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Cluster Headache Help and Support >> Getting to Know Ya >> Thank you CH.com!!! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1531443523 Message started by DanAge50 on Jul 12th, 2018 at 8:58pm |
Title: Thank you CH.com!!! Post by DanAge50 on Jul 12th, 2018 at 8:58pm
Well after ramping up over three weeks with more and more frequent/severe/mysterious headaches, getting scared as hell and winding up here, desperate - learning to cope as I then have 40 attacks in 10 days - they have now reduced greatly. As I sit, there has not been one in 20 hours. More importantly - thanks to you folks - now I have some tools and know-how to help me deal with it. I know it could have been worse, and might be next time. But I know where to turn if it does.
I learned about red bull and 5 hour energy. How to be persistent with my doctor and get a referral to a neurologist, to ask for o2 to have in the house, and sumatriptan for night hits. I learned how to call the insurance company and find out how to get as many forms of the stuff as I can get (nasal, shots, vials) you have a limit on each form of delivery, so I got them all. I have learned to stretch pens out x3 times longer. I got a great non-rebreather mask from this site with a large reservoir and learned how to do a 30/30 room air/O2 hyperventilation method from Batch that uses 4LPM and has me feeling golden in 10-15 minutes. I have gotten on the anti-inflammation regimen at 12 day loading, and in 7 days my headaches have gone from 6/day, to 2 yesterday. Coincidence? I doubt it. I learned I don’t need to let this ruin my life between hits, in fact not at all. Then the Beast wins, and I don't have to let that happen. I’m armed and ready for him if he comes back again. And I know where to turn if I need support and wisdom from well-informed, kind, and tough-as-hell warriors like you folks. Thank you!!!! -Dan |
Title: Re: Thank you CH.com!!! Post by Batch on Jul 13th, 2018 at 12:19am
Hey Dan,
That's an outstanding message for CHers coming up against the wall and wondering what to do next. Good on you! V/R, Batch |
Title: Re: Thank you CH.com!!! Post by Mike NZ on Jul 13th, 2018 at 6:43pm
Dan, that is a wonderful post.
It is amazing what a difference it makes to have some knowledge and tools so that you're taking control over your CH and it isn't CH that is controlling you. |
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