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Message started by maz on May 20th, 2019 at 11:03am

Title: Research
Post by maz on May 20th, 2019 at 11:03am
I have just completed an hour long telephone survey / research from Kings college hospital london, on behalf of Prf. Goadsby.  It was actually about 02 therapy, but most of the questions were about CH it's self. It's good to know that people are asking questions and research is on-going.  I was really glad to be able to take part.  Lets hope it educates doctors and helps others to get 02 therapy when they need it.

Title: Re: Research
Post by Mike NZ on May 21st, 2019 at 4:59am
I bet you surprised the person asking the questions with your knowledge.

Any particular areas the questions were covering?

Title: Re: Research
Post by maz on May 21st, 2019 at 9:14am
They covered everything from my very first experience of CH right through the long process of getting a diagnosis.  All the different meds and treatment I'd had - those that worked and those that didn't, triggers, aftermath - everything,  and my current situation. 

I was first approached by my 02 supplier, and the survey was supposedly about 02 as an abortive, but that whole section lasted less than 3 minutes of the hour long survey.  It was good to be able to off load it all to someone who knew what I was talikng about.

As an aside, the guy who interviewed me is a New Zealander.

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