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Cluster Headache Help and Support >> Cluster Headache Specific >> Jaw pain?
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Message started by MichelleP12 on May 1st, 2017 at 11:26pm

Title: Jaw pain?
Post by MichelleP12 on May 1st, 2017 at 11:26pm
I awoke this past Friday to excruciating pain in my teeth or jaw. We have been getting deluged with rain but I just got off a CH cycle a week or so before. I do not have much of a rest between cycles as I am chronic. Since no dentists I called were open Friday, I had to wait until Monday (today). Xrays showed my teeth are not bad so there's nothing to cause this pain. She (dentist)  gave me an Rx for antibiotics, just "in case" I have an infection.

So I am wondering if this could be in any way something to do with CH. Maybe it's arthritis since I get that a LOT, especially with rain and the temp drop in fall.

Thanks in advance for your help and any opinions.  :-?

Title: Re: Jaw pain?
Post by Mike NZ on May 2nd, 2017 at 2:14am
A lot of people with CH get pain around the jaw / teeth, leading to many people having teeth removed prior to getting a CH diagnosis.

As to why it happens, the trigeminal nerve is activated during a CH and if you look at the image below you can see it has several branches which go near:
  • eye - multiple CH symptoms including tears
  • nose - a runny nose is common
  • teeth / jaw - pain sites


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So it could simply just be CH related, however it could be non-CH related too, so working with medical people, doctors / dentists, is appropriate to rule out other causes.

Title: Re: Jaw pain?
Post by maz on May 2nd, 2017 at 2:18am
It could absolutely be connected to CH.  One branch of the effected nerve, serves the lower teeth and jaw.  My very first experience with CH was excrutiating pain in my lower teeth.  It's concentrated more around my temple now, but I do sttil sometimes get appalling toothache too.

Title: Re: Jaw pain?
Post by Peter510 on May 2nd, 2017 at 2:31am
Michelle,

I get it all the time. Sometimes (like yesterday) it radiates from my left eye downwards into my jaw and teeth. Sometimes upwards and bounces off the inside of my skull.

But the most fun of all is when it does both.

As Mike says, it runs along the nerve.

Peter.

Title: Re: Jaw pain?
Post by Esheel31 on May 7th, 2017 at 10:31pm
I get jaw pain as well.
My teeth rarely bother me,but jaw pain all the way down my neck.

Title: Re: Jaw pain?
Post by maryo on Jun 3rd, 2017 at 7:34am
My recent bout has been focused around my teeth and jaw on the cluster side, the first time after 37 years of CH.

Title: Re: Jaw pain?
Post by maz on Jun 3rd, 2017 at 11:30am
It's very commom with CH.  It sounds like your CH cycle hasn't ended after all - it's just moved   :'(

Title: Re: Jaw pain?
Post by LasVegas on Jun 3rd, 2017 at 5:51pm
Whatever you do, do not pull healthy teeth!

-Gregg in Las Vegas

Title: Re: Jaw pain?
Post by ronan76 on Jul 3rd, 2017 at 7:20am
yes to jaw pain / back teeth during a 7/10 upwards...
I also have urge to open my mouth like a hippo to stretch it out a lot

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