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Supporter's Corner >> Children and Cluster's >> mother of 13 year old girl with ch http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1489922914 Message started by emm on Mar 19th, 2017 at 7:28am |
Title: mother of 13 year old girl with ch Post by emm on Mar 19th, 2017 at 7:28am
hi i'm new here, I have tried to research on cluster headaches to try and help my daughter, she has suffered with cluster headaches since she was 10 it is heartbreaking watching her when she has an attack.
She misses so much school as she not only suffers with cluster headaches but migraines and tension headaches on top, She sometimes gets all 3 headaches at the same time! she will start with a migraine then get a tension headache she then knowns with both going it wont be long till she gets a cluster to deal with too. it doesn't matter if she takes painkillers as they don't clear up quick enough before a cluster headache hits her thankfully that doesn't happen often. As a mother watching and trying to support her though this, its hard no mum wants to see her baby girl in this state. but the Pediatricain only worry about her migraines when we go they haven't mentioned about oxygen to her, which i will be questioning when she next goes. After an attack she tells me she goes to sleep now i was watching her yesterday and i would say it looked more like she just passes out! i presume its from all the pain she was in. so i have to ask do you all do that? or is she really just falling asleep after? is it normal to get more cluster headaches when you are unwell? many thanks |
Title: Re: mother of 13 year old girl with ch Post by emm on Mar 19th, 2017 at 6:16pm
Hi Mike and Thank you,
We are working with pediatricians that are supposed to know about ch but they only really know about migraines. I have asked to see headaches specialist and get dismissed, I'm going to really push for her to see one. she has tried a few different treatments but because she is under 18 there isn't much they can try with her, they do seem to focus more on her migraines then the ch because she cant take anything for that at her age, but no one said about the oxygen I found that out looking on here. I didn't know about OUCH UK thank you I will look into that for her, She does go to sleep with a migraine she goes and hides somewhere dark, but with a ch she just cries and screams with the pain I've seen her hitting her head desperate for the pain to go away. then once its over she just falls asleep/passes out. we have done a dairy and so far we can't find a trigger, but they do like to start in the mornings. Thank you i will keep you updated and i will keep looking though the message board its been really helpful the D3 looks like something to start her on but first i will need to make sure with her age i can. :) |
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