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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> D3 regimen altered cycle but not pain free http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1509408430 Message started by DannyUK on Oct 30th, 2017 at 8:07pm |
Title: D3 regimen altered cycle but not pain free Post by DannyUK on Oct 30th, 2017 at 8:07pm
Hi all,
First of thanks to Batch for all his work in the D3 regimen and the other knowledgeable people on this site. Now the quick story. It is not me that suffers from CH but my brother. He has been suffering for a few years now. Started out as just seasonal; spring and autumn, but now seems to be suffering all year round. After doing lots of research on this site he has now started the D3 regimen. As he was having quite a bad period he jumped straight into it without waiting for bloods. We have now had D3 levels checked after one month following the regimen and they came back as 197.2 nmol/L. That also included a few days loading period so must of been low to start with but now somewhere near adequate. Something is definitely happening as he has noticed a change in cycle but still not pain free. Over the past week he seems to suffer quite a bad attack around the same time each night. I wondered if anybody else taking D3 had experienced this before. I see the use of Benadryl is mentioned if there isn't a reaction th the D3. Would the next step be to try Benadryl (or the UK equivalent) for a week or so? Thanks all Danny |
Title: Re: D3 regimen altered cycle but not pain free Post by Genever on Nov 5th, 2017 at 10:17pm
I am currently experiencing the same thing. I have been taking it for about 2 weeks and it feels as though the pain has shifted, but is not all gone. I have added Benadryl. This worked for me in the past rather quickly but not this time for some reason. I’m sure others who know more will chime in.
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Title: Re: D3 regimen altered cycle but not pain free Post by DannyUK on Nov 6th, 2017 at 12:18pm
Thanks for the detailed reply Batch.
He was episodic when they first began around 7 years ago but now they are definitely chronic. Over the last few days he seems to be suffering with one of the worst bouts I've seen. I'm not sure whether it's just the change in season, the altered D3 level in his system or something else unknown. I could not find Benadryl here in the UK but the chemist did have Sleepeze tablets which contain 50mg of Diphenhydramine Hydrochloride. Will start on a 7 day course of these today and recommend he goes back to a loading dose to increase the D3 even more. After reading all of the success stories I really want the D3 regimen to work for him. Something is definitely happening to his cycle so we will be sticking to it. Will keep you updated after trying the anti histamine. Thanks Danny |
Title: Re: D3 regimen altered cycle but not pain free Post by DannyUK on Nov 14th, 2017 at 4:49pm
Little update on my brother (Mike)
This is just as much a log for me to monitor the process as much as anything else. Completed 7 days of 50mg Diphenhydramine HCL and an increased D3 dose of 20,000iu a day. The first couple of days he seemed pain free during the day and was suffering one attack at the same time each night. Now there is no real schedule to them. Still suffering the odd attack day/night that is silenced with oxygen. Certainly having a lot less attacks than the previous week but at the moment not entirely sure if its the D3 or just end of a bad spell. Either way he is sticking to the full D3 regimen each day so lets hope for further improvement! Thanks Danny |
Title: Re: D3 regimen altered cycle but not pain free Post by DannyUK on Dec 5th, 2017 at 6:26pm
Thank you for the detailed reply Batch they always make a good read. Been a little while since my last post so a few things have changed.
Went to see a neurologist a few weeks ago who was quite promising. He recommended an increase in Verapamil and also prescribed a week long dose of prednisone which worked wonders! For anybody who hasn't tried prednisone I would certainly give it a go - I know it doesn't work for all but it stopped Mike's headaches dead within 24 hours. Throughout the prednisone he stuck to the D3 regimen religiously. One week after stopping the prednisone he had his first headache but wasn't too bad. I have every confidence that after a complete break in cycle that the D3 will work its magic. Talking D3, the neurologist said he would take a look as Mike was the second person in a week to mention it. The more people taking a detailed look the better. For people out there still struggling, there are plenty of other options to try so don't loose hope! Danny |
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