I used to post here regularly years ago. I'm sure many of my old friends and not-such good friends, such as Jonny aren't here anymore.
I was lucky enough to have a 5, yes, 5 year remission. So, I just stayed away, thinking that hanging out here might be a jinx  :o of sorts. That remission ended, much to my deep disappointment. Then another year and a half cluster headaches-free. Now, I'm back in a cycle I can't seem to break out of. D3, oxygen, Verapamil, steroid taper. Nada, zip. Multiple hits a day.

Anyway, I'm not posting for sympathy. I just wanted to say "Hi" and see if any of my old friends are still around. Hanging in there by my fingernails.

Hi and welcome back, sorry that it was the result of the end of a long remission.

For D3, check that you're following the latest version for which you can find at - START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE.

Batch has kept updating this as he has got feedback from people as to what works / doesn't and it might have the info you need.

With O2, have you got the non-rebreather mask and a high flow rate? Higher flow rates have made a difference for some. And do you hyperventilate when on it? That can boost effectiveness too.

Got sumatriptan (Imitrex) injections / nasal spray?

What dose of verapamil did you try? One of 360-480mg a day is effective for many, but some go to around 1000mg/day.

Tell us more and we might be able to make a difference.

I'm up to date on D3, as Batch e-mailed me his newest protocol. Got the right mask, although I'm working off E tanks right now, so limited to 12-15 lpm. Still have to investigate welder's O2 with appropriate attachments. Not sure about hyperventilating: how and when. Sumitiriptan. Check. Currently on 280mg Verapamil. And, I have a GammaCore on order.

Thanks for checking with me, Mike. Much appreciated.

280mg of verapamil is fairly low, so lots of potential to go higher, but that also depends on your medical history, but worth asking your doctor about it.

Batch has posted instructions on using a plastic trash bag to make a huge reservoir, which can mean you can get higher than 12-15lpm. Plus, depending on the tank design, you may be able to get a regulator that goes higher.

For hyperventilating, read:

• START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE
  
• START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE
  

Some people here have had success with the GammaCore device, hope it works for you.

YO "d"...we don't forget FAMILY...door's open...WIDE!....Merry Christmas to you and yours.....

Best

Jon

Welcome back. Wish you weren't here.

Jerry

LOL! Me too!  :'(

I've been headache-free now for a little over a week. Don't know if it's the D3, the Verapamil, or, more likely, the Botox taking effect while I've been on a steroid taper (this has worked in the past).
Just grateful for a full night's sleep!