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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> Thought provoking http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1547309695 Message started by Peter510 on Jan 12^th, 2019 at 11:14am

Title: Thought provoking
Post by Peter510 on Jan 12^th, 2019 at 11:14am

Hello all,

A friend in the European CH group I am involved with sent the following message.

I think this is a subject that we should not shy away from, difficult as it is to deal with.

“Best friends,

First of all, my very best wishes for the new year.

I also want to report that a CH companion that I personally know has chosen to stop his suffering in a controlled manner yesterday. 20 years of CH without hope of further treatment made him make that decision. We can only wish this man the eternal best wishes.......

......To my knowledge this is the first CH patient in Belgium where euthanasia is permitted. This man also got neurostimulator but in vain.

For privacy reasons I do not publish his name

Let us hope that this should not happen to anyone”.

Peter.

Title: Re: Thought provoking
Post by AussieBrian on Jan 12^th, 2019 at 6:08pm

That's very sensitively handled, Peter.

Well done.

Brian.

Title: Re: Thought provoking
Post by Mike NZ on Jan 12^th, 2019 at 8:02pm

Total agreement with what Brian said.

Only those who know CH first hand can understand the impact of CH, especially uncontrolled CH.

Title: Re: Thought provoking
Post by John2 on Jan 12^th, 2019 at 9:46pm

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE :'(

Title: Re: Thought provoking
Post by Mike NZ on Jan 13^th, 2019 at 12:06am

John2 wrote on Jan 12^th, 2019 at 9:46pm:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE :'(

The above URL didn't work for me - try this one:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or END PRINTPAGE

Very hard to watch, morally complex and there are no simple answers around this subject.

I couldn't watch it all.

Title: Re: Thought provoking
Post by Peter510 on Jan 13^th, 2019 at 7:43am

It saddens me deeply.

It is proof, if proof were needed, that the value of peer support from places like Clusterheadaches.com and others, should not be underestimated.

Also, it emphasizes the need for much more research to be done into the condition, both cause and effect.

I have said it time and time again, to anyone who will listen in my little corner of the world, that the psychological impact of CH is seriously neglected.

Peter.

Title: Re: Thought provoking
Post by maz on Jan 13^th, 2019 at 9:03am

So tragic - that poor young man. I don't know what to say.

Title: Re: Thought provoking
Post by Skyhawk5 on Jan 18^th, 2019 at 11:33pm

I came to tears when reading this. It is not about suicide, it's about ending this pain forever. I've been there. 30 years and it is still unacceptable. Finding ways to keep going is our most important action.

Title: Re: Thought provoking
Post by ErnestBol on Jan 26^th, 2019 at 7:04am

I've got shivers all over my body after reading that. God bless his soul. I agree, an open discussion is necessary about this on a global society level imo.

Title: Re: Thought provoking
Post by AussieBrian on Jan 26^th, 2019 at 7:23am

G'day Ernest, welcome, and I agree with you completely.