Hi everyone,
Just wanted to give an update.  I had my follow-up appt with my Neuro on Monday and it was great!  Prior to my appt, I provided her with my blood work results and my CH spreadsheet where I list specifics about each headache and any changes I make to lifestyle, medications, etc.  She said it was one the most helpful things to get from a patient as it helps her to better determine if a different course of action is needed.

Also, I provided her with a copy of the D3 regimen and a printout of the "123 Days" thread.  (Thanks Batch!)  To be honest, I was a bit nervous about doing this as I didn't want to offend, but she was VERY receptive.  How Nice!  I also recommended that she go on the CH website and read all the forum info--and if she wanted to join that would be great!  I told her that I don't have a platform to get the message out about D3, but she does.  And maybe it could help someone else, too.

Since my CH has slowed to about 1-2 per month and are VERY mild, the plan of action is to continue with what I've been doing for my MS and CH.  Exercising 2x/week, Verapamil 120 mg 3xday, O2 at high flow with NRB mask as needed, D3 (7000 IU/day), Magnesium (500 mg/day), B12 (1000 mg/day).  We will adjust as needed based on any issues that arise. No meds for my MS at this time as my only issues have been fatigue that comes and goes.  Next followup in Jan 2018, next blood work in Jan 2018, next MRI in March 2018.  She was very pleased that my last MRI showed no new lesions in the brain and none on the cervical spine...and she said I looked great (and actually I was having a good hair day so her comment was valid :)).

A big thanks to you guys for all your help and advice.  I made sure to give you props when I was discussing this forum with my Neuro.   So...to quote another thread on here..."that's my good news for the day".

PF wishes to all,
Payg

Payg,

Great news!  Thank you for sharing it with us...  I like your neurologist...

Take care,

V/R, Batch

Really great news and it looks like you've a great neuro too.

If only all neuros were like this then it would save a lot of people a whole lot of pain.