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Cluster Headache Help and Support >> Cluster Headache Specific >> Change in cycle/High D levels
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Message started by fiftyamp on Feb 22nd, 2018 at 12:25pm

Title: Change in cycle/High D levels
Post by fiftyamp on Feb 22nd, 2018 at 12:25pm
Hi All,

Had 2yrs PF end on 12/25, and it was a mild 3 week cycle.  About 2 weeks after it ended, another cycle started and is still going on.  In 20 years, I can't remember this happening.  The only changes for me were that I used Imatrex twice this time, and I didn't bust with shrooms(which I've been doing for 10+ years).  Also right after the first cycle ended, I lost my Dad.  I'm not sure of grief has any bearing on CHs.

Also, I take Batch's D3 regime, but my last Vitamin D3 25-OH test came back at 184.5 ng/mL. I'm not sure if I should continue with the regime.   Can't get into see the Nureo for a few weeks, and I'd appreciate any advice.   Thanks

Title: Re: Change in cycle/High D levels
Post by Mike NZ on Feb 22nd, 2018 at 1:45pm
Are you following all the steps in the D3 approach - START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

One thing about CH is that it has a habit of changing either between cycles or even during cycles.

Title: Re: Change in cycle/High D levels
Post by fiftyamp on Feb 22nd, 2018 at 1:50pm
I wasn't taking the K2.  But I'm a little worried to take the regime right now with my D levels so high.

Thanks for the response, Mike.   I notice you're usually one of the first to always offer help here. 

Title: Re: Change in cycle/High D levels
Post by Hoppy on Feb 22nd, 2018 at 10:56pm
Not sure how much vitamin D you're taking, but that reading is awfully high! I take 5000iu/day together with the other cofactors which keeps the beast at bay and my levels stay around the 60-70ng/ml mark.

Hoppy

Title: Re: Change in cycle/High D levels
Post by fiftyamp on Feb 22nd, 2018 at 11:26pm
I was talking about 170,000 I/u a week for almost 2 months, with a 2 week break in-between.  The back-to-back cycles threw me for a loop.  I usually take 10,000 i/u per day.

Title: Re: Change in cycle/High D levels
Post by Hoppy on Feb 23rd, 2018 at 3:23am
A loading dose of 50000iu once a week for two weeks plus the normal 10000iu/day together with the other cofactors is known to abort the beast in some folk, but when starting the  vitamin D regimen whilst in cycle it doesn't always work, so if I were you, I would cut back on the vitamin D and see how I go.

Hoppy

Title: Re: Change in cycle/High D levels
Post by Callico on Mar 6th, 2018 at 6:52pm
I'm far from an expert in this, but I can tell you grief, coupled with a break between cycles (As Mike NZ noted) can be a factor. I have to keep my Vit D numbers around the 140 to 150 level to gain any benefit from it. This gives my GP the shivers, but my Neuro is quite comfortable with it. He prescribes even higher levels for his MS patients. As long as you are using the other cofactors and you are not showing any symptoms of Vit D toxicity, I'd not be too concerned. I would watch my calcium levels as the Vit D tends to turn to calcium in the blood. That's why K2 is important, to bond the calcium to your bones and teeth.

Hope this makes sense.

jlc

Title: Re: Change in cycle/High D levels
Post by fiftyamp on Mar 6th, 2018 at 7:21pm
Thanks Callico!  Appreciate the advice!

Title: Re: Change in cycle/High D levels
Post by Callico on Mar 6th, 2018 at 8:26pm
fiftyamp, I'd also suggest you touch base with Batch and pick his brain. He actually knows what he's talking about. I just try to share what I've picked up along the way.

I lost my dad four years ago, and though we knew it was coming, it still hits hard. My father-in-law, and one of the best friends I've ever had, passed away last April. Again, not unexpected, but it hurts. We deal with the grief, but I can't help but believe that stirs up our CH for a while.

My condolences, indeed. I wish I could give more than words. You will always miss him, but focus on the positive memories, but at the same time, limit them. Looking back keeps the wound open. It will never go away, but it does scab over given time.  [smiley=hug.gif]

jlc

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