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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Possible Treatment
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Message started by Colwater on Jun 15th, 2017 at 3:54am

Title: Possible Treatment
Post by Colwater on Jun 15th, 2017 at 3:54am
I'm brand new too this forum! An older medicine Cafergot worked excellent and even acted as an akoloid. It is very hard too find even though it does state it's available on line. In fact I asked my doctor for a prescription a couple years ago and the pharmacy ended up compounding it for me. It is basically Ergotamine and caffeine. Sounds simple but it worked really well . I am having episodes now with these clusters again and the medicine is working. Hope this helps!!!

Title: Re: Possible Treatment
Post by Mike NZ on Jun 17th, 2017 at 5:56pm
Hi and welcome Colwater.

It is great that you've got something that works well for you. How long does it take for it to kill a CH?

Are you taking a preventive to cut down how many CHs you get?

Title: Re: Possible Treatment
Post by Hoppy on Jun 17th, 2017 at 6:40pm
I was on Migral for decades then Cafergot, both no longer available here down under, and Mike, if you caught it in time it would abort in about 5mins, if not, then it took about 20mins to kick in.

Cheers Hoppy

Title: Re: Possible Treatment
Post by Mike NZ on Jun 17th, 2017 at 7:33pm
If you catch it in 5 minutes then it is similar to abort times for oxygen and imitrex injections, otherwise if 20 minutes then oxygen / imitrex would be much better options if they work for you.

Title: Re: Possible Treatment
Post by AussieBrian on Jun 17th, 2017 at 7:45pm
I had some reasonable success with ergotomines, variously as a preventive or an abortive, until a neurologist thought it might be fun to overdose me x3.

Not recommended, and I've taken nothing for CH since.

Title: Re: Possible Treatment
Post by Hoppy on Jun 18th, 2017 at 1:48am
Yeah! lots of side effects when taking ergotamine! Gangrene being one of them! you can lose your toes my doctor warned me, even your willy!!

Hoppy

Title: Re: Possible Treatment
Post by Bob P on Jun 18th, 2017 at 7:07am
I used cafergot tablets, sublingual ergotamine and ergotamine inhaler.  Non really did much good.  Just cold fingers and toes from the reduced blood circulation.

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