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Daily Chat >> General Posts >> general ch board question http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1485665495 Message started by Pfunk on Jan 28th, 2017 at 11:51pm |
Title: general ch board question Post by Pfunk on Jan 28th, 2017 at 11:51pm
Hello all! Just curiosity? A few years back, I found a few letters on here. One was to give to doctors who may need information. the other, which is really the one I'm looking for, was to give to friends, family and significant others to allow them more insight into CH. as i said in an earlier post, I was PF for 3 years until about two weeks ago. During that time, I got back together with my high school sweetheart from about 30 years ago. Back then the monster was nowhere near as ad as it is now. so obviously this most recent cycle has hit her like a ton of bricks. I thought it might help her to read this. I have also showed her this oard and that she too can get on and speak to other supporters like her. Any help in this area would be greatly appreciated.
PF Wishes to all! Pfunk 8-) |
Title: Re: general ch board question Post by Pfunk on Jan 29th, 2017 at 12:18am
Yes! Thats exactly what i was looking for thank you. I haven't been on in a while and I'm having to re-familiarize myself again. Thank you
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Title: Re: general ch board question Post by Pfunk on Jan 29th, 2017 at 3:05am
Thanks Mike. That's the one
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Title: Re: general ch board question Post by Callico on Jan 30th, 2017 at 8:35pm
Pfunk,
Sorry life isn't treating you so well right now. That bites it big time. Simon's letter used to be on the OUCH site until it was stolen from us. Glad OUCH-UK is keeping it available. To Pfunk's girlfriend, Welcome to the club no one wants to be a member of, but cannot leave once they become a member. (Some of us are lucky enough to be inactive members, though!) Just want you to know you are loved by all of us. We love anyone who loves one of us. We're kind of family that way. This beast we fight is bad enough that when we find someone to love us in spite of it and all of the disruption to life it brings, they are cherished beyond what normally happens. We realize we are not at our best when the beast is calling, so to have someone love us anyway means a lot! You are hereby granted honorary membership in the guild and all rights and privileges thereto are yours to enjoy, to include all of the love and support we can give in return. Please let us know any way we can be of help and encouragement to you. Any question is welcome and we will do our best to answer. No question is a dumb question. Some answers, though, are suspect. :D Jerry |
Title: Re: general ch board question Post by dennisoc on Feb 1st, 2017 at 4:22am
Callico...very nice...some day I'd like to meet you.
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Title: Re: general ch board question Post by Ciminosgirl on Feb 1st, 2017 at 9:27pm
Jerry,
Thanks so much for your sweet words and kindness. I am extremely grateful for this site and the people on it. I feel the love ❤️ It has been very helpful to me in understanding what's happening. Life has been very good to us the last year and a half. We picked back up where we had left off years ago. I love him more than I could ever explain. I have always known he was my soulmate. Reconnecting was a dream come for me. He was upfront with me that he could have a reoccurrence at anytime and explained how bad it could be, however you can't prepare enough to see it happening. 😭😭😭😭 I am lost when this is happening bc I can't make it better for him. It's in my nature to make things better if at all possible. It breaks my heart he has had to face this alone all these years. (in person that is. Very grateful he has had all of you on here) He will NEVER have to be alone in person again! Walking away from someone going through this is heartless. It might be stressful and very hard to watch the suffering he indures, but I am committed to him no matter what. I am a strong person. We will get through this along with anything else that is thrown our way. With all the chaos and confusion in this world it's a breath of fresh air to feel all the love here. I truly appreciate it. He was very touched as well by how welcoming you were towards me. I will have questions along this journey as I learn more. Have a good night. Take care. Thanks again, Ciminosgirl ❤ |
Title: Re: general ch board question Post by Callico on Feb 3rd, 2017 at 6:26pm
Ciminosgirl,
Welcome aboard. Wish you weren't here, but so glad that you are. You have no idea how many of us have lost family, spouses, fiancees, boyfriend/girlfriends, etc. over this mess. To have someone who will stick with us is a treasure, and we don't hold it lightly. We LOVE our supporters! [smiley=hug.gif] [smiley=kiss.gif] I know too well how hard it is to see someone else in pain. I've been around other clusterheads when they are getting hit, and believe me, I'd rather take the hit myself than watch them. You supporters have it much worse than do we. I fully believe that. Don't be a stranger. Let us know how we can support you and help. Drag him along, and come up to Chicago in Sept. for the Clusterbusters conference. Would love to meet both of you, and I can promise you, it will be a life-changing experience for you. Meeting in a room with over a hundred of us crazy people can be nothing less! Jerry |
Title: Re: general ch board question Post by dennisoc on Feb 10th, 2017 at 7:44am
I just fuckin hated it when my son ADAM in a wheelchair had to see me during a cluster. I saw the concern in his eyes...Unable to do anything to comfort me as I cried , screamed, paced , fell , pleaded to God to kill me.
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Title: Re: general ch board question Post by aceserve on Feb 11th, 2017 at 4:04pm
Thank you for posting the explanation, which I had seen before and which I just shared with a couple of people. It is amazing and somewhat disheartening to know that many people are completely oblivious to CHs and what we go through. I was even telling my brave and tough wife that she doesn't know that kind of pain. She mentioned giving birth. I read her the part about that comparison. She kind of took offense. Of course it was tough for her and I admired what she did (and I was there every step of the way), giving birth without an epidural (it was too late by the time she asked for one). But I can understand where she is coming from, because people who expeerienced that can't imagine worse pain. But that worse pain is out there, as unfortunately all of us know.
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Title: Re: general ch board question Post by Callico on Feb 22nd, 2017 at 11:26am
Ace, not that it is a competition, but check this out: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or END PRINTPAGE
I don't know of anyone who has committed suicide over labor, but I have lost more than several friends over this pain. Fortunately, we have a lot of options that weren't available to us when DJ started this site in '98. Jerry |
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