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Message started by Pinkfloyd on May 3rd, 2019 at 1:12pm

Title: Old Timers, I need some help
Post by Pinkfloyd on May 3rd, 2019 at 1:12pm
how's everyone doing? Haven't been here in a while.

I need a little help with the history of this place.

There is a book being written and one of the main characters the author needs help with is our own PinkSharkMark.

Mark passed away back in 2015 but he had been a major player on this message board for many years.

Mark (Pinky) played a major role in advancing the cluster headache online community and the role of the patient community in improving their own treatment plans.

The author (not me) would love to be able to speak with either close friends or family members of Mark's. If that's you, please write to me at

If you think you may have some knowledge about Mark that could help us track down a family member, please let me know.
Mark played a vital role in building a patient community that has helped saved many lives over the years. The author wants to make sure he gets the recognition he deserves.

Mark was originally from Canada but lived out most of his final years living in the Dominican Republic. His name was Mark Hillaby but was known here as PinkSharkMark.

Thanks my friends,
Bob Wold

Title: Re: Old Timers, I need some help
Post by Mike NZ on May 3rd, 2019 at 7:08pm
I can't help directly, but a way to identify people who were posting about the same time as him would be to click on the members tab at the top, then sort by date registered. Then you can see who was around at the right time and hopefully get in touch with some via PMs.

Title: Re: Old Timers, I need some help
Post by dennisoc on Jun 6th, 2019 at 4:23am
The archives tell the story. We were a bunch of suffering folks that sought medicinal relief ...something...any fuckin thing. Our communication thru DJ's board cemented us into a family. Killin ourselves was an option till we met here and laughed thru our tears. Best friends beyond anything we had ever experienced were just black squiggles on a screen. I'd given anything to have met you cats. Too few in person. Shrooms turned the tide fer my sarcastic comedic episodic cluster ass....finally and to this day. What the fuck can I say about someone I never met who helped save my life? Thanks? I wouldn't know him if his ghost bumped into my bedraggled flesh pile. No help here Bob

Title: Re: Old Timers, I need some help
Post by BarbaraD on Jul 8th, 2019 at 12:16pm
Dennis, in your own special way, you've described us all to a "T". We came here without hope and found it ten-fold. I remember the first time I met you. Jonny walked in, you jumped up on a table top and threaten to wipe the floor with him.. He responded and after ya'll knocked over the chairs and table.. you just came up hugging and laughing.

And the funny thing.. I've met probably 1000 CHers and have NEVER met a stranger among them.

Lawdy, I can remember flying to Rochester NY and meeting Kip, Drummer and Elaine and spending a week in Drummer's garage. The first OUCH convention .. LOL.. So many memories of the "good old days"..

Title: Re: Old Timers, I need some help
Post by Callico on Jul 17th, 2019 at 9:30pm
What Dennis and Barbara said. I never had the pleasure of meeting Mark, but he gave me hope. Of course, there are a lot of others, too. Had it not have been for this site, i would probably be wormfood by now.

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