find out about D3, High flow O2 etc.......

Now, that would be some kinda funny if for some reason or other, Peter had to remain without the knowledge that we are blessed to have been transmited with and that enables us to be pain free and helps our families to live a more "normal" life.

All the best

Quote:

Now that is some kinda funny.

I always find your obtuse humor to be THE most informative and helpful of response Potter, especially when helping a fellow CHer's life is at stake. I'm glad you find humor in this thread...

Watch the Documentary.

If you can still conscionably continue "taking the piss" out of this after seeing the suffering Peter and his family go through, well...

Can you help this man or not?

Thierry has run down many resources as stated, and has not come up trumps yet, as have I.

I can only hope that when Batch returns, that he knows someone in that area who can help explain O2 and D3 use to Peter. Everyone on this site knows 7l/min is not going to cut it for CH aborts, this is THE place to come for O2 knowledge.

This man needs some help.

I shall go the traditional route and start contacting the broadcaster and journalist in question, that I can do.
People will continue to work to get the D3 and O2 info through to Peter, if he wants it.

F.

I'm in touch with Peter on a daily basis. This is Peter

          Potter

---

Hi Potter,

I hope you are well.

Could you tell me the name of the facebook group Peter is part of please.

Many thanks

All the best

thierry wrote on Aug 21^st, 2016 at 5:48am:

Hi Potter, I hope you are well. Could you tell me the name of the facebook group Peter is part of please. Many thanks All the best

  Are you fluent in Belgian?

               Potter

Hi Potter,
I am not fluent in Flemish (language spoken in some parts of Belgium) but i have a few words.
Most belgians speak both languages -French and Flemish-.
I am French -living in Ireland for the last 28 years- so should have no problem communicating with Peter if I had the opportunity. Also most Europeans would have some knowledge of the English language.
You say above that you are "in touch with Peter on a daily basis", through what language do you communicate with him? I believe his wife speaks very good English, from what I could hear on the TV program on which Peter, his wife and their children featured.
I will be travelling to north of France next saturday to visit members of my family. The area is about 1 hour away from the area where Peter lives.
I think Peter might appreciate the fact that another CH sufferer would want to do the effort to meet him, have a chat, exchange ideas and maybe i could share with him the  knowledge that i have gained through this website as to how to help relieve the pain of CH.
In my opinion, that is what this site is about. Being in contact with people who understand has for me been a life saver and I am grateful to every member here for the listening, the sharing and the help that i have been given.

All th best

Thierry, we mustn't be pushy.

Let's just be thankful that he's in touch with one of us, on a daily basis, so our combined knowledge is being passed on to someone who desperately needs it.

On a daily basis.

We'll leave it there so.
The info is not forthcoming anyway and seems to be exclusive, it's a shame. I sincerely hope that Peter and his family get to know all that can help.

All the best

thierry wrote on Aug 24^th, 2016 at 5:34pm:

We'll leave it there so. The info is not forthcoming anyway and seems to be exclusive, it's a shame. I sincerely hope that Peter and his family get to know all that can help. All the best

It's not exclusive at all.  He has no interest in meeting with you.

             Potter

Hey Potter,
that's just what I was going to ask him.
great you did it.
All the best