New CH.com Forum - Print Page

New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> checking in been awhile Terry http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1494190010 Message started by gore2424 on May 7^th, 2017 at 4:46pm

Title: checking in been awhile Terry
Post by gore2424 on May 7^th, 2017 at 4:46pm

Hi all this is Terry I am the one that is 6 blocks away from stepple gate inn Davenport Iowa where we had meet and greats many many years ago.
Havent posted for years but still visit 2-3 times a month to see what might be new and how people are doing.
There is nothing new with me still chronic since Nov 1999 and I have tried everything posted on the message board all no results but a big thank you for the info to try what has worked for others.
I am so glad that people are getting relief from the members that went thur a lot of reserce and trail and error.
Will message again try to do it every other day Terry.

Title: Re: checking in been awhile Terry
Post by Sean McE on May 8^th, 2017 at 3:06am

Hi Terry,
I feel like a foul weather fan....I don't come visiting till the *%#! hits the fan, but it's so cool to come back after a lapse and find the same supportive and dedicated people still here every day helping their fellow ch'ers out. Even though I've never met a single person here, there seems a camaraderie that is comforting. Thank you to all you dedicated people...you know who are! Gee, bet you can't guess why I stopped in for a visit. Sean

Title: Re: checking in been awhile Terry
Post by gore2424 on May 8^th, 2017 at 4:33pm

hi Sean what is the reason you stopped by ?

Title: Re: checking in been awhile Terry
Post by Sean McE on May 9^th, 2017 at 2:50am

Well, if you haven't guessed already...our old buddy is paying a visit. But we have weapons at a our disposal so I'm prepared. Last 4 episodes have been on a 2 year cycle so I was expecting him, arrived a month early though. Batch's recipe really does help but this episode is starting out a little weird but in a good way and I think it's b/c of the vitamins. Oxygen as usual is a life saver, I can honestly say I've never had a true monster hit me since I found out about O2. Saturday night had 4 back to back and while I lightened the tank a fair bit I never had to get up to do a dance. Sunday night was completely PF. Go figure. 😀 Sean

Title: Re: checking in been awhile Terry
Post by gore2424 on May 18^th, 2017 at 6:26pm

SOOOOOOOOO glad you can get relief Sean. Been going to pain center for over 3 years once the new neuro discharged me they didnt think narcotics was the way to treat the clusters best thing got off the fentynal patches and 10 mm morphine shots . Treatment are now trigger point injections and an IV infusion of drugs I dont have names or dosages handy. Still get scripts for rescue pain meds too. I also have to take meds for my pannic/anxiety/bi-polor/depression too. Write again soon Terry