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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Emgality

Message started by Joshua on Jul 19th, 2019 at 9:42am

Title: Emgality
Post by Joshua on Jul 19th, 2019 at 9:42am
Sadly, after years of Verapamil, and virtually no headaches, I had tapered off. I was good for a few months, and the beast has come back with a vengeance, despite tapering back up.

I was on the D3 for a long time, following to the letter, got my numbers where it was suggested and held for many months, but could not stay HA free w/o Verap.

I've searched the boards and seen a few posts about Emgality, the too short duration of the study, the similarity in efficacy between placebo and actual - but curious if others here have started it/tried it/ditched it/side effects, etc.

Any information is appreciated.

Title: Re: Emgality
Post by Joshua on Sep 9th, 2019 at 8:06am
Just an update on this thread. 3 weeks after taking the once monthly dose of Emgality, my daily cluster attacks went down from 5 to 2 over 2 weeks, and I'm now at the point where I am getting 1 every couple of days. I've had 2 PF days in a row so far, though.

I am not discounting that the seasons are changing and this could be at play as well, but there for sure was an almost immediate difference after taking the Emgality, fwiw.

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