You are no longer alone,  Jesse.  You're now among friends who truly understand,  from the inside,  what a monster this can be.   Happily,  now you've got a name for this beast,  you're taking your first giant stride in taming it.

First and foremost is getting that neuro appointment and hoping like hell he's a bit of a headache specialist.  From there it's a matter of looking at the various preventive type medicines that help stop cycles starting,  then abortive treatments for individual headaches as they strike. 

This is also a good time to start a headache journal listing the time of each hit, the length and intensity, what you were doing at the time, what you'd been eating,  because this will help the neuro a lot and may well throw up some patterns you hadn't noticed.  Everyone has different triggers from alcohol to chocolate to cheese and finding any one of those triggers is a big deal.  A real big deal.

In the meantime you might try chugging down a Red Bull-type energy drink at the first hint of a new hit.  Sounds silly,  and tastes even worse,  but there's something about the caffeine/taurine mix means it works well for many people. 

You could also talk with your local doctor/hospital about the chances of accessing their pure oxygen which is the number 1 go-to for so many.  If you can get onto it at the absolute beginning of a bad one,  at 15-25 litres per minute through a non-rebreather mask,  it can make a huge difference but don't be surprised if they're hesitant about allowing it.  Many within the medical profession haven't caught up with knowledge
that was available decades ago.

The important thing is to know that help is available.  It can be damnably difficult to get at times,  we're all testimony to that,  but you've just leapt a huge hurdle and it's all go from here.

Welcome aboard,

Brian down under.





 

Jesse,
welcome glad you found us.
READ everything you can and if you are a drinker of alcohol
it affects a lot of people in a bad way with these headaches just a heads up.

Mark.

Read up on the vitamin D-3 regiment here on the board.

Mark.

I use The Migraine Buddy app. Very customizable and Cluster is one of the types you can choose.