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Cluster Headache Help and Support >> Cluster Headache Specific >> Who here is happy with the CH Wiki page? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1540461111 Message started by John2 on Oct 25th, 2018 at 5:51am |
Title: Who here is happy with the CH Wiki page? Post by John2 on Oct 25th, 2018 at 5:51am
Hello CH site people!
Who here is happy with the wikipedia page on cluster headache? I was shocked to see Batch's work is not there, it's been published in a journal discussion paper, so could surely be referenced there. The wiki page on CH does not contain the word "Vitamin" anywhere and yet so much PF status can be seen here. Like it or loathe it, practitioners are using wiki and printing out pages for patients... With allegedly 7 million hits a year on that page (so a wiki person tells me) that page is probably the first port of call for any casual googler... Thoughts from those who know CH best? |
Title: Re: Who here is happy with the CH Wiki page? Post by John2 on Oct 27th, 2018 at 8:05pm
Thanks Batch. That explains a lot. The CH Wiki page is controlled more or less by one individual who reverts all edits, seemingly to an agenda... It even seems an automated process... It is fishy indeed...
Wow, that's a lot of views and downloads. It's great that word of the D3 regimen is getting out by whatever means. Thanks again. |
Title: Re: Who here is happy with the CH Wiki page? Post by John2 on Oct 29th, 2018 at 6:19pm
Oh no! Wires crossed! I meant the CH Wikipedia page, not VitaminD Wiki, sorry if it came across as the wrong page Batch.
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Title: Re: Who here is happy with the CH Wiki page? Post by Mike NZ on Oct 30th, 2018 at 1:36am
I'd agree with your thoughts around the Wikipedia page.
I've tried several times to update it and every single update was reverted by "Doc James". This included where I had references for everything using multiple medical journal articles, with him finding some form of fault with what I wrote or the journal articles. Sadly a LOT of people will read the content and not get the full range of knowledge and treatment options that are available. Not everyone is lucky enough to find these forums. |
Title: Re: Who here is happy with the CH Wiki page? Post by Batch on Oct 30th, 2018 at 4:34pm
Hey John,
No problem. That said, words do make a difference. Since joining this forum in 2006 I've tried to make sure there were no ambiguities in my posts that created confusion or conveyed the wrong message. I use that same discipline when reading posts by others. Nowhere is this more important than posts about vitamin D3. Too many CHers are unaware of the health benefits made possible by taking 10,000 IU/day vitamin D3 and its cofactors or that vitamin D3 is one of the most effective CH preventatives. Accordingly, it's important the confusion factor is low. Take care, V/R, Batch |
Title: Re: Who here is happy with the CH Wiki page? Post by John2 on Nov 8th, 2018 at 10:59pm
Batch, I agree wholeheartedly. I do see the D3 regimen making a fair progression across the internet and that's good. But on the other hand, the more hands it passes through outside of this site the more ambiguous it seems to become.
That's why I thought it should be on the Wikipedia page. I've had Wiki pages handed to me by ER doctors more than once, so like it or loathe it, Wikipedia is representing our condition however some individuals would like. You should see some of the crap out there on the D3 regimen posted everywhere but here (YouTube, FaceBook pages). This is the place to come for D3 advice. The horse's mouth, so to speak. Mike. Doc James, what can I say? An Emergency Doctor from Canada on the late shift, or so his bio says. And to my knowledge, has never suffered a CH attack in his life. I've done battle with him many times in Wiki edits. He won't respond unless on his talk page and when he does it is often condescending and brash. He reverts edits with little or no consideration for the facts. He seems preoccupied with the term "Suicide" in the CH article and always leans toward the dramatic in his edits. My edits, backed by the latest science, clinical trials, references, citations, have been labelled "vandalism" and summarily removed. And he says he's not very literate. How can one Wikipedian have so much control over one page and one medical condition? It is simply staggering. He's been removed from the board before, we can only hope Doc James the gatekeeper is further demoted so that information about our condition is not hijacked by one individual. Apologies, Doc James really pisses me off. |
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