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Cluster Headache Help and Support >> Cluster Headache Specific >> Vitamin D Level too High http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1471883114 Message started by Jackie A on Aug 22nd, 2016 at 12:25pm |
Title: Vitamin D Level too High Post by Jackie A on Aug 22nd, 2016 at 12:25pm
Has anyone experienced a Vitamin D level that was too high after being on the regimen? I've been on it for a little under a month and no headaches which is great but I just had my level checked on Saturday and it's at 109. I need to get it to 80. Suggestions? Thanks!
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Title: Re: Vitamin D Level too High Post by Rumeke on Aug 22nd, 2016 at 1:37pm
Was your serum calcium checked at the same time? If not get it done and if in a normal range..you are good even with the high D25. I'm sure Batch will chime in and explain why. You don't have to get it to 80...just whatever keeps your CH at bay.
Judy |
Title: Re: Vitamin D Level too High Post by Jackie A on Aug 22nd, 2016 at 1:40pm
Thanks Judy - I didn't get my serum calcium checked. I didn't realize that I needed to. What is the normal range?
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Title: Re: Vitamin D Level too High Post by Rumeke on Aug 22nd, 2016 at 4:26pm
My PCP's labs show 8.7-10.3mg/dl. My PCP usually tests for my calcium level along with my D25 since I am taking a higher than normal dose.
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Title: Re: Vitamin D Level too High Post by Hoppy on Aug 22nd, 2016 at 5:26pm
Hi Jackie, you could try dropping your intake of vitamin D and see how you go! 10000iu vitamin D/day should keep you around the 80 mark, I take 5000iu/day which keeps my levels around the 70 mark and CH free.
Hoppy |
Title: Re: Vitamin D Level too High Post by thierry on Aug 23rd, 2016 at 3:09am
Hey Jackie,
Great to know that you are HA free :) I wouldn't worry about your reading at 109, some go way higher. I've been at 135 with no problems when i did a loading schedule after getting some hits in spring one year. If I remember correctly, Batch has posted about MS sufferers that get relief from higher doses with no sign of toxicity. Taking 10000iu/day should have you at around 80. I seem to remember that you did a loading schedule, which got you Pain Free -PF- quickly, that's probably what brought you over the 80. So, no panic being at 109, I'd say keep taking 10000iu/day and all should be fine or like Hoppy says, you could drop down for a bit. All the best |
Title: Re: Vitamin D Level too High Post by Jackie A on Aug 23rd, 2016 at 9:08am
Thanks for the input. I'm going to drop it to between 5,000 and 10,000 and get tested again in a month.
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Title: Re: Vitamin D Level too High Post by Jackie A on Aug 23rd, 2016 at 1:57pm
Batch, I truly appreciate you taking the time to give me this information. I have an appt with my neurologist tomorrow so I will ask him to order a blood test for the serum calcium. I am not taking vitamin K. I've been taking a multivitamin that has 500mg of calcium and 25 mcg of Vitamin K. I also have been taking 1 fish oil, 1 1200 mg of magnesium and 20,000 of vitamin D. I probably should have switched down to 10,000 of vitamin D last week but I was waiting to get my blood test first. Hopefully my serum calcium will be in range. I'll keep you posted.
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Title: Re: Vitamin D Level too High Post by Jackie A on Aug 23rd, 2016 at 2:22pm
Sorry meant to say that the Magnesium is 400 mg and fish oil is 1200 mg.
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Title: Re: Vitamin D Level too High Post by Batch on Aug 23rd, 2016 at 3:58pm
Hey Jackie,
Check your PM InBox, I've sent you some info. You can find your PM Inbox under the date in the upper left corner of this screen. Klick on the bold font you have 1 new message. Take care and please keep us posted, V/R, Batch |
Title: Re: Vitamin D Level too High Post by Rametto on Sep 10th, 2016 at 12:36pm
Hey Jackie,
I have chronic CH, exagerated out of desperateness and doubled Batch's recommended loading doses. I had liquid vit D drops and took my doses sublingual and swallowed after 5 mins (very effective way to absorb it). With no initial bloodtest, 2 weeks of total 1'200'000IU and 2 week s of daily 10'000IU = very high serum 25(OH)D 439/176 nmol/ng per L, Ca 2.32mmol/L (ok, so no Vit D intoxication), PTH 1.6/15 pmol/pg per L (low but in range so ok I guess), feeling fine, feeling good, only shadows, painfree! Stopped Vid D (but took the rest of the regimen) for 12 days and again painful CH attacks, 1 loading dose of 50'000IU and 10'000IU per day. Cluster went again away after 3 days, no pain, only shadows. Just made a bloodtest one month after the first one, I'm at 364/140 nmol/ng per L and feeling fine. Started B50 in the meantime. CH in total remission since weeks, no attacks whatsoever, sleeping fine, can eat everything, can drink beer without 'paying in pain ' for it. Every week or so a very very light shadow, just enough to remind me being thankful that the time of suffering heavily 4 times a day is over. In the weeks with VERY HIGH VitD serum, I experienced: * coughing with expectorating a lot (like taking Fluimucil) * too light sleep (also reported in one of Dr. Gominak's videos), being aware of short wakeups during night, but not feeling tired after waking up in the morning * very tired during the day without any apparent reason (because of strange sleep?) Phil |
Title: Re: Vitamin D Level too High Post by Peter510 on Sep 10th, 2016 at 2:05pm
Phil,
Thank you for a very informative post. Wishing you ongoing PF days, Peter. |
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