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Cluster Headache Help and Support >> Getting to Know Ya >> New to this Forum http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1489436354 Message started by Tex on Mar 13th, 2017 at 4:19pm |
Title: New to this Forum Post by Tex on Mar 13th, 2017 at 4:19pm
Old timer on everything else. CH for many years now, tied to the solstices.
Doc told me these CHs are very primitive, coming from the cerebral cortext. Tried 02, with no luck. I keep verapimil, gabapentin, and prednisone to break the cycle, and immitrex injections for the headaches themselves. Thanks for making this forum. |
Title: Re: New to this Forum Post by Peter510 on Mar 13th, 2017 at 5:33pm
Welcome Tex,
Sorry you have to be here but glad you are. Can you elaborate on your previous use of O2 please? Flow rate, type of mask etc. Gave you read up on the D3 Regimen ? Peter. |
Title: Re: New to this Forum Post by Tex on Mar 13th, 2017 at 6:07pm
I don't remember the flow rate, but it was maxed to the controller thing, I forget the name. Not sure on the mask. It had 1 hose going to a cheap plastic mask.
I just was reading and saw this: CH patients who are known heavy cigarette smokers will eventually develop medical contraindications to the other primary CH abortives triptans and DHE, thus leaving oxygen as a sole abortive choice. In addition, because prescribing information limits the use of injectable sumatriptan to 2 doses per day due to potential adverse reactions and 53% of survey respondents report more than 2 CH attacks per day,6 the need exists for an abortive such as oxygen that can be safely used for as many attacks per day as a sufferer may have. I have not smoked since Dec 31, 2016. My recent headache cycle began late last Friday, and I haven't had more than 2 per day. I haven't had any immitrex, so I have been doing everything else to just get through them. Last night when I first began feeling it begin, I took 4 excedrin migraine, hopped in the shower, and stood there for about 45 minutes with the shower as hot as I could stand it, set to the vibrate massage setting, and I let it hit me between my left eyelid and my left eyebrow. Eventually it softened enough for me to relax and go back to bed. |
Title: Re: New to this Forum Post by Tex on Mar 13th, 2017 at 6:08pm
Thank you guys for being so nice. These things make me completely nuts.
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Title: Re: New to this Forum Post by Tex on Mar 14th, 2017 at 10:22am
Thanks for all the help and advice. I am currently 4 days into a cycle. I will call my doc today (slow work day) and check on the oxygen again. Maybe it will work this time. Mike, that mask is the same as the one I used. I tried dilligently to get it to work, sitting on the end of my bed huffing and puffing like a marathon runner, but it didn't help. I smoked then, so maybe that has changed.
Batch, I sent that list to my wife. She is off on spring break for the grandkids and will go to the store and pick it up. I live in Galveston County. I never flew (piloted), but I spent a tour in the USAF overseas in the 80s. |
Title: Re: New to this Forum Post by Peter510 on Mar 14th, 2017 at 11:46am |
Title: Re: New to this Forum Post by Batch on Mar 14th, 2017 at 9:55pm
Hey Tex,
Good move starting the anti-inflammatory regimen. You won't be sorry. I order the Super K at amazon.com and usually buy four of the 90 count bottles for a year's supply. Please keep us posted... lots of lessons learned while taking this regimen. Once you're comfortable with it, get the rest of your family on it... At 50 cents a day the health benefits from taking this regimen are hard to argue. I have my entire family including seven and a half grand kids and close friends taking it. V/R, Batch |
Title: Re: New to this Forum Post by Multivitamin on Mar 18th, 2017 at 10:04am Mike NZ wrote on Mar 13th, 2017 at 5:51pm:
(Needed to delete the link as the board doesn't allow me to post external links yet as a Newbie :) even if just quoted..) Thanks for sharing - read through it but my understanding of most terms isn't advanced enough to fully understand what the significant findings are ? Wasn't it known for a longer time already that the Hypothalamus functions play a major part ? Serious question, I would appreciate if someone can "explain like I am 5" if we can take / expect anything new out of this ? Thanks ! |
Title: Re: New to this Forum Post by Mike NZ on Mar 19th, 2017 at 4:42pm Multivitamin wrote on Mar 18th, 2017 at 10:04am:
Yes, it has been known for a while that the hypothalamus has had a significant involvement in CH, but the level of detail around its involvement is increasing over time as more research is done in this area. The research paper shows that they can detect with a 100% accuracy if the MRI is taken of a person who has CH if they are having a CH whilst the MRI is taken or not. Plus with a 100%level of accuracy to determine if the person has CH or not. So this could potentially form a diagnostic test for CH (something that we don't have at present). However this is bases on a relatively small, all male sample set, which is all too common for CH research. It also shows in more detail what is happening in the hypothalamus during a CH. With more detailed understanding, this can assist in the understanding of CH and can help with creating / improving preventives and abortives. CH is unlikely to be completely solved by a single piece of research work, but it is the accumulation of knowledge in this area that has the potential to incrementally improve how CH is treated and that elusive search for a cure. |
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